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  • constant dizziness, 6 weeks now

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    Old 12-23-2004, 08:04 PM   #1
    nc1323
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    Question constant dizziness, 6 weeks now

    Hi to everyone here. Sorry for the long post. It all started 6 and a half weeks ago when I started having brief spells while walking where I felt as if I was falling. Over the course of a week it progressed into a constant feeling. Whenever I lay down or sit up I always always always feel as if im moving. It feels like a tilting or falling feeling and sometimes it even feels as though im turning to my left. So far I haven't felt nausea nor have i vomitted from this. But the feeling is constant, its there all day and night, and as soon as I open my eyes in the morning I feel it. Whenever I walk it feels as if the ground is tilting. Im 20 years old and in college and this has greatly effected my life. During the first week of it I went to my gp who said it was "labyrinthitis" and he put me on antibiotics and clarinex which did nothing. So I went to an ENT who said it was an inflammation of my inner ear, I was put on prednisone which also did nothing to help me. A few weeks later I went back to my ent who now tells me its not an inner ear thing. An mri was done and everything came back normal. Im now awaiting an appointment with a neurologist after the holidays. Ive read so many posts on here which are so similar to mine, and I can completely sympathize with you all. I have also lost 13 pounds unexplainably bc i havent been sick and I eat all the time, im down to 123 so of course this worries me. I feel like my life has been sort of taken over by this thing, and its like no one understands, im pretty sure everyone thinks im crazy even though im positive this is not from anxiety. I just dont understand how I could wake up one day fine and completely healthy and then for the next 6 weeks find myself taken over by constant dizziness and imbalance. The doctors confuse me because if its not an inner ear problem what in the world could it be. The only tests the ent did was the mri, and some blood work which came back negative for anemia and diabetes. Has anyone else had these kind of constant symptoms, and if so what were u diagnosed with? I am really frustrated and I feel like my boyfriend or no one else understands. I read somewhere that a compression of the 8th cranial nerve can cause imbalance and dizziness, has anyone had this and does it show up on an mri? Thanks for any possible advice! Hope everyone has a good holiday.

     
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    Old 12-23-2004, 10:06 PM   #2
    Anastasia
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    Re: constant dizziness, 6 weeks now

    hi

    i can completely realate! i was 19 when all this junk hit me. if it's an inner ear thing, an ENT will tell you nothing. you have to see a neuro-otologist. they are also called otologists, otoneurologists and otolaryngologists. i'm in college too and agree that its brutal in the beginning. my dizziness was more of a brain fog that was constant. i lost 20 pounds and some of my hair fell out just due to stress. it took me a full year to get the proper diognosis. i was told i could have had anything from MS to a brain tumor! there are alot of things that can go wrong with an inner ear (oddly enough) and it's very hard to get a diognosis. just keep pushing.

     
    Old 12-24-2004, 03:12 AM   #3
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    Re: constant dizziness, 6 weeks now

    Hi NC,

    Im really sorry youve been hit by this. Im sure some of the others will step in and give more advice. Unfortunately I have been this way for over 6 years and had no diagnosis, but dont let that worry you, Im sure im in the minority to have had this so long. I have also lost quite a lot of weight with this and like you eat well and am not sick with this, which I cant understand. I know you said your doc had done some bloodwork, has he tested you for thyroid?, an overactive thyroid can cause weight loss. I do sympathize with you, I too have this constantly and also the feelings of falling (that is how mine started). Like Anastasia said you need to see a neuro otologist - that is what Im now working on, not easy in the Uk on the NHS. Where are you from?

    Hope you too manage to have as good a holiday as possible and that you get some answers in the New Year,

    Chris x

     
    Old 12-24-2004, 03:27 AM   #4
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    Re: constant dizziness, 6 weeks now

    Hi and welcome.

    I have labyrinthitis and have done for quite some time and your symptoms are familiar to me. I cant say what you have though I can say those can v much be inner ear related. I saw an ENT first and I must say mnay ENT's do know what they are doing with inner ear stuff- depends who you see - it's not easy to see an neurotologist but if you can, perhaps try to. I would see the ENT first though. Normally the neurotologists are visited by people who have had the problem for a long time.

    The 8th cranial nerve thing - yes you can get dizziness with this and its kind of inner ear related- not sure on this one - subs?

    Try not to worry. xxx

     
    Old 12-24-2004, 05:08 AM   #5
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    Re: constant dizziness, 6 weeks now

    The 8th cranial nerve is what carries signals to/from the vestibular system (balance organs within the inner ear), obviously compressing that nerve (whether by a vein or trauma) can cause dizziness and vertigo. However, it is pretty rare, and unlikely to appear in the way your problems did, which is more likely to be caused by one of the more common complaints such as an inner ear infection ("labyrinthitis") or BPPV, so nerve compression is not something that I would worry about at this stage (unless you had major trauma before it started, or facial paralysis etc) . I presume the ENT sent you for a full battery of balance testing?

    ENTs aren't generally the experts in this field, as it is way outside of knowledge, you really need to get yourself to a specialist balance clinic or a neurOTOlogist (doctors who specialise in the inner ear, not to be confused with neurologists).

    Last edited by BennyGibb; 12-24-2004 at 05:09 AM.

     
    Old 12-24-2004, 08:20 AM   #6
    nc1323
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    Re: constant dizziness, 6 weeks now

    Thank you all for your posts. Im a female from North Carolina. The only thing the ENT did was a hearing test which came back normal and they looked in my ears. I have had no other tests done minus the MRI. They are referring me to a neurologist next week, and if that is no help either Im definately going to try and find an neuro-otologist. I dont see how my ent ruled out an inner ear problem when they didnt do any tests? Have any of you had a caloric test done and if so did it show you had a problem? One thing I forgot to mention was that prior to my dizziness my ear kept popping, and when I would talk my voice sounded all distorted in that ear. It did this for weeks, and then the dizziness started. When I was on the steriods my left ear was constantly making that sound but now it has stopped. The ent never explained what this could be. My dizziness doesnt seem to be related to head movements since its constant, and when I lie down I feel it no matter which side I lay on. But it does feel as if the movement is towards the left side of my body, and since it was my left ear popping I naturally assumed this was an inner ear thing. BTW about the weight thing my mom has a thyriod problem but to my knowledge I havent had mine checked yet (they did bloodwork but didnt mention testing my thyroid) , but I read on the net that Hyperthyroidism can cause vertigo and weightloss. If anyone has anymore suggestions that would be great. Hope everyone has a Merry Christmas and a Happy New Year.

     
    Old 12-24-2004, 09:24 AM   #7
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    Re: constant dizziness, 6 weeks now

    Yes Ive had a caloric test (yest) and yes it showed a problem. There are many on here who have had the same.

    About the thyroid thing...They initially checked me for thyroid as they thought I could have a problem - though I havent...yes it can cause dizziness (tho is more of a lightheadiness nt vertigo) - the weight loss thing seems a bit strange if yoive been eating normally so I would def get blood tests done.

    xx

     
    Old 12-24-2004, 10:04 AM   #8
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    Re: constant dizziness, 6 weeks now

    Hi

    I'm sorry to hear you have these symptoms. I've had the exact same symptoms for over 5 months. I feel like I'm falling when I walk and stand still. And when I sit still I feel like I'm constantly moving.

    I've seen 3 ENT's and a neurologist and its only the latest ENT that has said theres a problem and ordered tests. Goes to show what ENT's are like.

    I've been trying to get referred to a neurotologist...and I'm hoping to get a referral after xmas..but thats not definate. From all the advice I've been given from the great people on here..I would say a neurotologist is the way to go.

    I was prescribed Stemetil which did nothing and now I've started taking Betahistine because I need some relief...I'm still waiting for the slightest bit of relief.

    Keep us informed of how everything goes. If you need any contact info for neurotologists...just let me know.

    Have a nice christmas!

    Kelly

     
    Old 12-24-2004, 02:07 PM   #9
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    Re: constant dizziness, 6 weeks now

    i was checked for a thyroid problem too because it runs in my family and everything was negative. i agree that getting a neurotologist is brutally hard. luckily for me there was one in my city. they are definately the way to go. a chloric test/ENG will be able to detect a problem in most cases (apparently it's only about 75% accurate) but it's better than nothing! hope everyone has a happy christmas.

     
    Old 12-25-2004, 10:54 AM   #10
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    Re: constant dizziness, 6 weeks now

    Quote:
    Originally Posted by nc1323
    I feel like my life has been sort of taken over by this thing, and its like no one understands, im pretty sure everyone thinks im crazy even though im positive this is not from anxiety. I just dont understand how I could wake up one day fine and completely healthy and then for the next 6 weeks find myself taken over by constant dizziness and imbalance. .

    I went running on Saturday, Gave a presentation at Church on Sunday, then Sunday afternoon Whammo, I was dizzy all the time. It can hit that suddenly, and it does take over your life.

    Balance is a priority signal to the brain. It is very important to not fall down, so the brain spends a lot of time looking at signals related to balance. Few creatures other than humans can stand on one foot, delivering a game winning kick with the other! So if the balance mechanism is sending crazy signals, it just takes up all your attention! Makes that Brain Fog people talk about. I get SO confused sometimes.

    Nobody really understands either. I was fired from a job for being dizzy, when they should have put me on disability. It really affect s your life, and this is one of the few places we get to complain about it to sympathetic ears (pun intended).

     
    Old 12-25-2004, 08:00 PM   #11
    nc1323
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    Re: constant dizziness, 6 weeks now

    I cannot believe they fired you for your illness, im so sorry. It does take over your life. I hate it when people ask me hey are you still dizzy, and then when you reply yes they look at you like your some kind of a freak. It is so hard to explain this disorder to people who completely dont understand. This forum has been a great sense of support thank you all.

    I have just one more question, for those of you with prolonged dizziness has it ever gotten better, and if it hasnt and its from an ear problem has your doctor suggested any treatment. I dont mean being packed with pills. I read somewhere on the net that if a person suffers from dizziness the nerve in your inner ear or whatever its called can be killed by injecting it with toxic antibiotics or the nerve can be removed? Has any of your doctors suggested this as a solution????

    Until next time, take care!

     
    Old 12-26-2004, 04:25 AM   #12
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    Re: constant dizziness, 6 weeks now

    Hi there

    I've had constant dizziness for nearly 6 months now. Mine has got worse as time has gone on. I remember a time when I was able to go out places and although I felt dizzy...I could put up with it. Now its hell on earth doing anything.

    I was prescribed Betahistine for my dizziness and pressure build up...but it hasn't helped so far. Until I get a diagnosis I can't have any treatment. Vestibular exercises have been mentioned...but I need to wait for a diagnosis.

    Hope this helps

    Kelly

     
    Old 12-26-2004, 05:11 AM   #13
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    Re: constant dizziness, 6 weeks now

    What you describe about the nerve being killed etc will happen V V rarely in EXTREME cases. It is not something to be taken lightly and can often make you much worse.

    I have been dizzy 2 years with left inner ear damage - VRT is the key - Vestibular Rehab Therapy - not medication - for this disorder anyway - as the brain must compenate and cannot do so when sedated with drugs. If you have inner ear dysfunction from labyrinthitis or BPPV, then VRT is what you need. That and time and mental support, is the only "cure".

    xxx

     
    Old 12-26-2004, 06:52 PM   #14
    nc1323
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    Re: constant dizziness, 6 weeks now

    Hi Crazylabyrinth,
    Thanks for your reply. Sorry youve been suffering for so long. If you dont mind I have a few questions. Has your dizziness been completely constant or have your had periods where you felt normal again? What have you been diagnosed with if you have been? And what kind of exercises can you do to help with this problem? Hope you get to feeling better soon.

     
    Old 12-27-2004, 08:13 AM   #15
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    Re: constant dizziness, 6 weeks now

    Hi there - my dizziness has been constant for 2 years - I have been diagnosed with left inner ear damage from labyrinthitis. I am doing VRt but I cant really advise you on here as you need to have individualised VRT from a professional as this works best. I'd recommend you ask to see a VRT physio. xxx

     
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