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CVID related issues

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Old 03-23-2012, 11:45 AM   #1
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Join Date: Mar 2012
Location: Woodland Hills, Calif.
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NellieNunu HB User
CVID related issues

I have CVID and RA. I'm curious if any of you have this problem:

This is so annoying. I get these sores/lesions in my nostrils frequently and they take +/- a month to heal. They are painful and as soon as one heals, another develops.

Whenever I complain or ask about this, my rheumy is non-committal and basically dismisses such complaints. In my research this symptom is associated with lupus. My rheumy is always testing for lupus in my labs and intermittently I have mild positive ANA and positive anti- DNA. I always have very low WBCs, sometimes critically low, low neutrophils, low RBCs, HGB, HCT, etc. He says I don't have lupus and that the definitive complement levels are what he's keeping his eyes on.

I just want to know if any of you get these awful sores and what you're being told about them.


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Old 05-25-2013, 03:11 PM   #2
Join Date: Apr 2013
Location: Pittsburgh Pennsylvania United States
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Re: CVID related issues

My mother had CVID and sarcoid lupus. She would get sores in nose.
Have they been biopsied to see if this might be a MRSA infection. She also was making antibodies to sojgrens disease.

Last edited by Administrator; 05-26-2013 at 12:33 AM.

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