It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Inner Ear Disorders Message Board

  • migraine meds question

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 12-16-2004, 09:41 AM   #1
    moogeneric
    Member
    (female)
     
    Join Date: Oct 2004
    Posts: 51
    moogeneric HB User
    migraine meds question

    Hi all,

    I don't know if anyone remembers, but I had a pseudo-semi-unofficial-non-diagnosis of MAV by my ENT. I tried the no-trigger foods diet for a month and a half (going insane 'cause I couldn't eat cheese, nor much of anything else), along with the Cawthorne head exercises, without seeing any improvement. So I stopped both this week. It was absolutely divine eating my first cheeseburger and piece of chocolate in a month and a half.

    Anyway, it's been almost 4 months I've had this dizzy crap - which I know is NOTHING compared to some of the long-time sufferers on this board - but I'm absolutely sick of it. My weird headaches are starting to creep back and my neck tension has been flaring up, as well. I had stated before how I am hesitant to take meds, but at this point, I'm about 80% there about trying out a migraine med, just to see if it does anything, to see if I really have MAV. I haven't made the definite decision because of my fears and sensitivty to meds and their side effects.

    Do I see my ENT (who suggested MAV) for the meds, or do I see my neurologist (who's only ever suggested "chemical imbalance" all along, and was really surprised when I told him about the ENTs MAV guess)? And should I try migraine preventative meds, or migraine abortive meds?

    Sorry about the long post for a simple question. Thanks for your time!

     
    Sponsors Lightbulb
       
    Old 12-16-2004, 12:20 PM   #2
    hbep
    Senior Veteran
    (female)
     
    Join Date: Jan 2003
    Location: UK
    Posts: 1,480
    hbep HB Userhbep HB Userhbep HB User
    Re: migraine meds question

    Hi there,

    Generally someone with MAV who has constant dizziness takes preventative meds. I expect this is working on the principle that if you effectively have a constant migraine aura in the form of dizziness, an abortive won't help. I think they're more suitable for people who know a migraine is coming on - has irregular attacks - so downs a pill.

    I had similiar reservations to you about meds - still do really - although I'm on enough of them now. I got worn down with symptoms and thought, how much worse can the side effects be. I've given up giving advice as to which drug might be best, one person's horror story is another person's cure. Although the most regularly used drugs are propanonol and pizotifen (sanomigran) . I'm on the latter - can't say yet what I think - you taper up the dose - and I'm on too low a dose.

    As for which specialist - difficult - if you're ENT is au fait with MAV, then he'll probably be more inclined to prescibe the treatment, as it's his diagnosis. The treatment for migraine is the same whether it's classical migraine or MAV, in which case a neurologist should know a lot more about daily preventatives, but if he isn't convinced of a MAV diagnosis, or doesn't know much about dizziness disorders, his scepticism might make him reluctant to prescribe. He's more qualified in this area. It's a tough question, as I guess this is why neurotologists exist - they bridge the gap btwn ear doc and brain doc, they are effectively both. If you have no luck with the specialists you're seeing, try a neurotologist.

    Hope the drugs help you, and as it happens, me

    best,

    hbep
    __________________
    hbep

     
    Old 12-17-2004, 10:04 AM   #3
    moogeneric
    Member
    (female)
     
    Join Date: Oct 2004
    Posts: 51
    moogeneric HB User
    Re: migraine meds question

    Thanks for your reply. I want to be sure to be as prepared as possible if or when I go see the doc for meds, since none of them seem to know much of anything at all. I think I'll visit my ENT first, and if he sends me off to the neuro instead, so be it. I'm used to wasting $$ on useless appointments. My neuro was rather eager to have me try meds with his chemical imbalance angle, so I would assume he won't have a problem prescribing migraine meds... it's just that I don't like him, and it's difficult to feel satisfied communicating with him. It just doesn't happen.

    Again, please keep us posted with your progress. I think I'll wait 'til after the new year to see if my 80% decision has reached 100%, which is only a couple of weeks away...! Take care.

     
    Old 01-01-2005, 09:55 PM   #4
    jtiegs
    Veteran
    (female)
     
    Join Date: Sep 2003
    Location: USA
    Posts: 381
    jtiegs HB User
    Re: migraine meds question

    I haven't posted in quite a while, but I decide to check in and see who's still around and came across your post. I too have been diagnosed with MAV. Well, I had Labyrinthitis and VN, but the Neurotologist feel I have MAV as this has been going on chronically for over a year and a half, and it's been over 2 years since my initial Labyrinthitis attack. Also, my symptoms clearly escalate with hormonal changes which is a good indicator, plus I definitely have the migraine gene as it's very heavy in my family including my son. Anyway, to make a long story short, I have tried Atacand (a blood pressure med used for migraine prevention) and it worked pretty well for a time. It's a daily medication. However, it stopped working and so now I am trying a calcium channel blocker called Verapamil which is daily, and we are also trying Maxalt when I feel it coming on. So far I am not impressed with the Verapamil and the Maxalt knocks out the headachy feeling I get (I don't get raging migraine headaches, it's more subtle, like my head is full of peanut butter) but doesn't do much for the spacyheadedness. The problem is that my family practitional attemted to take over my case, but after a long discussion he determined I needed to see a neurologist (duh!). So I am waiting to get an appointment once the referal goes through. I'd like to see one who's more specialized.

    Anyway, the point is that I wouldn't want to see an ENT to deal with MAV. Once they decide it's MAV, I would want to see a neurologist. My Neurotologist decided that once he was comfortable with my diagnosis of MAV that he didn't want to mess with the medications either. He felt it was a neurologist's area and they would know best. So I would push for that unless you find your ENT to be highly knowledgable about MAV for some reason.

    Good luck to you!
    Julianne

     
    Old 01-02-2005, 02:23 AM   #5
    hbep
    Senior Veteran
    (female)
     
    Join Date: Jan 2003
    Location: UK
    Posts: 1,480
    hbep HB Userhbep HB Userhbep HB User
    Re: migraine meds question

    Hello,

    I've been ill 2 yrs and 4 months. I'm also a VN turned MAV diagnosis. I probably have damage to my inner ear so effectively I have both. I just wanted to write about a discovery I made yesterday which could be useful. I had three excellent months over the summer - minimal symptoms - bliss - mostly symptomatic only around my period. This ended 2 months ago with an attack of vertigo that then devolved into a more permanent dizzy state. I go up and down but the last month has been dreadful - violent headaches, brain fog, dizziness, particularly with visual stimulus. I get the odd reprieve but nothing like the level of recovery I'd achieved. The odd dizzy ish/ headache free day here and there.

    I took pizotifen (sandomigran) for 5 weeks during this time. I've now stopped as my headaches were so bad, I felt it might not be the right drug for me. I have also been taking drugs for a major reflux problem simultaneously - both of which are known headache triggers, so it's hard to say which was the culprit. I am attempting to stop all of them to see what happens. Anyway, long story short... When this started - 8 months in to the whole ordeal - prior to getting a neurotology diagnosis (The ENT's I saw were useless) my dentist, on hearing of my symptoms- sent me off to the dental hospital to see if I had tmjd - tempero mandibular joint disorder - or, to be more precise in my case, myofascial pain dysfunction (muscular spasm in the face often caused by clenching or grinding the teeth.) They diagnosed me as having MPD, and at that point I thought all my symptoms were due to that. I then developed true rotating vertigo - went on to get my VN, then MAV diagnosis, so figured that although I have MPD, it wasn't the root of the issue. (MPD doesn't cause vertigo, although has been linked to dizziness.) Nevertheless, I got my dentist to fit me with an NTI mouthguard, it's FDA approved for the treatment of teeth clenching and, as it happens, migraine.

    I was at a loss as to how all the pieces of the puzzle fit together. Although slowly made the connections. Once I suspected MAV, I found out that tmjd or MPD are thought to be migraine triggers. It's not clear exactly how, although clenching your teeth - particularly at night, puts heavy strain on the facial and neck muscles, people clench with the same intensity it would take to crack a nut. As migraine is due to the expansion and contraction of blood vessels - and these are surrounded by muscle - it is possible that the muscular spasm acts as a trigger. Anyway, the NTI fits over your front teeth and has a bridge which holds the front teeth apart, causing you to be unable to clench your back teeth. Imagine holding the end of a pencil btwn your front teeth, similiar action. Yesterday I realised my NTI has worn down so much I am able to clench around it, especially on the right side. The side on which my tinnitus has suddenly doubled. Also, if I clench my teeth, the facial pain I experience is v. similiar to the dreadful facial pain I get with the headaches. I don't know how long I've been unaware my NTI had worn down, but I'm willing to bet I've once again been clenching my teeth in my sleep and it's certainly played a big part in the resurgence of the migraine and the dizzy symptoms.

    Prior to getting the MPD diagnosis I was completely unaware I clenched my teeth. I'm not a teeth grinder - that's often more obvious - your teeth get worn down. I only caught myself clenching my teeth (it's an unconscious action) once I'd been alerted to it, and realised I'd been doing this, often in relation to stress, for years. Obviously i'ts only one migraine trigger, there are many, another for me is hormones. BUT it isn't uncommon, and as far as I can tell, a migraine happens due to a trigger build up. Someone might be fine if they only eat chocolate, but if they eat chocolate whilst very stressed, and they clench their teeth, it can tip things over the edge into a migraine. I've also been under a lot of stress lately, and the resurgence of symptoms happened around a period.

    I'm not saying I won't try another migraine preventative, I probably will, everyone is different, and it can take a number of different meds to finally find the right one. I do, however, with my latest discovery, think that I would never have got this problem in any way under control, without the nightguard. I'm not saying this will apply to everyone, it won't, but it may apply to some, so thought it was worth writing down. Of course I had to make this realisation over the holiday period when every dentist is shut - sigh - but am curious, when I go and get the splint adjusted, how much difference it'll make.

    best,

    hbep
    __________________
    hbep

    Last edited by hbep; 01-02-2005 at 02:31 AM.

     
    Old 01-02-2005, 09:39 AM   #6
    Subs30
    Inactive
    (male)
     
    Join Date: Jan 2003
    Location: Chester Springs, PA, USA
    Posts: 1,674
    Subs30 HB UserSubs30 HB User
    Cool Re: migraine meds question

    Hi Hbep

    Sorry your not rid of this junk!!

    ....I had three excellent months over the summer - minimal symptoms - bliss - mostly symptomatic only around my period"...

    Where you working/using the computer at the same level of intensity---you normally----work at---during this period?

    I forgot---did you get off on holiday---during that three month period??

    Just wondering---know there can be a lot of pressure---when your---trying to get new work/contract or complete an existing work/contract---at the same time your trying to line up---follow on work---to keep bread on the table---so to speak???

    Sorry the MAV Med's did not workout---had High Hopes---for you on that---interesting---about---the night guard---wonder if that fits/tracks---with job/business stress???

    Hope your on to something there---think the three month period---is a significant piece of the fix---while---just about anything can happen with this junk---for that to take place---is from what have gleamed---is unusual---did the good period start all of a sudden and stop suddenly??

    Hope you get to the bottom of this---thought(hoped) London---would be on top of this stuff---by now??


     
    Old 01-02-2005, 10:03 AM   #7
    jtiegs
    Veteran
    (female)
     
    Join Date: Sep 2003
    Location: USA
    Posts: 381
    jtiegs HB User
    Re: migraine meds question

    I just thought of something I should add. I cannot attest to this other than the fact that the Atacand and Klonopin combo was totally awesome at lowering my symptoms, and that was the closest I'd been to feeling normal in 20 months. But there are SO many migraine meds out there. I've done some reading up, and apparently some meds work for some people, and some work for others. And the whole thing is trial and error. It all depends on the type of migraine gene you have, and they can't really isolate the genes to determine which one you have.

    The most annoying aspect it that it takes two months to determine if a daily preventative medication such as calcium channel blockers will help. So it's a long road to find the right drug. But I am not giving up. The other problem is that some things work for people for a while and then they stop. That was the case with Atacand. It was amazing how much better I felt for a good 6 months. Yes I had episodes, but not nearly as many and not nearly as bad. But for some reason it's no longer effective and now I have to try a new drug. It's only been about 3 weeks on Verapamil, so I am not throwing in the towel yet, but I want to discuss it with the neurologist to determine if it's the best choice considering my circumstances. My FP was flying by the seat of his pants if you ask me.

    I recommend getting a few books on migraine for the library, particularly ones on hormone headaches. The only disadvantage is that they bearly mention our condition. However, if you replace the term headache with the term dizziness, everything sort of comes together. It's been helpful for me in learning about the various medications and treatments more than anything else. And it encouraged me because I learned that it IS a trial and error thing and not to give up if the drug you try doesn't work as there are many others to try. So...I will keep trying!

    Subs, you are great, always there! Healthy and normal, but still here helping people out. Your wisdom is always appreciated!

    Take care everyone!
    Julianne

     
    Old 01-02-2005, 12:27 PM   #8
    hbep
    Senior Veteran
    (female)
     
    Join Date: Jan 2003
    Location: UK
    Posts: 1,480
    hbep HB Userhbep HB Userhbep HB User
    Re: migraine meds question

    Hi Subs,

    Nothing was particulary different during the period I was well, what may have brought about the change in symptoms is the changes that happened around the period of time I got ill again. First off, medication I HAD to take for the reflux. I have a problem with eosophagul motility and reflux. The problem is mild but the symptoms dreadful, I could barely eat and it caused my breathing to feel off - horrible. Anyway, I knew I HAD to bite the bullet and take 2 different drugs, one of which had already caused me to feel worse and which I'd taken myself off previously. I am 98% sure these drugs contributed massively to the headaches - (I did a bit of research) I am now taking as little as possible to keep the stomach symptoms under control, but it's often the way that a drug which cures or helps one thing is hell on another area of your body. Unfortunately I think that was the case for me. Then yes, the nightguard no longer fitting correctly = another headache trigger and I was massively stressed over preparing for a work meeting and the prospect of a new job in the new year. So all in all, include hormonal fluctuations and I had a recipe for dizzy disaster. Even if I don't have MAV, but have VN, the intensity of the stress, and headaches would be enough to throw my compensation off.

    London is attempting to help, they are trying the headache drugs. I will, no doubt, attempt another one, they suggested the next one for me to try. They have referred me on to a neurologist also - although the waiting list is horrendous - 13 months. I was referred in the summer. If things don't improve, I will call and ask to be bumped up on to the urgent list if possible. I am also working on reducing stress. I am a real stress monster. I used to be a workaholic (fraid this isn't an option anymore, lol) and tend to let my stress run away with itself. There's nothing I like better then worrying myself sick about work, and the illness factor has added a whole new dimension to that. I am realising this HAS to be got under control. I am seeing a counsellor at my local GP - we kick off mid Jan, I had a preliminary session before X MAS. She seemed very nice, sensible, we are going to look at some basic cognitive behavioural techniques. I hope this will do some good. The other thing I need to get back to (I keep threatening to then don't) is my VRT. The only problem is they say don't do it with a headache, which has been a bit of a joke the last 2 months.

    In my worst moments I would say this illness has given me nothing, only taken things away. But, when I am feeling less sick, and able to get my head above the parapet, I think it's my body's way of saying enough stressing out. The big job ahead for me is to learn to relax.

    On the up side, I felt pretty bad this morning, but forced myself to go for a walk, lunch, shopping with friends. Started off bad, but got much, much better dizzy wise as the day went on. It seems (touch wood) that although things can get really dreadful again, I am able to bounce back, even if only for periods of a few hours. There is, currently a much more crazy up and down trajectory, which differs from when I was first ill. I can be dreadful, then 95%, then dreadful, which is an improvement on the first yr and a half which was basically all pretty dreadful.

    Thanks for asking after me Subs, very sweet of you. I will keep you posted,

    best,

    hbep
    __________________
    hbep

    Last edited by hbep; 01-03-2005 at 01:25 AM.

     
    Old 01-02-2005, 12:39 PM   #9
    hbep
    Senior Veteran
    (female)
     
    Join Date: Jan 2003
    Location: UK
    Posts: 1,480
    hbep HB Userhbep HB Userhbep HB User
    Re: migraine meds question

    Hi Julianne,

    Very interesting about the gene thing. My grandmother was the migraine sufferer, it seems, although she isn't alive any longer so can't ask her, that she may have had MAV. Undiagnosed, almost certainly, but my mother told me that alongside classical migraines, she suffered intermittent dizziness all her life. Hmmm. Seems I'm the lucky family member that inherited that bad gene.

    I have read a lot on migraine, there are a lot of article specifically on MAV available on the net. I haven't, however, read specifically on hormonal migraine, so will certainly seek some of those books out. Like you, it does seem that, that is going to be the most difficult piece of the equation to resolve. Every single month, even in my better 3 months, I'd hit my period and wham, it's back with greater or lesser intensity. Infurtiating. The hospital did suggest trying the contraceptive pill, but have had a bad experience with that in the past. I'm sure you're aware of this, but some people kick their migraines completely (and indeed MAV) by coming off the pill. Others manage to kick them by going on it.

    Anyway, keep me posted on your experience with the verapamil. I know what you mean about the frustration of it taking so long to see results. Having said that, I took myself off the pizotifen after, I think, 5 and a half weeks, as I was getting so much worse. I don't mind a drug not working, but as I didn't know, but suspected the pizotifen could be playing a part, I felt enough was enough. There are enough other drugs out there to try.

    best,

    hbep
    __________________
    hbep

     
    Old 01-02-2005, 01:25 PM   #10
    moogeneric
    Member
    (female)
     
    Join Date: Oct 2004
    Posts: 51
    moogeneric HB User
    Re: migraine meds question

    I've only moved up to about 85% in my decision to try out migraine meds since I my first post in this thread, but I guess seeing the neurologist about it would be the proper thing to do when I 100% decide, and would mean less time out from work for another useless appointment. I'm just doubtful about how much he knows about MAV, though I'm sure he knows a lot about classic migraines.

    Another factor that leaves me skeptical about my non-diagnosis-diagnosis of MAV is that unlike you folks, I don't have a family history of migraine... unless someone in my family have had atypical migraines, in which case, I suppose they didn't know it was really migraine. Or, I guess I could always be the lucky first, though I don't experience the excruciating one-sided headaches you would expect a migraine to be. But, again, I guess MAV is an atypical migraine type anyway. My headaches are generally mild to moderate, chronic, sort of an all-over-the-head dull ache. Other times, if I'm particularly dizzy, it's more of a pressure feeling in the head, that can get quite strong, and sometimes felt more in the left side of my head, as if something were wedged in my brain... not painful, but a very uncomfortable - almost unbearable sometimes - pressure feeling. This pressure feeling can extend across my face when it's really bad, especially across my nose, as if the bone there were too tight or something. This makes me wonder about the TMJ thing, but I just don't have the energy to investigate it and face doctors/dentists who don't "believe" in it.

    Hbep, could you describe your facial pain a bit? Is it a definite pain, ache, etc., or is it like a strong pressure feeling?

    Anyway, I'm mostly just thinking outloud here. The journey continues. On a side note, I schedule an detox/cleansing thing with my voodoo chiro doc for next week to see if it'll do any good. He's going to "test" over 100 different foods on me, and anything I'm sensitive to will have to be cut out for 21 days. I'll take "cleansing" supplements during this period. I doubt if it will do anything except be a torture-fest (I have this thing about food, see... I like to eat), but it's only for 21 days, and again, I'm desperate and will try anything. Anything, except apparently migraine meds.

     
    Old 01-03-2005, 02:00 AM   #11
    hbep
    Senior Veteran
    (female)
     
    Join Date: Jan 2003
    Location: UK
    Posts: 1,480
    hbep HB Userhbep HB Userhbep HB User
    Re: migraine meds question

    Hi Moogeneric,

    I don't have classical migraines either and never have. As for the grandmother. I am taking my mother's word for the fact that they were migraines. As I said, my grandmother isn't alive, so can't ask her. All I know is she had violent headaches that required her to lie down in a dark room - which she referred to as migraine. Certainly sounds like migraine - but hey, maybe she had tmjd and the dizziness was an uncompensated bout of VN. No one else in my family is a migraine sufferer.

    The headaches you describe were exactly what I used to experience - pain used to be a rare aspect of it. It's only in the last 2 months that the pain has become severe. When you say - 'This pressure feeling can extend across my face when it's really bad, especially across my nose, as if the bone there were too tight or something.' This is especially common for me. I sometimes describe it as someone trying to push my nose in to my face. For a long while I thought it was only tmj - then in the last 4 month period I started to experience definite migraine auras - only 2 that are a no brainer - lightning flashes and a spaceship flying around in my eye. But there's nothing else these could have been other than migraine auruas - so I pretty much have to be experiencing migraine. I have always noticed little visual things - occasions of blurred vision, light suddenly becoming painful, floaters in my eye, candles hurting my vision. All of these things were too small in and of themselves to know if they were migraine indicators. You may have read my history, and know I experienced terrible facial pain, particularly in and around my nose a few yrs ago. It was actually acupuncture that evenutally kicked that. I am about to try acupuncture again. I need a break from drugs for a while.

    As for the tmj - it definitely isn't hard to get a dentist to believe you have this - it's well known. There are dentists with specific training in this area. In England we have something called the Cranio group which tells you which dentists know about this stuff. If you did a bit of research you'd definitely find someone - you could look out for whether they offer the NTI splint. It's pretty easy to determine if you have a problem in this area, the dentist presses on trigger points in your face, and if you say ouch and jump out of the chair, it's a bit of a no brainer that you have a problem in that area.

    There are lots of radical theories on how to treat it - splint (mouthguard) therapy takes many forms. Unfortunately they're all very expensive (apart from the NTI) and also it's new territory - not properly trialed yet. Many involve wearing a device that moves your jaw joint fractionally. As my problem is only muscular (a lot of people's is) and I wasn't prepared to fork out thousands of pounds, I decided to give these expensive new experimental treatments a miss. From what you describe, if you do have tmj, it sounds like yours is also muscular, in which case an NTI would probably suit you. If you check out Jim Boyd on the net, you'll find info on it, he invented it. It's pretty well known and as I said is FDA approved for the treatment of migraine.

    Re - 'I have this thing about food, see... I like to eat.' LOL. I went the radical migraine diet route for a while - I chucked it eventually in favour of only avoiding the obvious trigger foods. I miss chocolate and cheese, in fact I could murder a pizza. I sometimes think I should try a radical exclusion diet again, I didn't really give it a proper go, (it just got so unbearable) and then I think I can't bear it. Although 21 days isn't too bad, like you, I could probably suffer that.

    How did you get on with the whole glasses, contacts conundrum?

    best,

    hbep
    __________________
    hbep

     
    Old 01-03-2005, 05:37 AM   #12
    BennyGibb
    Senior Member
    (male)
     
    Join Date: Sep 2004
    Posts: 155
    BennyGibb HB User
    Re: migraine meds question

    hbep,

    The same as you I often wonder whether MAV is the cause of my problems, as I'm now worse than a number of years ago. I also get really bad spells, which are unprovoked and come on over a few minutes, after several hours they usually abate leaving me with the baseline dizziness (albeit slightly worse than normal), though sometimes go on for a few days, and occasionally leaves my symptoms stirred up and it takes weeks to get back to "baseline" (<-- which isn't too pleasant in itself, and has seemed to move up a notch or so in the past year).

    As I've mentioned before I have a whole lot of other stuff going on too, which is not indicative of migraine (or VN/Labs for that matter), it may be unrelated. But I keep coming back to migraine, mainly because of the light sensitivety I suffer (I also get sparks/sparkles regularly in my vision) and it's episodic flareups, I DO have a very strong family history of migraine, my father suffers migraines (often just the visual aura), my mother has stroke like symptoms when she gets migraine (loss of coordination, muscle weakness etc), and my sister was hospitalised several times because of migraines when she was a child (paralysis, blindness, slurred speech, delerious), and still gets 2 or 3 a month now.

    Also, similar to you I have tried the various migraine diets (none of which seemed to help i might add) so now I just avoid the cheese and chocolate - but I have no idea whether it's really helping...

    Not much point in this post other than to say, I know where your comming from.

     
    Old 01-03-2005, 10:19 AM   #13
    hbep
    Senior Veteran
    (female)
     
    Join Date: Jan 2003
    Location: UK
    Posts: 1,480
    hbep HB Userhbep HB Userhbep HB User
    Re: migraine meds question

    Hi Benny,

    I know what you mean about not knowing whether the diet is helping or not. As my symptoms could potentially be provoked by so many things, and like you, can go on for days and days and at the moment never leave completely, how would I know? My gut feeling is that cheese doesn't help - and apparently my grandmother had to avoid it - so I stick with the no cheese, just in case it helps. An annoyance, as, as I said, I am a real fan of pizza and I could happily make my way through an entire chocolate shop counter in about half an hour.

    Like you, I now have other crap going on. This stomach/reflux rubbish is a pain in the backside and also limits what I can eat. Sometimes it's hard to decide which condition is annoying me more.

    In your case, to be honest, with a family history of migraine like that, well, you've got to more than wonder. Although actual migraine attacks can't be fun, it looks like you potentially drew the genetic short straw with regard to 24/7 type symptoms. Obvious question, but have you gone the migraine meds route? I'm surprised London wasn't all over a potential migraine diagnosis with you. I can't remember, maybe they were? I know when I mentioned the aurus, combined with the grandmother history, the last neuro oto was pretty sure. Then again, the one before said there was no way of knowing. Don't know when I might give another drug a go. I'm a bit worn down with the drugs route - done three so far and no luck yet. Although I have a friend who was as ill as me and stopped all symptoms with pizotifen - so I guess a part of me keeps hoping one of them might do it.

    Anyway, I presume you're waiting on a referral to London, so hope that comes around soon.

    best,

    hbep
    __________________
    hbep

     
    Old 01-03-2005, 12:51 PM   #14
    ASLme
    Senior Member
    (female)
     
    Join Date: Nov 2004
    Posts: 219
    ASLme HB User
    Re: migraine meds question

    Hbep:
    I was curious which reflux drugs you are on? I am on Aciphex and I guess it doesn't affect me much as far as the headaches go because I just ran out and then a few days later like clockwork my monthly migraine showed up. Foods don't seem to affect me as far as I know (except MSG...that's a big one and it brings on a slammin' headache pretty much right away) I think for me my main trigger is hormones...when I hit 40 they started going wacky...I have never taken any kind of Birth control pills or anything...so maybe they might help at this point? Do you notice when you are having reflux pain that your headache/pressure/dizziness seem to get worse? And also, since Migraine is vascular, do you have any other vascular problems? (I have terrible veins and restless leg syndrome) It is hard to narrow down family history for me since I never knew any grandparents and my mother never had migraine but sister does. But I can count on having one about once a month (last month was wicked bad, when I saw the little blue floating spaceship I knew I was in for it)
    Elisabeth

     
    Old 01-04-2005, 10:48 AM   #15
    moogeneric
    Member
    (female)
     
    Join Date: Oct 2004
    Posts: 51
    moogeneric HB User
    Re: migraine meds question

    Hi hbep,

    I think at this point, if you can't tell whether the exclusion of chocolate and cheese is doing anything, it might be worth slowly re-introducing them into your diet, and see what happens. As I said in the original post, I cut out most of the migraine trigger foods for over a month and a half, and was pretty good about sticking to it. I figured there would be SOME difference after 6 or more weeks of this if these foods affected me in any way, but since I wasn't any better or worse, I nervously and slowly (started off with a slice of cheese on a hamburger one day, a slice of cheese on a sandwhich a couple of days later, etc.) tried everything I used to eat that was on the trigger list, and it was fine. The dizziness is status quo, but it certainly isn't worse. It's been over 2 weeks now since I started eating normal again, and it's been fantastic. I even participated in a cheese and chocolate fondue over christmas. It was delicious. I don't mean to rub it in!

    I just figured I'm already miserable with the dizziness - why torture myself further with a ridiculous diet that didn't appear to be helping? I tried it, and it didn't work for me. So at the very least, I'm going to enjoy this one aspect of my dizzy life, and eat what I want to. I do realize, however, that you have some stomach issues, and maybe it IS helping YOU with your migraines, so that is why I say slowly re-introduce. I dunno.

    The 21 day thing I'm going to do isn't to treat the migraine specifically, but really just to clean out my gut, as it is my chiro's belief that having an unknown problem in the gut could lead to seemingly unrelated problems elsewhere in the body - i.e., my head/dizziness. He suggested doing this as more of a "let's just see if it does any good 'cause I can't think of what else to do with you" sort of a thing. He's into alternative medicine.

    As for the contacts/glasses issue, it took a full week to get used to my new contacts, when I remember long ago when I was normal, it would only take a day or so to get used to new lenses. After my eyes had settled with them, I got my glasses upped to the correct presc too, but I have a difficult time going between the contacts and glasses, so I just don't wear my glasses at all anymore. The upside to that week of adjustment was that I could contribute the dizziness to the new lenses... it was a real, tangible cause, an explanation, even if the underlying unknown original dizziness was mixed in there, I deluded myself, and it was a comfort to be able to think that there was KNOWN cause behind it. Know what I mean?

    Oh well. Apologies for the long post. Your experience with this stuff interests me greatly, hbep, because I think we have many similar symptoms. I'm sorry the meds didn't work out for you... I hope you find something that does soon.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Need other options for migraine medications Delia79 Headaches & Migraines 13 03-27-2011 08:12 PM
    Question about pain after peroneal repair horsebite Foot & Ankle Problems 21 01-27-2011 09:26 PM
    Is this migraine? Danni1979 Headaches & Migraines 10 12-31-2010 08:24 AM
    if you take migraine med please read janart Headaches & Migraines 6 11-03-2008 01:26 AM
    Question for the migraine sufferers lookng4answrs Inner Ear Disorders 41 09-24-2008 09:13 AM
    stop me if youve heard this one...bppv or migraine? Kirb0 Inner Ear Disorders 5 12-15-2005 06:16 PM
    Which Migraine Preventative Meds Don't Cause Stomach Upset?? busymommy Headaches & Migraines 1 10-12-2005 10:25 AM
    head buzzing, zapping, dull pain. migraine? stcarlsen Headaches & Migraines 1 05-25-2005 08:25 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 10:17 PM.





    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!