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  • ANA 1:1260 Is this significant?

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    Old 03-08-2005, 02:17 PM   #1
    morres
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    Question ANA 1:1260 Is this significant?

    I have been diagnosed and undiagnosed on and on with SLE, MCTD, etc.
    My last test was 1:1260 speckled and homogeneous. I go to a new rheumotologist on the 23rd so I want to go in informed. I wonder if fibromyalgia or endometriosis can affect ANA results.

    Symptoms:
    fevers
    butterfly rash
    joint stiffness swelling, and severe pain
    photosensitivity
    nose and mouth sores
    kidney infections (6> year)
    eye infections
    hepatitis (twice, non viral)
    hair loss
    numbness in my hands and legs
    cold hands and feet
    multiple pregnancy losses

    I was also just diagnosed with hyperthyroidism. I don't even want to think about that one yet! I see that specialist in 6 weeks.

    Also I should add I am in my mid 20's.

    So, what can any of you load me up with to go to the rheum with? What questions should I ask? What should I bring with me? I want treatment as soon as possible since this has taken over my life. I need a wheelchair for anything more than 1/3 of a block or so. I have 3 children to take care of and they need me to be mom again.

    BTW:
    Nice to meet you all. I just wish it was under different circumstances!

     
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    Old 03-10-2005, 05:32 AM   #2
    Lenin
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    Re: ANA 1:1260 Is this significant?

    mommy,
    I was REALLY up on this last year but forgot lots.
    YES, 1:1260 is a breathtakingly high ANA, did your report show what PATTERN (term like speckled, homogeneous??)
    I got 1:320, homogenous pattern, and had the butterfly rash and many joint pains I went beserk when I saw my super high ANA. I demanded and got about 5 SPECIFIC tests...with names like single stranded DNA, Lupus cell, several others like Anti-DNA, Anti-Smith antibodies...no Aunty Em though.

    While you look up your "pattern", I'll see what I can dig from my old data...and refresh my memory.

    I came out negative witht the specific tests and in a couple months even the ANA returned to normal (dodged a bullet! ) and I FINALLY got mostly rid of the rash.
    I was frightened because the thought of SLE and all it's ramifications scared me witless.

    I hope you do as well.

    Remember the ANA is good for SCREENING purposes; it is not well suited for diagnosis. Your symptoms point to SLE and THAT'S what you want the rheumatologist to rule out...and TELL him so.
    As you know, Lupus is diagnosed by getting a score of a certain number of symptoms that can all be common to many conditions but with the advances in the blood tests, they are the singularly best evidence for the disease or its absence.
    The guessing is HORRIBLE as you know.

    Did your doctor rule out Rheumatoid Arthritis?

    Last edited by Lenin; 03-10-2005 at 06:35 AM.

     
    Old 03-10-2005, 04:46 PM   #3
    Kathie T.
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    Re: ANA 1:1260 Is this significant?

    I'd check out the Lupus boards. Sounds very strange and awfully high indeed.

     
    Old 03-10-2005, 07:30 PM   #4
    morres
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    Re: ANA 1:1260 Is this significant?

    Lenin,
    The ANA results were speckled <i>and</i> homogeneous. I forgot to add that the ANA started out 1:80 about 6 years ago and held steady at 1:160 for a few years. Once in awhile I'd get a 1:320 but the 1:1260 came out of no where. They have done the other lab work and it comes clean. They have not ruled out RA to my knowledge. My mother has RA so I have mentioned it.

    Kathie T- I think I will meander over there.

     
    Old 03-10-2005, 09:18 PM   #5
    MilkNWheat
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    Re: ANA 1:1260 Is this significant?

    Alot of your symptoms run with SLE (Lupus), RA (Rheumatoid Arthritis), SS (Sjögren's syndrome)...

    I would also look into: Goodpasture's syndrome ,Wegener's granulomatosis, Raynaud’s phenomenon.

    Try asking your doctor about those and see what he/she says... An ANA test is just the beging... it just say's that you need to look into other things and run other tests. With Lupus from what I understand it maskes it's self as many other things such as the SS and RA. Lupus tests need to be ran a few times and over a period of a few years in order to say "you have or don't have lupus" since it's so much like other things out there...

    A few years ago I had a "racoon mask" on my face. My doctor sent me for tests thinking it could be lupus... truned out it was adult acne. Now I have dry eyes so bad my cornea's dried up, my mouth is so dry I have to drink fluids to push food down. My joints have pain and my hands/feet get so cold they turn white and get numb. We did a million blood test and now I've been told I have Sjögren's syndrome.

    I hope this helps you!! Good Luck to you!

    Last edited by MilkNWheat; 03-10-2005 at 09:23 PM.

     
    Old 03-11-2005, 08:43 AM   #6
    DebbieT
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    Re: ANA 1:1260 Is this significant?

    Hi. My father has wegener's granulomatosis and a lot of the symptoms you describe are an effect of this disease so I should have it checked out. Good luck.

     
    Old 03-13-2005, 06:09 AM   #7
    Lenin
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    Re: ANA 1:1260 Is this significant?

    mommy,

    Speckled and Homogeneous pattern BOTH point to SLE, with speckled also prevalent with Sjögren's.

    If all the right tests were done to rule out SLE And Sjogren's you can breathe easier. Sometimes a hiddlen infection anywhere in the body can cause the ANA to soar.

    If you have results in your hand, why not type out the tests that were done...about 5 of them (with LOT'S of acronyms) indicate the BEST testing? If you don't have them, have your doctor mail them to you!

    You really MUST make sure that all the right antibody tests were done.

    Last edited by Lenin; 03-13-2005 at 06:12 AM.

     
    Old 03-31-2005, 01:34 PM   #8
    morres
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    Re: ANA 1:1260 Is this significant?

    I went to the new rhuemie last week and this is my first chance at a reply. He looked over all of my labs for the past 2 years and raised his eye brows for the ANA. He had me go for x-rays of my hands and feet to rule out RA and ordered 2 more tests for the lab. I am to go back in 3 weeks to follow up.

    He said lupus no fewer than 6 times. The only 2 diseases he was verbally considering while talking to me were RA and lupus. He gave me a book on managing pain naturally and a mini book on Lupus. I have a feeling where he is leaning. Good thing I've learned better than to put all my eggs in one basket (ie: ANA). I am going to be patient with this doctor and allow him to do whatever tests for however long so I know for sure without a doubt what I have and don't have. However, I think I know the answer already and I think in the back of my mind I want something nicer than lupus or any other autoimmune issues (HA!).

    One of the issues I forgot to post here, that I had the history on paper to give him was my heart. I have had to go to the ER 3 times for chest pains and it ended up being swelling of the heart sac. Starts with a p, he has the paper now.

    Oh, and since his office was so mind blowing cold...he was able to diagnose Rynaud's (spelling?). I don't know how bad it is or can be by medical standards, but my was to my mid knuckle. My fingers and toes were so very discolored (and my feet were in socks and shoes until the exam, but they were also discolored and numb).

     
    Old 10-24-2005, 12:03 PM   #9
    karen3
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    Re: ANA 1:1260 Is this significant?

    I know this thread started a while ago but I wanted to add to it. My son's ANA is 1:5120. He was diagnosed with Raynaud's caused by Mixed Connective Tissue Disease. He has been asymptomatic for about a year and has chosen to now take his medications right now and seems to be doing well. One of you mentioned that your ANA went back to normal. My son's rheumatologist said that the ANA never goes back to normal once it's elevated so they don't even check it anymore. Anyone else have their ANA return to normal?

     
    Old 11-02-2005, 09:54 PM   #10
    Murphy
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    Cool Re: ANA 1:1260 Is this significant?

    This is just a little input to hopefully clarify some anxiety abt the ANA. Get a
    copy of your blood work. They usually have a `Range' column towards the
    left. Anyway, I'm retired from working for Dr's & use to review labs for them.
    An ANA is usually reported Normal at 1:16 & seldom reported if it's lower.
    However, if it has a `titer' (pattern) then it is reported just for info. Speckled-
    Homogenous is the titer. A 1:12 is a good thing. The combined titer above is
    in SCL, MCTD, & many autoimmune disorders. ANA can be 1:80+ on a
    inflammatory day & normal when feeling better. It's the titer the Dr. works
    with. Autoimmune problems are very hard to dx but Mommy's post seems to
    be SCL/MCTD `OR' that + complications of thyroid. Perhaps have a SCAN of
    thyroid since many have hair loss etc. Fibromyalgia has trigger points of
    abt 11. Doc can sltly touch & U have a shot of pain. Endo. is a hormone &
    if thyroid is off, U have alot of overlap conditions. Good attitude helps.
    Water workout & massage helps. Generally steroids are needed off/on but
    a great doc is what U need, so get one that listens to your concerns.
    Some states have lowered their normal range to 1:12 but only a few.

     
    Old 11-09-2005, 01:19 PM   #11
    karen3
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    Re: ANA 1:1260 Is this significant?

    One of you mentioned that your ANA returned to normal. My son's is 1:5120. Any chance of that returning to normal?

     
    Old 01-21-2007, 08:53 AM   #12
    mommygiraffe
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    Re: ANA 1:1260 Is this significant?

    Hi, I'm new on this board, and I wanted to add that we're in the same boat. My Ana is 1:1280, and my anti RMP is positive so the Rheumy at the Uof Pa told me it is MCTD, after a year of a lupus dx by my current rheumy, who sent me for a second opinion. I also have fibro and diabetes. I've had autoimmune stuff going on for nine years now. I had a miscarriage in 90, and severe depression for years before that, plus Behcet's, another autoimmune since I was fourteen, but that went into remission for years, I had a flare, and it went back into remission. Mctd is scaring me, actually, more than the lupus, since what the articles say can go wrong, like high bp, actually have gone wrong with me, where as I have no kidney or other lung involvement. I take norvasc for the bp and heart rate, so that is better. Its just scary. I have a nine yo son with Asperger's/HFA, and a fourteen year old daughter and a supportive husband.

     
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