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help me please. going to mayoclinic soon. im a medical nightmare :(

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Old 01-31-2010, 04:48 PM   #1
Join Date: Jan 2010
Location: Florida
Posts: 4
lookshayna HB User
Question help me please. going to mayoclinic soon. im a medical nightmare :(

hello all, im shayna,
my friend who has lupus seems to think i might have something similar, please tell me what you think. Tell me anything it sounds like, even if it isnt autoimmune. Im so confused. Ive had an MRI, spinal tap, Blood work, CT, Ekg EEG, you name it. blood work shows deficieny vitamin b12, too much a. Spinal tap showed high intracranial pressure
Im 18 years old. I have been going through health problems since i was a little child. First time i fainted was when i was 15
my neurologist says its psuedotumor cerebri, but did no further testing and i think it is wrong. The medicine he gave me gives me terrible reactions
My Symptoms:
1.) Fatigue- extreme. I go to sleep very early, I wake up early but lay for a long time
2.) Headaches like you wouldnt believe, expecially under my eyes
3.) "grey out" - vision loss. Expecially upon standing. When this happens I get very dizzy. I have passed out three times and once i had a seizure. I never remember what happens but scared people tell me about it. I also grey out on roller coasters but havent passed out on them luckily
4.) Numb locked hands when i fold my arms
5.) Numb feet when crossed
6.) Purple toes
7.) Lump on back of neck, top of spine. Chiro says its just my neck thats in bad shape (backwards) he says, i forget the name but with all of my symptoms a lump scares me.
8.) Vomited blood about a month ago, doctor took xray and says constipation? Ever since then i feel sick and gasy after food
9.) I got in a car accident a year ago and got a numb leg that was supposed to heal but didnt
10.) B12 deficiency/ To much Vitamin A. I have no idea why
11.) pressure in face under eye. Its always there and really bothers me. I dont know what it is
12.) spinal tap showed high intracranial pressure
Im a walking medical nightmare,

help? thanks (:

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