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  • ENT visit, what a joke, joke, joke....

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    Old 11-26-2003, 10:56 AM   #1
    jtiegs
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    ENT visit, what a joke, joke, joke....

    I just got back from my ENT visit. I am done....what a waste of time.

    She is still convinced I have Meniere's Disease even though the Neuro-otologist disagrees. She said because my ECoG was abnormal it indicates a pressure difference due to fluid, and that indicates Meniere's. I tried to argue with her, but it was a waste. She said I should take the Klonopin twice a day, everyday. I asked about whether taking medication contributes to the slowing down of the compensation process and she sort of poo-pooed me. Said I needed to have the drugs in my blood stream for a period of time so that when I see the neuro-otologist on Dec 8th he can assess how it's working. That it's a drug that should be taken on a regular basis. Sorry, I don't want to take a narcotic on a daily basis! What the heck?
    Then I asked about MAV, she didn't have much to offer on that, didn't know anything as far as I can tell.

    Then as a side note, she asked me about my day (do I work, stay home?). I told her I home school (and that so far it's going well) and she took that as an opportunity to criticize that plan and suggested I put my kids in public school! Said they could miss out on important social skills and miss out on the things I am deficient in. As if I hadn't thought of that stuff (and made other accomodations to compensate for those issues)! Ugh, the nerve. I felt immediately on the defensive, discussing something that has NOTHING to do with my ears. I am running at about 45% today, so my dander is already up.

    What happened? What a waste of time. I feel I have fallen victim to doctor ego. She didn't like the idea that the neuro disagreed, so she held fast, and then decided to attack something else in my life to distract from her misdiagnosis. How's that for an analysis?

    I know some of you have vented here about disappointing doctor's visits, add mine to the list. Hopefully my follow up in Denver with the neuro-otologist will be more productive.

    Julianne

     
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    Old 11-26-2003, 11:54 AM   #2
    willsmom
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    Re: ENT visit, what a joke, joke, joke....

    Hi Julianne,
    Boy - how irritating - I know what you feel like. ENT's (some any way!!) think that they are the be all and end all in diagnosis and dont like to be contradicted!! as you just find out.

    I too like you would have been really put out by her comments on your home tutoring idea. Heck its you rlife and not yours - hey but don't tell me she is soooo experienced in that department too!!.....lol

    To be honest as I have found out to you put all you rfaith in these people after all they are the experts BUT when it comes to questions that involve balance it is deffinately a highlt speciliased area. You keep your chin up and keep that follow up appiontment with the neuroto in a couple weeks and hopefully you can get some better imformation for them. Its like any thing else in this life these results are very much down to interpretation and experience. I would be tempted to take the meds until you see them (in case they end up saying ok you gotta go give them a go) and take it from there.

    I know that whenever our feathers are ruffled these darn symptoms feel worse!! so forget that woman - try to put that aside and focus on you again.

    Lets hope that tommorrow will be better - this whole thing is a big ole pain - but despite it all you seem very positive. Good On You!!

    Ilia xx

     
    Old 11-26-2003, 12:00 PM   #3
    Ruth77
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    Re: ENT visit, what a joke, joke, joke....

    I echo what Ilia said. A lot of doctors are ignorant even when something is supposed to be their specialism!
    Sorry you had a bad experience - unfortunately this seems to be quite common!

     
    Old 11-26-2003, 12:13 PM   #4
    dizzyinmissouri
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    Re: ENT visit, what a joke, joke, joke....

    Hi, Julianne!
    So sorry to hear about the doctor appointment. The part about homeschooling. GRRRR! That gets my dander up! Anyway, my ENT visit wasn't as bad as yours. He did have some good advice, but the last visit after doing the Epley on me again, told me that I was compensated and just needed to relax!!!! Anyway, needless to say I haven't been back. I hope your visit to Denver will be helpful! Sorry you are only 45%. I have been praying that you can have a nice Thanksgiving. Have you got special plans? Kind of hard to think about the holidays knowing that we aren't going to feel the best!
    Anyway, keep your chin up. I don't think most ENTs would be helpful. Just not knowledgeable enough. Who is actually, when it comes to our deal? Million dollar question! (Only God!, of course! Thankfully He is in control!) I read some really good stuff today and I will share it with you pretty soon!
    Take care!
    Vicki

     
    Old 11-26-2003, 01:54 PM   #5
    scant5
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    Re: ENT visit, what a joke, joke, joke....

    Heres to all the quacks, jerks, unsypathetic, useless, heartless so called specialists some of us have encountered.

    ahhh...an immature comment but I feel better. I think I need some double chocolate Ghiradelli chocolate chips.

    all the best,
    Kathy

     
    Old 11-26-2003, 02:59 PM   #6
    realbelle
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    Re: ENT visit, what a joke, joke, joke....

    Hi Julianne, i do feel for you with such a jerk for a so called specialist...I agree with Ilia--chalk it up as one more to the list. As for the home schooling--have been there--my answer was--church makes up for the social life as well as friends--the rest of what they learn in pulbic school--i do NOT want them knowing---such as how to judge people by what they wear, how to cuss and swear, how to cheat, how to be cruel just to look cool,the list grew as they got older...You get the point...And I would always add, that any day I would let my children take any test up against a child from any public or private school!!!! My son in 7th grade, ranked second year in college---he far surpassed the public or private school students. Sorry to be so long, I will hush now. Prayers for you ....Belle

     
    Old 11-26-2003, 05:13 PM   #7
    jtiegs
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    Re: ENT visit, what a joke, joke, joke....

    Quote:
    Originally Posted by scant5
    Heres to all the quacks, jerks, unsypathetic, useless, heartless so called specialists some of us have encountered.

    ahhh...an immature comment but I feel better. I think I need some double chocolate Ghiradelli chocolate chips.

    all the best,
    Kathy
    AH Kathy! Double chocolate ghiradelli chips are the BEST! I swear by them only! My kids eat them in a bowl for desert sometimes! Good to know YOU understand!

    Everyone, Yes, thanks for the comments, I am so annoyed the more I think about it. How dare she challenge my home schooling abilities, and where makes her think that's got anything to do with ANYTHING here! Well, if she would have said, "I am concerned that maybe you are putting too much on yourself, have you thought about entering the kids in school?" I could have disagreed, but felt she had my interest in mind with her comment. Ah, if I could only go back and say the things right! She sort of threw me off, and I wasn't myself to begin with, I was off guard with the buzzy head, and I just sort of felt like a little kid babbling about my curriculum and not winging it...without any serious counter attacks. How lame thing thing was! Ugh.

    Ok, gotta do a few things, thanks ya'll.
    Julianne

     
    Old 11-26-2003, 05:17 PM   #8
    jtiegs
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    Re: ENT visit, what a joke, joke, joke....

    Quote:
    Originally Posted by realbelle
    Hi Julianne, i do feel for you with such a jerk for a so called specialist...I agree with Ilia--chalk it up as one more to the list. As for the home schooling--have been there--my answer was--church makes up for the social life as well as friends--the rest of what they learn in pulbic school--i do NOT want them knowing---such as how to judge people by what they wear, how to cuss and swear, how to cheat, how to be cruel just to look cool,the list grew as they got older...You get the point...And I would always add, that any day I would let my children take any test up against a child from any public or private school!!!! My son in 7th grade, ranked second year in college---he far surpassed the public or private school students. Sorry to be so long, I will hush now. Prayers for you ....Belle
    Belle, you're great! I needed you in my head today to reply, as I just said in my post right before this, I babbled like an idiot, totally off guard, only confirming her suspicions that I am inept! I thought of those things after the fact, I don't want my kid learning the same garbage that he learns at the playground every once in a while on a daily basis. My kids do sports (soccer especially) with a group, and play with neighbor kids. They are doing school to LEARN, and not about drugs and cussing and being mean to other kids! YEAH!!! Ok, better late than never!

    Julianne

     
    Old 11-26-2003, 09:38 PM   #9
    jtiegs
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    Re: ENT visit, what a joke, joke, joke....

    Hi Vicki,
    Just wanted to reply to you too. We are doing a little thanksgiving dinner here. I will make everything. Usually I make an elaborate feast, but not this year. The friends we usually invite are away this time, so it's just the 4 of us, and we can only eat so much.

    I am still feeling off today. It's been up and down, but certainly not right. I hope tomorrow is better. I just had a really freaky delay from vision to brain just a minute ago. It was very off, probably a full second behind. Haven't had that in a while. I should get to bed!

    Do you have any special plans for Thanksgiving? Enjoy your holiday,
    Julianne

     
    Old 11-27-2003, 01:59 AM   #10
    slr
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    Re: ENT visit, what a joke, joke, joke....

    I just spent an hour typing a reply to only get a message that said my reply had to be at least 10 characters long-- go figure!!

    So I start over but this is my last try.

    4 weeks ago now, I had some strange symptoms come up so I went to my family doc.

    I told him that my ears hurt when they are bent, that I had a nose bleed from my left nostril (I was asleep on the couch and woke up and my nose bled but I need to say that it was a rainy weekend and I do have outdoor allergies and I did relay this to the doctor). He wanted to see me back in a week so I went back. At this point, I began having a hum in my left ear. I also noticed some red spots on the floor of my mouth. The doc's reply was "How did you find out it hurt to bend your ear?" and he laughed. Well, guess what doc, I wash my ears when I take a shower!! I brush my hair and sometimes that brush touches my ears. The end result. You are fine.

    So, I went to an internal medicine doc. Told him the same symptoms I told my family doc. Told him up front what happened with the other doc. Told him I wanted it to be checked out as my husband was diagnosed with cancer and I do not want to get in the position that he is in--he went to the doc's and they ignored him too and he ended up with Stage 4 cancer!! This doc's reply was, "If my wife or other family member came to me with the same symptoms, I would tell them there was nothing to worry about.

    So I decided to go see an ENT and went to the same doctor's office that diagnosed my husband but I saw a different doc. I thought that I would do that in case there was something wrong and it might be too stressful for a doc to find out that a husband and wife both had a serious issue---I must be crazy to think about the doctor's feelings as this is his chosen profession--

    At any rate, I got there and I told the doc about my symptoms and also expressed concern that I did not want something to be ignored and then when it was caught, it was very advanced because my husband cannot work and I am the only provider of the insurance and now he is uninsurable. It is easy for an ENT to diagnose a serious problem when you have a huge mass present!! A good ENT will be able to catch something early without a huge visible mass to clue them in that there is a problem because they took the time to check it out.

    First question was ear ringing and I had already told him about the humming in my left ear. He told me to move my tongue to the left and then the right. He put a stick in my mouth and told me to bite down on the left and then the right. He looked at my ears and said unless they become red and stay red or swell up or get skin lesions, not to worry about it!! Crud, it isn't normal for ears to hurt that way!! This doc didn't put on a pair of gloves and feel the roof of my mouth or anywhere else in my mouth for that matter.

    What about leukoplakia (white patches)? There is another word for the red patches but I cannot remember it. I was told that the red spots were blood vessels!! I am sorry, I don't think red spots in the floor of one's mouth is normal and that it should be checked out further!! I did tell the doc that I did NOT want any tubes shoved in my nose or down my throat. I am fearful of this because if there were cancer, I don't want to take the chance of the cells being disrupted by the tubes being shoved down and then spreading cancer around my body.

    To me, it seems wise to spend $1000 on a test to rule stuff out rather than spend 100's of thousands of dollars later because of a misdiagnosis or failure to check out something and rule out a potential problem. It is less expensive on the insurance company and the patient in the long run.

    I am at my wits end!! Whatever happened to patient care being top priority and not worry about ordering a $1000 test if it had the potential to catch something early and save lives?

    Am I being paranoid? I don't think so. I think I am more aware of the symptoms now that I have experience with this type of cancer. You will not believe how many patients that I have spoken with that their ENT's brushed off the warning signs and they ended up with advanced cancer and some of them will never be able to eat or drink food through their mouth again (they have to eat through feeding tubes).

    Isn't this a sad situation when lives could have been saved and a disease caught before it advanced to late stages all because ENT's (and I am not bashing ENT's--I am sure that this happens with other specialists as well) did not order a test, i.e., MRI's etc. before it was far advanced.

    Now, I have to try and decide my next step!!

    slr

     
    Old 11-27-2003, 06:10 PM   #11
    jtiegs
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    Re: ENT visit, what a joke, joke, joke....

    Hi SLR,
    I am sorry you too had a lousy experience with the ENT. Do you watch ER? I have a feeling there are a lot of Dr Kovaches (But not as good looking!) out there! (If you watch the show lately you'll know what I mean) Saving money is great, but it's just a matter of time before something major gets missed. I put my foot down after my second attack. I felt that if I couldn't rule out a brain tumor, I couldn't sleep at night. I was able to negotiate an MRI for one of my very first tests.

    Here is another peeve of mine, why do the docs just want to medicate? Let's just mask the problem with drugs! Why can't western docs at least incorporate some holistic ideas into their practice? Of course to see a holistic doctor most of us have to pay out of pocket. I would love to see someone who uses modern western medicine and natural medicine together. Fantasy.

    What is going on with you anyway? I got the ear pain, and spots, do you have dizziness and other vestibular related symptoms?
    Julianne

     
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