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  • Uk mav specialists?

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    Old 11-11-2016, 06:21 AM   #1
    Join Date: Nov 2016
    Location: BATH
    Posts: 1
    mscenic HB User
    Uk mav specialists?

    Hello. Could anyone recommend how to find a UK specialist for MAV?
    Many thanks

    Last edited by mod85; 11-11-2016 at 07:46 PM.

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    Old 12-08-2016, 04:49 AM   #2
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    Join Date: Jun 2015
    Location: Hampshire
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    imbalanceman HB User
    Re: Uk mav specialists?

    Yes this lady is brilliant.
    Dr Chung Chan
    University College London Hospitals
    Direct line - 02034565216

    You may need a referral from your GP if your out of area your case will be looked at to see if you qualify for funding or you can go private but I know how expensive that can be.

    If you have MAV have they tried you on propranolol yet. Normally you have to build up to 160mg per day, it can make you quite sleepy but can be very good to ease symptoms.

    Good luck. Im nearly at year 3 its been a battle every step of the way so far with GPs , specialists , meds , people that don't listen , don't understand , paying private but ever since seeing these guys at London the weight lifted to find someone that knows whats happening to you and actually understands.

    Hope this has been of some help.

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