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  • Who Does Exercise Despite A Vestibular Problem

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    Old 03-26-2004, 04:20 PM   #16
    Join Date: Sep 2003
    Location: Portland, OR, USA
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    Barnsley HB User
    Re: Who Does Exercise Despite A Vestibular Problem

    Originally Posted by willsmommy
    Wow Guys - thanks all of you for your good wishes and asking about my son.

    Its very odd and he is unlucky but lucky in some ways. Its slightly different to our symptoms in that he has major vertigo attacks that come clean out of the blue and floor him. They do not appear to affect him at all between attacks so he has no imbalance or anything.

    Its only in the past year that we realsie he ahs vertigo or at least some vertigo attacks causing the dizzyness. As we can actually see the visual eye nystagmus - which looks like v v v fast uncontrolable eye movement from side to side. This is accompanied by abdominal pain and sometimes vomiting but always extreme pallor and profuse sweating. Its is actually much rarer in children than it is in adults and I pray that theyf ind the cause soon! He is at nursery at the moment so is ok to be at home on bad days etc but he starts school after the summer and this is why I am sooooo determined to try and get meds or anthing that will control it. He is actually a brave little thing and will say "Oh mum stoptalking about it" thats how he deals with it by blocking it out pretty much I guess. The GP has actually seen one of his episodes as have several friends and family so luckily we get few suggestions now that it because I have dizzyness that he does. Its just a completely vile co-incidence which the doctors assure me is completly un-related. Apparently the cause of vertigo in children has a very different cause to adults and it can be migraine associated. he has tried meds for this with no avail, so we have crossed that off the list. His next batch of test are cardio and brain so I hope they do find whats causing it. My GP says if they are all normal then he will have to go to a neuroto for children in London.

    Ilia xxxxx
    Oh Ilia,

    I wish you and your son the best of luck with his tests. How frustrated and a little scared you must be! I'm thinking about you and sending prayers and good vibes!!


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    Old 03-26-2004, 09:33 PM   #17
    jtiegs's Avatar
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    jtiegs HB User
    Re: Who Does Exercise Despite A Vestibular Problem

    Originally Posted by willsmommy

    I am wondering who here is still actively exercising? If so what type of exercise are you doing and does it aggreavte the weird symptoms?

    I am thinking of starting to do something, even just basic walking, just not sure. I find that if I walk alot then I start to get a strange feeling of being very lightheaded and floaty..........sometimes it scares me and feels a little like I may faint.

    Thanks, Ilia x
    Hi Ilia,
    Been off the boards for a little bit. I exercise. I run 5-6 days a week now. I am on Klonopin and now a new drug called Atacand which is for MAV issues. I'll post a whole new thread on that story. At any rate, what I have discovered is that running actually makes me feel a bit more normal while I am doing it. Not every time, but most of the time, it's actually like a break from some of the symptoms. I am not certain if that is due to the difficulty of running and how that overwhelms the other symptoms or if just getting my blood pumping gives me the sense that I am "clearing my head".

    The conclusion I came to is that running isn't going to hurt me. It's good for me, and since my condition isn't something that's going to get worse (over the long haul) by some vigorous exercise, I might as well do it. I have also gotten to a point where I have to move on. I can't sit and dwell in this tiresome issue and act as if I simply cannot go on. It's here, and it's been here quite a while, and I better get used to it and try to live anyway. I was a runner before all of this, and ran my first marathon in May last year. This condition started it's chronic status one month later, in June. I've gained 20 lbs from not running for many months while the symptoms were really bad, but now that they've leveled out where I can get by, but have good days and bad, as opposed to all bad, all the time, feeling like all I can do is lie down, I've decided to take back a portion of my life that's gotten out of control. That would be my fitness obviously!

    I would just suggest that you try it. In the beginning when I started back again, it was really hard. I felt dizzy, brought on some vertigo, felt very tired, all of that. But I would say it's best just to take it slowly and do what feels ok. I haven't gone running yet where it set off symptoms that were worse than what I already had going that day. The vertigo I got was temporary, so again, you have to just see what your body will tolerate.

    There's a holistic PhD guy out there named Dr Weil. I am not entirely sold on his concepts and ideas, but he said in one of his books about general wellness that getting outside and walking amongst the trees is very good medicine. He also spoke of taking "news fasts" and "tv fasts", ways of eliminating stress from your life. I have found definite truth in his concept of getting out into nature and taking in some fresh oxygen. For example, a couple weeks ago I was having a terrible night. I felt so heavy with symptoms and also some hormonal stuff, so I just went outside got away from the artificial noise of the tv, and all the commotion of family chatter, and sat on the deck at my sister's house and listened to the frogs croaking and looked up at the starry sky, and just got some fresh air. It made a world of difference. I was able to go back and resume the rest of the evening with a better perspective if nothing else.

    I am digressing, but anyway, get out and try the walking. I bet it will end up being a very good thing for you.
    Take care,

    Old 03-27-2004, 02:35 AM   #18
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    Re: Who Does Exercise Despite A Vestibular Problem

    Hi Barnsley and Jtiegs,

    Thanks v much fo ryour kind words!!

    Jtiegs I really agree with all that you have written about being outside being good medicine for the mind as well as body. You know before I had this dizzy mess I would walk twice daily in a local woods and it really was great listening to the birds and all, used to very much clear my mind too.

    I think every one has hit the nail on the head in saying that we have to make a mental decision and not allow this mess to take over all aspects of our life! that is sooo right. I am alos v relieved to hear the even if the symptoms become a little worse that they do then settle down, thats v reasuring!

    So on that note I plan to get changed and get my butt outsode for a walk!!

    Thanks again, your support always encourages me greatly! xxxx

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