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CVID and extreme fatique/malaise

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Old 04-10-2011, 12:49 PM   #1
Join Date: Apr 2011
Location: Fayetteville, Arkansas
Posts: 4
cheekypin HB User
CVID and extreme fatique/malaise

I was diagnosed with CVID with low b and t lymphocytes and other issues and have had serious degenerative bone disease I now know may be related to the primary immune problems. I was diagnosed by serendipity as I went in for fatique after having a total hip replacement and was sent to an infectious disease specialist. He found that I had Q-fever. He checked my immunoglobulin status and found low IG 2 and later low t and b lymphocytes. Since last June I have had a series of rare infections one after the other and have been very ill. The biggest issue for me has been severe unrelenting fatique with sweats and weakness. I am on Hizentra 10 g a week. Also diagnosd with Hereditary angioedema type 3. I am going to the Mayo to have things sorted out but have others with primary immune disorders had severe fatique that is debilitating? Recently developed anemia, daily sweats, sleeping for hours on end without feeling restored. I would love to hear from others who have had a rather sudden onset of the disorder though I have had long standing chronic pain, degenerative bone and joint disorders, thyroiditis etc. but it took 60 years to diagnosis this. Help!! Cheekypin

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