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primary immune deficiency -ivig

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Old 12-11-2003, 10:31 PM   #1
Join Date: Dec 2003
Posts: 6
obmop HB User
primary immune deficiency -ivig

hello - i'm new to this board. I have recently started intravenous infusion of intragam for low IGA, IGM and IGG3. Apart from the usual respiratory infections i have: severe fatigue and body aches and pains - are these part of the disorder or caused by something else - any help would be appreciated

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Old 12-12-2003, 05:38 AM   #2
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Join Date: Sep 2003
Location: MI USA
Posts: 174
mamu710 HB User
Re: primary immune deficiency -ivig

Hi obmop,
I also have PID. I get ivig also. I am currently seeking out those same answeres. Have an appointment with a rheum. on the 19th. I am in alot of pain joint/muscle. I have been told that that could be from inflamation from the immune def. Right now that and fatigue are my worse symptoms. I haven't had too many infections. Haven't had a resp.inf Since July.Only some congestion & sinus drainage. It did take me 2 months to get rid of the cough I got in July.
How ofter are you getting ivig infusion? Or, have you had one yet?

Old 12-12-2003, 11:33 AM   #3
Join Date: Dec 2003
Posts: 6
obmop HB User
Re: primary immune deficiency -ivig

Thanks so much for replying - I have been searching the web, but all i come up with are the infections, and nothing on the pains and fatigue.
For years my infections were controlled on IMI immunoglobin injections but this year has been poor control and blood tests revealed a worsened condition so i started on IVI on 1/12 and will have the next on 5/01.

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