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  • Baby Not diagnosed with Hypothyroidism for until 3 months old. Concern?

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    Old 10-20-2020, 12:38 PM   #1
    Macollegeguy's Avatar
    Join Date: Oct 2020
    Location: Worcester, Massachusetts, USA
    Posts: 1
    Macollegeguy HB User
    Baby Not diagnosed with Hypothyroidism for until 3 months old. Concern?

    To make a long story short.

    Daughter was born 2 months early and spent 3 months of her life in the NICU, first presenting with respiratory distress.

    Initially she was fed via tube until she matured appropriately to start to bottle feed. Things quickly went downhill from there. She had no appetite, wouldn't wake up to feed, slept the majority of the day, had very pail skin, was constipated and generally you could tell she was miserable. The NICU doctors solution was to wait and see. The feeding/appetite didn't get better (she was physically able to take a bottle just rarely had a desire to do so). They eventually decided to surgically insert a G-tube and send her home.

    The kicker is, the discharge infant blood work required by the state showed that she has hypothyroidism (it appears only manifested in high TSH levels). They started her on levothyroxine and she has slowly been improving in her symptoms.

    My questions are:
    Should I be concerned about future intellectual developmental issues?

    Should the doctors have caught this earlier since she had quite few of the listed symptoms of hypothyroidism?

    Is there anything else I should be concerned with at this point? We are supposedly going to the best hospitals in the country but I'm not getting a warm fuzzy feeling with how this situation has progressed so far.

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