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  • Perilymph Fistula? Menieres? MAV? Stress/Anxiety?

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    Old 06-05-2018, 12:12 PM   #1
    popps
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    Perilymph Fistula? Menieres? MAV? Stress/Anxiety?

    Greetings all,

    I'm pre-doctor consult on this (though I have some medical connections in my life who have weighed in.)

    I'm trying to sort out some fairly strong symptoms I've had for about 6 weeks and hoped you all could imput.

    Quickly, here's what I have:

    -Off-balance feelings - wobbly at times when walking (But not to point of falling etc)
    -Some dizziness
    -Ear ringing (this is not new, had some level of this for years and honestly not a primary concern or issue)
    -A few medium/mild headaches (I can also get these from time to time then they go)
    -Feel some weakness in legs
    -Head feels a little "full" or swollen senesation
    -Eyes feel kind of heavy and slow
    -Anxiety is ramped up - I've mostly overcome a stress/anxiety disorder but these symptoms have fueled the condition back into making an appearance.
    -Some brain fog, blurry vision at times - then other times it's fine.
    -At times, maybe a litlte light sensitivity - other times fine
    *Primarily the biggest thing is the boaty head, balance thing. Can be worse when looking down at a screen for example, or if I look up for a while, then look down. (positional)

    Here's what I DON'T have:

    -No true Vertigo
    -Never felt any "pop," leakage or any real ear sensations.
    -No contact injury
    -No real issues in either ear aside from the ringing which is a bit more pronounced but has been there.
    -No speech issues
    -Memory is pretty much fine
    -No odditiees like being able to hear my eyes move, no noises in ears
    -No pain in either ear
    -No fullness feelings in ears (or very little... more a full head feeling at times)
    -No apparent sensitivity to pressure etc (Or perhaps very light sensitivity)
    -No head pain, outside of maybe 3-4 days of headache in about 40 days

    How did this come on?

    During a busy time I was working out pretty heavy and did an inclined pull-up (on my back on a machine) and stood up and felt kind of dizzy, like I had kind of overdid it. Felt a little foggy/dizzy that night and it carried over into next day.... then continued on for over a month with varying degrees. I've had some dizziness in the past with anxiety/stress disorder so I didn't think much of it. So, looking back it SEEMS like it started that night, that moment. This was the only reason I stumbled upon this idea of Fistula.

    Other details:


    -The balance and everything else seems a bit better at night. (Though my anxiety behaves this way too.)
    -When engaged in activities I can forget about most of it, but it's there.
    -Balance is off, but I can do basic things. Yesterday I was even hitting some tennis balls (gently) to my daughter back and forth on the court.
    -I'm able to get to work and function
    -Some days it's just a minor annoyance, some days really hard. (Usually feels related to how my mind is responding to it.)
    -I've felt the need to try to rest a lot, sleep can sometimes be deep and symtpoms a little stronger right out of sleep, then slowly ease up as I move around.

    Had I not felt this come on during a lift, I think I'd chalk this up to another episode of what stress/anxiety can do. (I've certainly had symptoms like this in various mixes before - but not so long and consistent.) But, because of how it seemed to relate to that straining, I thought it was worth getting some opinions/input.

    I'm not convinced this IS fistula or even anything phsyical for sure. But, my hope is that some of you with experience can recognize some things and comment.

    Thanks in advance!

     
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    Old 06-05-2018, 01:07 PM   #2
    MSNik
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    Re: Perilymph Fistula? Menieres? MAV? Stress/Anxiety?

    This sounds neurological in nature. I have multiple sclerosis and have every symptom you mention. Not that I think you have MS; but allot of things mimic MS.

    You should really consider seeing a neurologist. Only a neuro can send you for the right tests and rule out that this is something in your brain.

    Unfortunately, no one here is a doctor, we cannot dx you...all we can do is give suggestions. I am not sure why you think fistula, but it is a possibility, so are about 200 other things. Please see the doctor you have the appt with and ask about seeing a neuro if you don't get an answer there.

    Good luck! Come back and let us know what you find out.
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    Old 06-05-2018, 02:10 PM   #3
    popps
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    Re: Perilymph Fistula? Menieres? MAV? Stress/Anxiety?

    Hi MSNik, thanks for the response...

    Quote:
    Originally Posted by MSNik View Post
    This sounds neurological in nature. .
    I agree honestly. I don't suspect MS as you said, but stress/anxiety disorder can reproduce a lot of MS symtpoms. (CNS) I agree with your assessment.

    Quote:
    Originally Posted by MSNik View Post
    You should really consider seeing a neurologist. Only a neuro can send you for the right tests and rule out that this is something in your brain.
    I will do this, possilby an ENT as well. I've given it 6 weeks to clear off which stress symptoms usually do by then. (Not always) So at this point I can gather more information.

    Quote:
    Originally Posted by MSNik View Post
    I am not sure why you think fistula, but it is a possibility, so are about 200 other things..
    Agree.

    Honestly, the part I'm having a hard time getting past is that I seemed to "do this" to myself with the lifting/straining. Had this come on out of the blue, ironically I think I'd be less concerned and chalk it up to stress.

    Becuase it seemed to be event-based, and they say it's possilbe for fistula through strain or lifting... even through rare, it was the only thing I could come up with that seemed to match symtpoms. (And even then only partially matches.)

    I will indeed seek medical advice.

    However, appreciate your input and look forward to any other input people may have. It never hurts to be armed with knowledge when approaching these situations.

     
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    Old 06-06-2018, 04:38 AM   #4
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    Re: Perilymph Fistula? Menieres? MAV? Stress/Anxiety?

    Hi there. I am glad you took my suggestions in the spirit they were meant.

    The situation which you feel started this, could just as easily be neurological as it could be a fistula. I never had a single symptom until I was in a crazy situation...someone let a metal door bang into my head, hard enough to make me see stars and fall to the ground. I was taken to the hospital to make sure that I didn't have a concussion, the CT scan showed something wonky, a neuro was called in to evaluate and a MRI showed MS...didnt know I had it and was told with the amount of damage on my brain, Id had it for MANY years! That was 15 years ago...since then, every symptom which is associated with MS I seem to get.

    Sometimes it takes a situation to bring a disease to light...you may have ignored the symptoms for so long they became a way of life for you until you did something at the gym which caused you to really sit up and take notice.

    You do need an ENT and/ or a Neuro...general physicians are not equipped to know what tests to order, or how to read them. Do yourself a favor and go to the specialist...at least you can start ruling things out and getting "true" medical advice...no matter how many people you ask- even if they have a medical background- there is no one who can tell you what is going on until you are checked out properly and probably have some tests.

    I hope you are okay!
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    dizziness, mav migraine associated vertigo nortriptyline, menieres, migraine headache dizziness vertigo, perilymph fistula



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