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    Old 03-17-2004, 12:21 PM   #1
    willsmommy
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    Who Does Exercise Despite A Vestibular Problem

    Hi,

    I am wondering who here is still actively exercising? If so what type of exercise are you doing and does it aggreavte the weird symptoms?

    I am thinking of starting to do something, even just basic walking, just not sure. I find that if I walk alot then I start to get a strange feeling of being very lightheaded and floaty..........sometimes it scares me and feels a little like I may faint.

    Thanks, Ilia x

     
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    Old 03-17-2004, 12:34 PM   #2
    Barnsley
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    Re: Who Does Exercise Despite A Vestibular Problem

    Quote:
    Originally Posted by willsmommy
    Hi,

    I am wondering who here is still actively exercising? If so what type of exercise are you doing and does it aggreavte the weird symptoms?

    I am thinking of starting to do something, even just basic walking, just not sure. I find that if I walk alot then I start to get a strange feeling of being very lightheaded and floaty..........sometimes it scares me and feels a little like I may faint.

    Thanks, Ilia x

    Hi Ilia,

    Not sure if you saw my long reply to you in the other thread a couple days ago, but as we've talked before, I do continue to walk 4 days a week and try to keep up my yoga practice once a week. My ENT said to just keep up those things, instead of specific VRT exercises, because being active would have the same or similar effects on compensation. He was right.

    Also, be aware of the brain's chemical reaction to physical activity, a la endorphin rush. You said when you walk a lot you get that floaty weird feeling, which I wouldn't rule out as just a normal endorphin response to physical activity. I've been pretty active my whole adult life (small multisport races, walking, hiking, biking, etc.) and this is a very common thing. Your brain actually likes the endorphins; you've heard of the "runner's high" I suppose. That's endorphins. It's harmless, and I think if it disturbs you, just slow down or cut your walk short. But then the next time maybe try to push through it a little bit and see what happens. I've never fainted while walking.

    I think keeping up the physical exercise is really important for getting better, and if nothing else, it keeps the brain's seratonin levels higher and so you're less likely to have anxiety/depression over your symptoms. Now that's an upside! I think you should definitely dive in, but start small, baby steps are perfectly okay. The important thing is to keep it up. This will retrain the brain. Hope that helps and that you are having a good day!!

    Terri

     
    Old 03-17-2004, 05:04 PM   #3
    scant5
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    Re: Who Does Exercise Despite A Vestibular Problem

    Ilia:
    I haven't been walking as much as I used to but that is only because of the snow here in the mountains. What I will say is that the more I walked, the better I felt. There were days when I felt absolutely horrible but I pushed myself and always felt better in the end. It was my only help when I was suffering so much with anxiety. Do you have someone who will walk with you?
    I usually went with my dogs and if not my husband. My dogs were actually really great companions. If they got ahead of me, they would come running back to see what was taking me so long. I say go for it. Start out with little mini walks and then just increase it and when you get a little bit more comfortable start doing some head turning. And then when you are really, really comfortable....swing from a tree...

    all the best,
    Kathy

     
    Old 03-17-2004, 08:32 PM   #4
    star803
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    Re: Who Does Exercise Despite A Vestibular Problem

    I have always had trouble with physical exercise since getting this evil illness!

    But a couple of months ago I started walking everyday. First of all I would walk for 5/10 minutes and by the end of that I would be feeling awful. But by about a month later I could walk for 45min - 1hr with no problem.

    However, there are days when I am too symptomatic to go - thats a judgement call I make at the time.

    I say go for it - I never used to like walking and now I love it.

     
    Old 03-18-2004, 05:19 AM   #5
    willsmommy
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    Re: Who Does Exercise Despite A Vestibular Problem

    Barnsley, Scant and Star,

    Wow thanks so much for your words of encouragement!! You are so right and I am about to go for a walk, admitedly a small one I plan to walk to the school my daughter is at and see how that goes........don't laugh its in the same street I live in.......but its baby steps right! THANKSSSSSS you all cheered me up so much.xxxx

     
    Old 03-18-2004, 09:55 AM   #6
    millsy
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    Re: Who Does Exercise Despite A Vestibular Problem

    Hi Ilia

    Just wondered how your walk went?

    When my dizziness started improving (around the 5th month) I started to make myself take my 2 kids to school (their school is about a 2 minute walk from the house). To begin with I would feel very light-headed but I think this was due to feeling nervous as I had fallen over in the street when Ifirst got this. After about 2 weeks of taking the kids to school and picking them up I realised that I was not going to fall over or faint! Now I don't think about it - I just go out. However, I've not built myself up to go out for a long walk yet but I am determined to try!

    Good Luck and keep going on the short walk to school - it will get easier.

    Best Wishes

    M.

     
    Old 03-18-2004, 02:14 PM   #7
    willsmommy
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    Re: Who Does Exercise Despite A Vestibular Problem

    Quote:
    Originally Posted by millsy
    Hi Ilia

    Just wondered how your walk went?

    When my dizziness started improving (around the 5th month) I started to make myself take my 2 kids to school (their school is about a 2 minute walk from the house). To begin with I would feel very light-headed but I think this was due to feeling nervous as I had fallen over in the street when Ifirst got this. After about 2 weeks of taking the kids to school and picking them up I realised that I was not going to fall over or faint! Now I don't think about it - I just go out. However, I've not built myself up to go out for a long walk yet but I am determined to try!

    Good Luck and keep going on the short walk to school - it will get easier.

    Best Wishes

    M.
    Hi Millsy,

    Thanks ever so much for asking about how the walk went, well ended up not going!! My son who is 5 had a vertigo attack and scared the life out of me again! so i called my neighbour who collected her for me and in fact ended up keepinh her for supper and taking her to an art class for me. My poor kid has been having these dizzy attacks since he has been 2 years old. Its only been more recently that they have been diagnosed as vestibular in origin in that its deff vertigo (he has classic spinning sensation and visual, pallor, extreme nausea and nystagmus). He has seen various specialists to no specific avail and tried meds which have not worked. Any way he is being taken into hospital for tests v soon so hopefully we will get a diagnsosis very soon. The stress of worrying about him in turn makes my symptoms worse!

    I have also developed a vile cold pretty much flu and this is day 3 and you got it the old symptoms have resurfaced.......so I am back to feeling like I have springs on my feet! lol

    But from past colds etc I know that as soon as it goes I will get back on par so I am not going to push the limits during this set back. That said, I am still doing stuff around the house to ensure that this decomp spell does not get any worse..........no sitting snuggled up in bed for me!!.......been there and done that in the past and boy oh boy did I pay for it balance wise.

    Sooooo glad that you wrote that you know do it without a thought, thats really encouraged me!! I think I over analyse my symptoms when I go out and that in turn kinda of exzerbates the off balance, floaty stuff......at least I realise I am doing it.

    But I am deff going to do it, this week!!

     
    Old 03-19-2004, 02:24 AM   #8
    millsy
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    Re: Who Does Exercise Despite A Vestibular Problem

    Hi Ilia!

    Dizziness is bad enough to cope with when you're 35, never mind being only 5!

    Let me know how your son gets on at the hospital. Does he manage to go to school? I've not come accross dizziness in children before, then again I didn't know about labs,etc until I became dizzy myself.

    I know what you mean about colds,etc making symptoms worse. I've got a slight cold at the moment and my ears are feeling sooo blocked up and the movement, even thought I am sitting still, feelings are a bit worse. Still managed to take kids to school today though! Pat on the back for me! How do you escape from getting colds etc? Especially when a new virus gets brought home from school on a weekly basis!

    Let me know how the walk goes. To begin with take someone with you, even if it's the kids, and keep talking to them to try and take your mind off how the balance is.

    Best Wishes

    M.

     
    Old 03-23-2004, 07:51 PM   #9
    jaxn99
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    Wink Re: Who Does Exercise Despite A Vestibular Problem

    I exercise. Although I am unable to do a lot of my advanced cardio, I am still lifting weights. I only took about 4 days off and I could not STAND it!!!

    The funny thing is that abdominal crunches make me the dizziest! Closing my eyes seems to help that. But since I have a mini-gym at home I don't have any anxiety about working out. I figure, that if I get dizzy and pass out, I am still at home. I get some vertigo but I am able to keep working through it. I am ignoring it actually.

    Since my Labyrinthitis has only been 10 or so days, I have not attempted my cardio, but I think that I just might try it tomorrow.

     
    Old 03-24-2004, 04:53 AM   #10
    dizzyinmissouri
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    Re: Who Does Exercise Despite A Vestibular Problem

    Hi, Ilia!
    Since the weather has been getting nicer and drier I have been going on 30 - 40 minute walks a day with my boys and our dog. We have about 45 acres that we have access to and I walk the edge which takes us thru some timber. I love it! It is definitely helping me feel better. I usually feel a little loony by the time I get back to the house, and then feel loony for awhile inside the house but it goes away.
    Right now my symptoms are the head pressure. Feels like someone is blowing air inside my head and the pressure is terrible. No pain, just pressure. Dizziness has been better, tho!
    I do my eye exercises daily, do more some days than others. This dizzy thing really got TMJ going for me and I think that is where alot of my head fullness is coming from. Lots of stiff neck yet.
    So, sorry about your little boy. That has to be SO scary! My five year old is my fourth and he is the one succeptible to accidents. What is weird is that he is my most cautious out of three boys. Right now he has a cast on his arm from falling from a swivel rocker. But to have a child experience this horrible dizzy stuff. How does he handle it? Probably better than most of us adults.
    Hope you are having a good day! Any day I can get out of bed and make it to the bathroom without spinning or getting dizzy, consider it a gift!!
    Take care!
    Vicki

     
    Old 03-25-2004, 11:50 AM   #11
    jcrock791
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    Re: Who Does Exercise Despite A Vestibular Problem

    Hey Willsmommy,

    Wow its so good to hear others having the same problems as me!
    I totally agree with everyone else--even if you get vertigo and off balance feelings get out and do something, even if its walking for 2 minutes.

    Aside from compensation benefits it may have--the mental thing is just as important in terms of getting out and doing something good--beating the vertigo for that time and not letting it get the best of you.

    Sometimes when Im finished running I get the floaty/falling feelings worse and more often then before I ran, but its better than laying on the couch and letting your vertigo control your life.

    I also do weights and play tennis--sports seems to take my mind off of it and when Im moving I dont really notice it as much as when Im sitting or standing really still.

    Feel better please!

     
    Old 03-25-2004, 11:54 AM   #12
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    Re: Who Does Exercise Despite A Vestibular Problem

    Can I please ask what you have jcrock? xxx

     
    Old 03-25-2004, 09:07 PM   #13
    jcrock791
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    Re: Who Does Exercise Despite A Vestibular Problem

    Hi Emsybobs,

    I was diagnosed with l'itis, which was supposed to go away after a few months, but have been told I've been left with a permanent residual (i think that means like scar or viral damage in my inner ear) which causes the 24/7 vertigo.

    Hope that helps,

    Thanks and good luck.

    Quote:
    Originally Posted by Emsybobs
    Can I please ask what you have jcrock? xxx

     
    Old 03-26-2004, 09:17 AM   #14
    Bothrops
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    Re: Who Does Exercise Despite A Vestibular Problem

    Hi Willsmommy,
    I ride one of them stationary bikes for 30 minutes a day everyday. I have only done it for 2 weeks but I plan on sticking to it. Every now and then I lift weights but havnt been able since I broke bone in hand.

    Derek

     
    Old 03-26-2004, 11:35 AM   #15
    willsmommy
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    Re: Who Does Exercise Despite A Vestibular Problem

    Wow Guys - thanks all of you for your good wishes and asking about my son.

    Its very odd and he is unlucky but lucky in some ways. Its slightly different to our symptoms in that he has major vertigo attacks that come clean out of the blue and floor him. They do not appear to affect him at all between attacks so he has no imbalance or anything.

    Its only in the past year that we realsie he ahs vertigo or at least some vertigo attacks causing the dizzyness. As we can actually see the visual eye nystagmus - which looks like v v v fast uncontrolable eye movement from side to side. This is accompanied by abdominal pain and sometimes vomiting but always extreme pallor and profuse sweating. Its is actually much rarer in children than it is in adults and I pray that theyf ind the cause soon! He is at nursery at the moment so is ok to be at home on bad days etc but he starts school after the summer and this is why I am sooooo determined to try and get meds or anthing that will control it. He is actually a brave little thing and will say "Oh mum stoptalking about it" thats how he deals with it by blocking it out pretty much I guess. The GP has actually seen one of his episodes as have several friends and family so luckily we get few suggestions now that it because I have dizzyness that he does. Its just a completely vile co-incidence which the doctors assure me is completly un-related. Apparently the cause of vertigo in children has a very different cause to adults and it can be migraine associated. he has tried meds for this with no avail, so we have crossed that off the list. His next batch of test are cardio and brain so I hope they do find whats causing it. My GP says if they are all normal then he will have to go to a neuroto for children in London.

    Jcrock

    How do they know that the damage you have is now permanent? do you find that your symptoms are very much constant or do you improve and get worse etc etc over time? Thanks

    Bothrops

    Your poor hand on top of this rubbish - hope it heals soon!!

    Jax

    You say that you have a mini-gym at home! which is great, what kind of stuff do you have in terms of equipement? I am thinking of doing the same since with 3 kids and this dizzy mess the gym does not appeal to me at all! Thanks

    Milly, Emys, Vicki

    Thanks very mush for the encouraging words ! I hope you all feel better v soon.

    Ilia xxxxx

    Last edited by willsmommy; 03-26-2004 at 11:37 AM.

     
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