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  • Bilateral Vestibular Loss

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    Old 11-15-2016, 02:01 PM   #1
    WellImbalanced
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    Bilateral Vestibular Loss

    Hello everyone,

    I have what amounts to total bilateral vestibular loss as diagnosed recently (today; but have had diagnostically progressive loss for years) by Rotary Chair, Calorics, EMPs, etc. Clean MRIs etc. etc. I will not belabor the challenges this or related conditions pose here, as many of us already know or have loved ones that we have watched battle through.

    What I would love to find is anyone who knows what I can expect as I begin VRT (again). Specifically, does the oscillopsia ever go away? Does the fatigue ever lessen? Just what the H can I expect moving forward? I am 34 and feel like all the wind has been taken out of my sails.

    Hoping to hear from anyone! Thanks all.

     
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    Old 11-17-2016, 02:03 AM   #2
    upright
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    Re: Bilateral Vestibular Loss

    Hey,
    So sorry to hear this news for you. I am new to this board but just wanted to say I hope others respond soon.

    I too have gone bilateral just recently found out.I am not total so I assume mine is not as severe as yours is.

    The one thing you might have in your favor is that your brain is still quite plastic as you are so young and you probably have more chances to adapt.I am going to be 65 in a few weeks and my chances are diminished my doc told me as the brain produces less of the chemicals such as dopamine as we age.

    Small consolation I know, it really sucks that you are so young and this has happened to you.

    I wish you the best!

     
    Old 11-17-2016, 03:21 PM   #3
    WellImbalanced
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    Re: Bilateral Vestibular Loss

    Thx up! I hope so - oscillopisa for like 4.5 months straight. Taking a toll, but persevering.

     
    Old 11-29-2016, 09:57 AM   #4
    uga
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    Re: Bilateral Vestibular Loss

    It will get better and life is not over. i have posted on several threads my experience and please feel free to reach out to me if needed.

     
    Old 12-01-2016, 09:41 PM   #5
    WellImbalanced
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    Re: Bilateral Vestibular Loss

    Thx uga. I recently found an old article by a physician named John Crawford that was sort of inspirational. It is called "LIVING WITHOUT A BALANCING MECHANISM". Apparently he was given a strong course of antibiotics leading to vestibular failure in the 50s. An interesting and quick read (that you can google) if you're interested.

    I am still hoping that the oscillopsia will fade and spare my career :/. Hope you are well and I appreciate your thoughts and input.

     
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    inner ear, oscillopsia, vertigo, vestibular neuritis, vestibular rehabilitation



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