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Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!


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Old 07-05-2017, 12:48 PM   #1
Scentless
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Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!

Hi all,

This is my first post here but I have been lurking here for months since the onset of my dizziness in January. The threads about these horrid disorders have been invaluable in making me appreciate that there are others going through similar things.

I have been diagnosed with VN by an neuro-otologist. In many ways, my experience has been textbook. Sudden onset of rotational vertigo which lasted for a week or so and then subsided to leave a general (difficult to describe) feeling of unsteadiness, very off balance when turning head, uncomfortable in busy or crowded environments etc etc.

However, the most debilitating and scary symptom that I am left with is what I can only describe as brain fog which is with me constantly.

I understand that this can be a relatively common symptom as the brain compensates through VRT, however, the extent that this affects my life is huge. I have had to quit my job due to it. I feel like my brain is completely broken. The simplest of tasks are completely daunting and overwhelming. I literally feel like my brain cannot cope. I can't have follow conversations or storylines in TV shows. This has made me avoid socialising almost completely. This is coupled with a very disconcerting feeling of derealisation/ being disconnected from my surroundings. Because of these symptoms, I am very anxious and low and am taking an antidepressant.

I would love to hear from people who are experiencing similar symptoms, I have been assured that this will improve over time as the brain continues to compensate. However, I am struggling to believe this as these symptoms are so intense and it feels like my brain has actually changed somehow.

Wishing you all well. Xxx

 
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Old 07-15-2017, 09:12 AM   #2
Cjc2929
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Re: Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!

Hi. Your post sums up my symptoms exactly. Had vertigo about two years ago. Saw specialist six months ago with all tests etc. diagnosed with vest neuritis. Was told symptoms will eventually get better...only gotten worse. The brain fog symptoms is killing me. Occurs every day, may get a few days where it's not too bad. Followed by very bad days. Used to be athletic, working out, ice hockey. Can no longer do any of those activities. Vest PT does nothing. Dread thinking this is permanent damage and will be with me rest of my life (only mid 40's).

 
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Old 09-11-2017, 02:04 PM   #3
Molly2001
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Re: Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!

Hi, I was diagnosed with VM/MAV in the summer of this year, after having viral labyrinthitis and having experienced brain fog, severe vertigo attacks, chronic ear pain and the constant feeling of a hangover (I have never experienced one as I am only 16 but I am guessing what It would feel like) as I am only 16 I feel very limited in everyway so when I found your post I felt instantly better that I wasnt the only one. I was just wondering if you wouldn't mind telling me your age? As I am thinking I may be on the younger end of the scale. I was just wondering if anyone had gone on holiday (on a flight) and if so how did you feel taking off and with ear pressure etc. I am going on holiday in october but don't want to miss an opportunity due to my inner ear issue. If anyone has experienced flying with this disorder or has any advice on how to feel better I would be very grateful. And to anyone out there with a similar situation you are not alone!! Xx

 
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Old 10-24-2017, 11:07 AM   #4
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Re: Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!

You have my sympathy. I am going through something similar.
Experienced labyrinthitis for the first time in 2005...have mainly been ok with the odd flare up. But today, I am off work after labyrinthitis came back 3 days ago, triggered by a head cold I think.
People just don't understand the effort it takes to do the simplest thing. I walked to the shops today and felt so terrible. Noisy cars and people everywhere, making me feel unsteady .
And I just don't feel like I'm really here..everything is such an effort, that it's so nice to shut my eyes and lie down .
I've started ginkgo biloba , hoping this will help .
🌺🌸🌹🌷

 
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Old 01-27-2018, 04:44 PM   #5
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Re: Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!

My boyfriend hasnít been diagnosed with MAV, yet. Only Vertigo with an unknown cause. He had an EKG, bloodwork and a CT to rule out the scary things and all came back ok. He is experiencing a lot of the same symptoms Iím seeing mentioned in these threads. He was prescribed meclizine and it has had no affect on the dizziness/unsteadiness. He also has constant and worsening head pressure, mainly behind the eyes. Whatever is going on has him afraid to drive and he has missed a lot of work in the last few weeks. Itís been sort of a gradual onset, but got really bad the last three weeks, which put us in the ER because he was so afraid of how he was feeling.
He has an appointment with a neurologist next week.
Any ideas advice would be appreciated.
Thank you!

 
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Old 03-08-2018, 09:43 AM   #6
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Re: Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!

These all sounds like MAV/VM ... but caution on this, the underlying aetiology has not been determined.

Brain fog is a classic symptom of MAV.

I don't think chronic VN is a safe diagnosis - you don't get chronic viral infections... makes no sense.

I'm 3 years into MAV almost and started to feel a bit better 6 months ago ... it's a long road unfortunately.

Focus on finding treatments that make you feel better and with which you get your life back,

All the best people, hang in there!

 
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Old 04-03-2018, 08:25 PM   #7
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Re: Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!

Hi, Inittowin. Is tinnitus a symptom of MAV? Is MAV connected to VN?

I was diagnosed with VN nine months after my initial onset of extreme vertigo/nystagmus/vomiting, but am still trying to figure it out. The recent specialist thinks I had VN, but can't explain the continuing symptoms. He dismissed the "brain fog" and tinnitus, and said Paxil might help with disequilibrium. (I'm sure he thinks it's anxiety, but I'm already being treated for anxiety/depression. While my issues may exarcebate symptoms, I doubt they created them.)

I've since read that tinnitus is more often associated with labyrinthitis than with VN. Who knows. A nurse practitioner mentioned the possibility of MAV, but I've no way to know for sure.

 
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Old 04-10-2018, 03:25 AM   #8
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Re: Vestibular Neuritis 6months BRAIN FOG UNREAL FEELING!

Sorry for slow reply.

Tinnitus is definitely part of MAV.

The one thing to always remember ... we don't know the aetiology of MAV for sure ... some doctors will try to convince you it is a migraine complaint ... I have my doubts!! Sure you get migraines, but that's ultimately NOT the root cause.

 
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