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adenocarcinoma in situ cervix worried


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Old 10-19-2018, 10:52 AM   #1
indigo15
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Join Date: Oct 2018
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indigo15 HB User
adenocarcinoma in situ cervix worried

Hi,
I have had abnormal paps for the past 7 years, HPV 16 and 2 tests with atypical glandular cells. I have had 2 past colposcopies with benign results. I requested a hysterectomy so I did not have to worry about cervical cancer in the future. My doctor said he needed to do a leep and d & c, ECC first to determine if cancer was present. The leep came back with AIS, Adenocarcinoma in Situ and I was scheduled for a hysterectomy of cervix, fallopian tubes and uterus. My concern is that I have had HPV 16 for so long and it has never cleared. I have read that AIS can have skip lesions and not always found completely during a leep. My doctor keeps reassuring me that this is stage 0 and I don't need to worry. But, I want to know, what happens if they do the hysterectomy and the pathology comes back with a higher grade adenocarcinoma found. What happens after that? Do they do chemo or radiation? Has anyone had this happen to them? I have low WBC and Neutrophils and sometimes I have anemia. I have had a hard time recovering from my leep, extreme fatigue and reactions to antibiotics for infection after leep. I am terrified of my healing time after hysterectomy since itis a major surgery compared to the leep and D & C. My boss is also my doctor, he has been my OB for at least 10 years, so I don't want to offend him by asking so many questions. Anyone have extensive or advanced adenocarcinoma after AIS diagnosis? I had my son at 38 and I am now 46. I fear not clearing HPV 16 for that many years could lead to a worse prognosis than what he is expecting. Anyone have a similar situation? My Hysterectomy had to wait 8 weeks after my diagnosis because my parents were going out of the country and I needed my mom for support after the surgery. I also fear waiting the 8 weeks, not knowing how long this has been AIS to begin with could add to the spread of the disease. I am super fatigued and having a hard time working full time and taking care of my family while waiting for my surgery. Any advice is greatly appreciated. This is my first post to a forum ever. Thanks!

 
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Old 12-06-2018, 06:40 AM   #2
glowing4
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(female)
 
Join Date: Apr 2007
Location: outer banks, nc
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Re: adenocarcinoma in situ cervix worried

Why not go see a gynecology oncologist? If your boss/doctor is really good he will not mind you getting another opinion and that person will be able to answer your questions. My doctor did not mind at all and I am going in a few weeks. Peace of mind is so important and I understand as I am going through similar now too.

 
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