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CVID-patients: did IVIG or SCIG help you with chronic fatigue?

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Old 10-12-2018, 04:47 AM   #1
Join Date: Oct 2018
Location: Netherlands
Posts: 1
Mika09 HB User
CVID-patients: did IVIG or SCIG help you with chronic fatigue?

I was recently diagnosed with CVID (IgG 4.15 g/l; IgA 0.22 g/l; IgM 0.40 g/l, with a poor vaccination response to pneumococcus (1 out of 9)).

My doctor offered me to start with life-long immunoglobulin therapy (IVIG or SCIG). Iím a bit hesitant wether or not to start, because the last few years I havenít had a lot of respiratory infections.

My main complaint is terrible chronic fatigue (>15 years) and post-exertional malaise. If there is any hope that Ig-therapy is going to help me overcome my chronic fatigue, then I would go for it. Otherwise I wonder if all the side effects will outweigh the benefits for me.

Anyone out here with CVID + fatigue who went on Ig-therapy? Did it improve or worsen your fatigue?

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cvid, fatigue, immune deficiency, ivig

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