It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Hysterectomy Message Board

  • Scared to death of Hysterectomy

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 03-16-2004, 04:01 PM   #1
    Giggles68
    Junior Member
     
    Giggles68's Avatar
     
    Join Date: Jan 2004
    Location: WI
    Posts: 44
    Giggles68 HB User
    Scared to death of Hysterectomy

    Hi, Well I have a few questions for anyone that can help me. I will be having an abdominal total hysterectomy due to severe endometriosis. I am scared of getting fat from hormones, mood swings, no sex drive. Is this all true or is there something good to come out of this. How long is the healing period. Is it really 6 weeks?

    Thanks!!

    Renee

     
    Sponsors Lightbulb
       
    Old 03-16-2004, 09:17 PM   #2
    Karla
    Inactive
     
    Join Date: Nov 2000
    Location: madison, wi usa
    Posts: 968
    Karla HB User
    Re: Scared to death of Hysterectomy

    Hi Renee,
    I had a complete and total hysterectomy 4 years ago due to endometiosis. It was the best thing that ever happened to me I wish I would have had it done years sooner. My dr and the specialist said that I was not to take any hormones for at least a year because if I did the endo would just grow back. It would be self defeating. So I went the year without hormones. When the year was up my dr wanted to put me on a hormone but I was having no problems or side effects from the hysterectomy so I decided to skip the hormones. I have still got my sex drive but I am dryer than before so I need lubricant. It feels different to have sex without my cervix. I used to orgasm when my husband would bang against it but now I don't have that pleasure. Sex has definetly gone down hill but I still have intimacy with my husband and can perform just fine. Everything works just feels different. I have had no sign of the endo returning. I feel great. I would recomend it to anyone who is done having children. I was first recomended a total hysterectomy at age 18. I refused because I wanted to have children. I was told by an expert that I was so bad with endo I would never get pregnant. Within 4 months of marriage and trying to get pregnant I was pregnant with twins! 3 years latter I tried again for another one and got pregnant the first time I had unprotected sex! So what do drs know? I am glad I waited until I was done having kids first. You will know in your heart what the right thing to do is.

     
    Old 03-16-2004, 09:28 PM   #3
    ~Smitten~
    Junior Member
     
    ~Smitten~'s Avatar
     
    Join Date: Mar 2004
    Posts: 31
    ~Smitten~ HB User
    Re: Scared to death of Hysterectomy

    Hi Renee! It's been 3 weeks and 1 day since my hysterectomy, but I had a vaginal one done so I didn't have to be cut. I too had severe endo, stage 4. Even recovering now, I feel better than I did before the operation. The most important thing you can do is talk with your doctor about any questions you may have. Each and every woman recovers differently. Some take hormones, some don't. Some lose their sex drive, some don't. I think you get my idea. I understand being scared. Before my operation I had people telling me all kinds of things...that I would grow a mustache, get fat, have no sex drive, etc. None of them turned out to be true in the slightest, but for some it does occur. Good luck!

     
    Old 03-17-2004, 05:47 AM   #4
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Re: Scared to death of Hysterectomy

    Hi Renee,

    What the other girls have said is right. I had a total hysterectomy, but I kept my ovaries. I don't have endo and my ovaries are healthy, so I held onto them. I have a bikini cut and it's no big deal. I do have some swelling above it and I have heard that it may last up to 6 months. As for gaining weight: women tend to gain weight and blame it on anything they can. Think about how much better you will feel when you aren't in pain all the time. Maybe you will have more time and energy to exercise. Mood swings - yes, you will probably have some if you skip hormones, but the hormones will probably feed the endo. This is all very emotional and you would be surprised what our hormones do for us. Sex could get better since you won't have all the pain and bleeding, but you may need a lubricant. And, six weeks is the minimum recovery time. Some women can go back to work at four, but it usually causes some setbacks. You will feel great in the first two weeks and then things may go downhill a little. Then, at six weeks, you will be able to start working yourself back into your regular routine. I will be at six weeks on Monday and I don't feel ready to tackle it all yet.

    All kinds of bad things can happen, but most women will tell you that this is the best thing that happened to them. You have to weigh the risks of the bad things against the pain of the endo and decide for yourself.

    Nicole
    __________________
    Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

     
    Old 03-17-2004, 08:01 AM   #5
    Giggles68
    Junior Member
     
    Giggles68's Avatar
     
    Join Date: Jan 2004
    Location: WI
    Posts: 44
    Giggles68 HB User
    Re: Scared to death of Hysterectomy

    Thank-you for all of the information. I think I am understanding it better.

    Renee

    What the other girls have said is right. I had a total hysterectomy, but I kept my ovaries. I don't have endo and my ovaries are healthy, so I held onto them. I have a bikini cut and it's no big deal. I do have some swelling above it and I have heard that it may last up to 6 months. As for gaining weight: women tend to gain weight and blame it on anything they can. Think about how much better you will feel when you aren't in pain all the time. Maybe you will have more time and energy to exercise. Mood swings - yes, you will probably have some if you skip hormones, but the hormones will probably feed the endo. This is all very emotional and you would be surprised what our hormones do for us. Sex could get better since you won't have all the pain and bleeding, but you may need a lubricant. And, six weeks is the minimum recovery time. Some women can go back to work at four, but it usually causes some setbacks. You will feel great in the first two weeks and then things may go downhill a little. Then, at six weeks, you will be able to start working yourself back into your regular routine. I will be at six weeks on Monday and I don't feel ready to tackle it all yet.

    All kinds of bad things can happen, but most women will tell you that this is the best thing that happened to them. You have to weigh the risks of the bad things against the pain of the endo and decide for yourself.

    Nicole[/QUOTE]

     
    Old 03-17-2004, 08:41 AM   #6
    Giggles68
    Junior Member
     
    Giggles68's Avatar
     
    Join Date: Jan 2004
    Location: WI
    Posts: 44
    Giggles68 HB User
    Re: Scared to death of Hysterectomy

    HI,
    Thanks for all of the information. I am curious as to how you can go without any hormone replacement. My Doctor told me I would need it right away. I guess I am scared of growing unwanted facial hair. I am also really scared of the weight gain. I have been on the Atkins diet for over 1 1/2 years and I worked really hard to get to where I am at. I don't want to have an incision that will cause my stomach to get flabby. Maybe I will be ok. I know there is some very positive outcomes of the surgery as well. I had an ablation done in Jan. 04 and that worked very well, I hardly bleed at all now but I get cramps so bad all the time due to my severe endom. so I guess I will go with the hysterectomy. I don't think they are taking my cervix. Just my ovaries, tubes and uterus. I am waiting on the surgery until June so I can be home with my kids for a few weeks out of the summer.

    Thanks again!!

    Renee

     
    Old 03-17-2004, 09:06 AM   #7
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Re: Scared to death of Hysterectomy

    Hey Giggles,

    You really should do a little research about endo and how it might live in your cervix or other places with HRT. The whole theory is that endo feeds off of estrogen. So, even the synthetic estrogen could cause it to continue to grow. That will defeat the whole purpose of the hysterectomy to remove the endo. Some women only stay off of the hormones for a short time, but the longer you go without, the better chance you will have of letting any remaining endo die.

    As for getting a flabby belly, you may feel that way right after the surgery. Swelly belly isn't fat, though. It is the body's natural response to injury. You have probably had swelling at the site of a bug bite or a broken bone before. It's the same in your belly. Actually, doing any kind of exercise to make it go away before your doc releases you will probably make it worse. Walking is the ONLY thing my doc has allowed me to do during this time, but some women can walk a whole lot. For me, it has been minimal because I know that my body just isn't ready for it. As soon as you are up to eating again, you should be able to go back to Atkins, but ask your doc first. As long as you stick with a healthy diet that will promote healing and you walk as much as your body will let you, you shouldn't have too much of a set back. Just remember that the swelling is not flab and it will go away when you are healed.

    While you have these questions in mind, make a list of them to take to your doc. Your doc will know your case best and will be able to give you the best advice.

     
    Old 03-17-2004, 12:27 PM   #8
    Giggles68
    Junior Member
     
    Giggles68's Avatar
     
    Join Date: Jan 2004
    Location: WI
    Posts: 44
    Giggles68 HB User
    Re: Scared to death of Hysterectomy

    Thanks!! I do realize that my stomach will swell while it is healing. I am more worried about the muscle being cut and then getting flabby because of that. I guess I worry too much.

    Thanks for all of the info.

    Renee

     
    Old 03-17-2004, 02:57 PM   #9
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Re: Scared to death of Hysterectomy

    Hey Renee,

    I had the same thought. When I found out I had to have the incision, I was totally bummed thinking of how painful it would be to have all the muscles cut in half. Turns out, they just cut the skin and then pull the muscles apart to each side. No cut muscles. That's the way it goes with a bikini cut, but I'm not sure about a vertical cut. I would imagine that cut just goes between muscles. It takes a little while for it all to settle back in and there is still pulling on the internal sutures and the external incision when you move, but it's not that bad. I think I already said this: my incision was totally healed at two weeks.

    By the way, I think it is good to be afraid and ask a lot of questions. This is a big deal, the recovery is long and it will have an impact on the rest of your life. Let's hope it's a positive one.

    Hugs,
    Nicole
    __________________
    Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

     
    Old 03-17-2004, 05:16 PM   #10
    robste
    Veteran
     
    robste's Avatar
     
    Join Date: Apr 2001
    Posts: 432
    robste HB User
    Re: Scared to death of Hysterectomy

    Renee, I thought I read where you mentioned that with your hysterectomy, you're going to have your ovaries removed, am I correct? I had my follow up appointment with my dr.today (had a D&C last week), and after weighing my options (not many), have decided to have a hysterectomy, removing my uterus & cervix, but I am going to keep my ovaries. I am 44 yrs. old & don't want to go into early menopause or have to take estrogen or other hormones, so that's why I'll be keeping my ovaries. I am also very scared about the surgery, etc. My only other options were: To do nothing, just keep an eye on my fibroids until I hit menopause & they shrink, which could be 8 or 9 years away. Since I'm anemic, I don't want to live with the anemia for 8 or 9 more years...I figure that would be worse for my health. My dr. talked to me about Lupron, but it sounds horrible, and the fibroids could always grow back. Funny, all this simply because I have iron deficiency anemia because of heavy periods. Unfortunately, I cannot have a uterine ablation. So, I've decided that the hysterectomy is probably the way to go.

    My dr. has told me that I should be in the hospital for 2 days, then recovery should be about 3-4 weeks at home after that...that really doesn't sound too terrible. I just wonder how I'll do emotionally...I don't have any children, and this will of course finalize that possibility. I wasn't planning on having any kids (may adopt in a year or so though), but after this, there are no choices...kind of like the realization of it all. Hope I'm making sense here. Anyway, I've never had surgery before (except for tonsils removed when I was 10), so I am also apprehensive of it all. Maybe we can help each other here so we won't be so scared! -Robin

     
    Old 03-18-2004, 07:22 AM   #11
    Lucy P
    Newbie
     
    Lucy P's Avatar
     
    Join Date: Mar 2004
    Posts: 2
    Lucy P HB User
    Re: Scared to death of Hysterectomy

    Karla,
    Hi...wow...I was reading your post. Sounds like we have a few things in common. I had a complete ab hysterectomy on Jan. 21st, 2004, for irregular bleeding, and due to cysts on my ovaries, and a fibroid tumor. After I had my surgery, I was put on hormone replacement. I also have/had Endometreosis. When I asked my surgeon about the chances of the Endo. coming back on me, and should I be taking the estrogen(primarin)... (I am also using pro-gest cream), he didn't sound very concerned about it. I have also been told by other people and read about, that I shouldn't be taking the HRT due to possible return of Endo. He said it wasn't likely that it would come back, as long as I was also using the progestrone, but, he hadnt't put me on the progestrone until THIS initial visit, when I was questioning him about the chances of the Endo coming back from taking the estrogen. I didn't wanna contradict him so, I was hoping after my 6 week check up, (its past my 6 week now)with my surgeon, to make an apt. with my own family doc. to follow up with him and see what he thought of me being on the HRT. But then I have chosen to post-poned talking to my family doc. about the HRT due to me NOW having to be treated by him for what he diagnosed a week ago, as me having a bulging disk in my rt. lower lumbar thats pushing on a nerve, he says some to the left nerve, but more so to the right nerve. (he had me get the x-ray and MRI a couple weeks ago) He has scheduled me for an Epidural steroid injection for this Friday March 19th. I am praying this will help me with my back pain. maybe we can talk more about the HRT. I am really confused on what to do with it. Should I stay on it??? Against the surgeons better judgement??
    Hope to talk with ya soon...Lucy~

    Last edited by moderator2; 03-18-2004 at 08:52 AM. Reason: Please carefully read, know and follow the Healthboards.com Policies and Guidelines. Click on FAQ at the top left of this page. Thank you!

     
    Old 03-18-2004, 05:32 PM   #12
    Giggles68
    Junior Member
     
    Giggles68's Avatar
     
    Join Date: Jan 2004
    Location: WI
    Posts: 44
    Giggles68 HB User
    Re: Scared to death of Hysterectomy

    Robin,

    Yes I have to have my ovaries removed also due to my endometriosis. My ovaries are so covered that they couldn't be seen with the camera during the Laporoscopy. I am starting to be ok with the surgery but am just scared. I guess I am scared of the unknown. My Dr. is really great and I am sure she will do what needs to be done. When are you having your surgery done?
    I will be here for you if needed.

    Renee

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Having Hysterectomy and SCARED TO DEATH robin63 Hysterectomy 11 05-14-2009 05:24 PM
    Scared to death! When will i get an answer?? legs123051 Cancer: Cervical & Ovarian 20 04-11-2009 02:59 AM
    Cancer Polyp Scared Please Help milimoki Cancer: Cervical & Ovarian 3 07-04-2008 10:19 AM
    I have to have a hysterectomy. I am scared :( slimseeker Hysterectomy 35 10-25-2006 04:36 PM
    new and scared to death. curt1970 Obsessive Compulsive Disorder (OCD) 9 05-11-2006 08:17 PM
    Scared Hysterectomy tommorrow litlswthrtt23 Hysterectomy 4 06-17-2004 07:40 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 04:39 PM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!