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  • 1st appt with U of Penn Balance Center - any advice?

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    Old 11-11-2005, 02:35 PM   #1
    6Blues
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    1st appt with U of Penn Balance Center - any advice?

    Hi everyone.

    I've been reading a lot of the posts here. I'm learning a lot but I am also still confused. LOL!

    I have 2 appointments at the Univ. Of Penn: the first one is for balance testing, the second one is a follow-up with Dr. Li to go over the test results.

    I'm looking forward to it but I find myself getting my hopes up that I'll walk away with answers and more importantly ... RELIEF!

    My symptom over the past 2 years are:
    > Oscillopsia so bad that I can't stand it another minute; everything jiggles so bad!
    > Ears are full; I have to hold my nose to "pop" them
    > Disorientation/brain fog/spaciness/drunk feeling 24/7
    > No sense of balance at all
    > Can't walk in the dark at all
    > No ringing, no floaters, no auras, position does not affect symptoms

    Anyone have any of these symptoms? What did you do for them?
    What tests do they run?
    Has anyone gotten help there?
    Any advice?

    Thanks!
    Mickie

     
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    Old 11-11-2005, 06:21 PM   #2
    Subs30
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    Cool Re: 1st appt with U of Penn Balance Center - any advice?

    Hi Mickie

    Your headed to the right place....there are thought to be three centers of excelence...in this(inner ear) area on the east coast...Univ of Penn---John Hopkins...and Boston....John Hopkins...does it...but leans more to hearing...Boston...is good but kind of broad in scope...Univ of Penn is very focused on vestibular injuries/balance issues...

    The web site for the Univ of Penn Balance Center is:

    http://pennhealth.com/ent/balance/

    there is a lot of info on what they do/how they do it and what to expect...goes down...like u said....one day test...followed by analysis/explanation/treatment next day(or visit)....

    The article "chronic dizziness" in the Information Archive Post(first one on the board---sticky) was authored by the director of the Univ of Penn Balance Center Dr Shepard....take a look at it....answers a number of your questions...

    As to the symptomus...u listed...most people here have had one or more of them..and there is a lot of overlap between them...do to the nature of an inner ear(vestibular) injury....which is the reason for the tests...to sort it out...

    The Univ of Penn Balance Center tests are located at:

    http://pennhealth.com/ent/balance/appointments/test.html

    Not sure that is all inclusive...if you go to the info archive post...for BPPV and once there(that is the Northwestern Univ web site for Dr/Prof Hain) and search on vestibular test...you will see all the possible tests...that can be run...for this type of problem---with a description of what there about...

    There are two Dr Li on staff---assume this is the one u will see:

    http://pennhealth.com/Wagform/MainPage.aspx?config=provider&P=PP&ID=95 92

    Yes--I have gotten help from the Univ of Penn Balance Center...I saw Michael J. Ruckenstein, MD

    As for advise...if you have not received the questionnaire---to fill out...it is located here:

    http://pennhealth.com/ent/balance/appointments/

    then scroll down to:

    "To view and print the questionnaire in PDF format, click here"

    its a PDF file.....

    Just try to be precise---with ur symptoms---the questionnaire should help...there....they see a lot of people...with ur symptomus...they will know..they their importance...and along with the tests results should...be able to give u a good idea of what the prob is...and...a treatment for it....

    Never saw Dr Li....but Dr Ruckenstein---knew what he was talking about...and...provided no false..expetations...for me it was a long journey...they will be straight with u I would expect....

    Like I said...ur headed to the right location.....


    Last edited by Subs30; 11-11-2005 at 06:22 PM.

     
    Old 11-16-2005, 12:07 PM   #3
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    Re: 1st appt with U of Penn Balance Center - any advice?

    Quote:
    Originally Posted by Subs30
    Hi Mickie

    Your headed to the right place....there are thought to be three centers of excelence...in this(inner ear) area on the east coast...Univ of Penn---John Hopkins...and Boston....John Hopkins...does it...but leans more to hearing...Boston...is good but kind of broad in scope...Univ of Penn is very focused on vestibular injuries/balance issues...

    The web site for the Univ of Penn Balance Center is:

    http://pennhealth.com/ent/balance/

    there is a lot of info on what they do/how they do it and what to expect...goes down...like u said....one day test...followed by analysis/explanation/treatment next day(or visit)....

    The article "chronic dizziness" in the Information Archive Post(first one on the board---sticky) was authored by the director of the Univ of Penn Balance Center Dr Shepard....take a look at it....answers a number of your questions...

    As to the symptomus...u listed...most people here have had one or more of them..and there is a lot of overlap between them...do to the nature of an inner ear(vestibular) injury....which is the reason for the tests...to sort it out...

    The Univ of Penn Balance Center tests are located at:

    http://pennhealth.com/ent/balance/appointments/test.html

    Not sure that is all inclusive...if you go to the info archive post...for BPPV and once there(that is the Northwestern Univ web site for Dr/Prof Hain) and search on vestibular test...you will see all the possible tests...that can be run...for this type of problem---with a description of what there about...

    There are two Dr Li on staff---assume this is the one u will see:

    http://pennhealth.com/Wagform/MainPage.aspx?config=provider&P=PP&ID=95 92

    Yes--I have gotten help from the Univ of Penn Balance Center...I saw Michael J. Ruckenstein, MD

    As for advise...if you have not received the questionnaire---to fill out...it is located here:

    http://pennhealth.com/ent/balance/appointments/

    then scroll down to:

    "To view and print the questionnaire in PDF format, click here"

    its a PDF file.....

    Just try to be precise---with ur symptoms---the questionnaire should help...there....they see a lot of people...with ur symptomus...they will know..they their importance...and along with the tests results should...be able to give u a good idea of what the prob is...and...a treatment for it....

    Never saw Dr Li....but Dr Ruckenstein---knew what he was talking about...and...provided no false..expetations...for me it was a long journey...they will be straight with u I would expect....

    Like I said...ur headed to the right location.....

    Hi Subs!

    How are you?

    I'm doing better... been busy...

    I saw Dr. Ruckensyein too... but I didn't like him...

    Did he tell you to do anything after you were given the epley?

    After the epley, he said to sleep and do whatever I did before I woke up and had bppv come into my life.

    He said that he tells his patients that there's no need to follow any directions, as to sleeping upright for 48hrs and then not bending for a week, etc... that all this is a fib... what do you think?

    Did you follow any specific directions after the epley was performed?

    Still 100%?

    No more brain fog or a strange feeling when you lay on the affected side?

    Hope someday I can get there too... still thankful for coming this far ^.^

    Thanks for all your help!

    Can you believe it's Thanksgiving next week?

    What are you doing?

    Hope you have a great Holiday!

    maryanne-k

     
    Old 11-16-2005, 12:14 PM   #4
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    Re: 1st appt with U of Penn Balance Center - any advice?

    Quote:
    Originally Posted by 6Blues
    Hi everyone.

    I've been reading a lot of the posts here. I'm learning a lot but I am also still confused. LOL!

    I have 2 appointments at the Univ. Of Penn: the first one is for balance testing, the second one is a follow-up with Dr. Li to go over the test results.

    I'm looking forward to it but I find myself getting my hopes up that I'll walk away with answers and more importantly ... RELIEF!

    My symptom over the past 2 years are:
    > Oscillopsia so bad that I can't stand it another minute; everything jiggles so bad!
    > Ears are full; I have to hold my nose to "pop" them
    > Disorientation/brain fog/spaciness/drunk feeling 24/7
    > No sense of balance at all
    > Can't walk in the dark at all
    > No ringing, no floaters, no auras, position does not affect symptoms

    Anyone have any of these symptoms? What did you do for them?
    What tests do they run?
    Has anyone gotten help there?
    Any advice?

    Thanks!
    Mickie
    Hi Mickie,

    I've been to Upenn too and met with Dr. Ruckenstein...

    At Upenn there is only one doctor who specifically has more interest and experience in inner ear, dizziness, vertigo, etc... and that's Dr. Ruckenstein.

    The ent department only advises new patients with any ear, vertigo, dizziness, unbalance problems to Dr. Ruckenstein...

    You should call back and reschedule with Dr. Ruckenstin.

    I hope you get better and the tests aren't bad, first they give you a hearing test and check if the pressure in your estucian tubes are normal, and then if further needed, you would get a balance test, and an eng test...

    Don't worry, everything will be ok...

    Supposedly Dr. Ruckenstein had Bppv once in his life and after an epely was performed he never got another vertigo attack, and thatw as 5 years ago... ask him about that... he'll help you...

    maryanne-k

     
    Old 11-17-2005, 04:58 PM   #5
    6Blues
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    Re: 1st appt with U of Penn Balance Center - any advice?

    Thanks maryanne-k! I'll reschedule so that I meet with Dr. Ruckenstein.

     
    Old 11-18-2005, 09:35 PM   #6
    maryanne-k
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    Re: 1st appt with U of Penn Balance Center - any advice?

    Quote:
    Originally Posted by 6Blues
    Thanks maryanne-k! I'll reschedule so that I meet with Dr. Ruckenstein.
    Hi Mickie,

    Hope everything goes well... don't worry...

    take care

    maryanne

     
    Old 12-06-2005, 12:32 PM   #7
    boxgirl73
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    Re: 1st appt with U of Penn Balance Center - any advice?

    what is an epely?

    and what is involved in an ENG test?

    thanks.

     
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