It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Inner Ear Disorders Message Board

What is this?? Opinions please!

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 12-10-2005, 06:05 PM   #1
Join Date: Oct 2005
Posts: 61
dizzymommy HB User
What is this?? Opinions please!

Sorry for the long post, but any opinions would be GREATLY appreciated .

Looking for anyones opinion as I'm at the end of my rope here...again...
It began in January 05 as I woke up one night feeling really dizzy on my left side, I turned to my right side and it didn't go away I sat up and opened my eyes and everything in the room looked like it was jumping in and out at me. It stopped a few minutes later. The next day and for a month after I was really dizzy. I was pregnant at the time and the doctors chalked it up to hormones and "get some rest". The constant dizzies went away but I had frequent dizzy spells. Toward the end of my pregnancy my head constantly felt like it was spinning especially when sitting or standing still. Laying down was the only thing that helped.
After my baby was born in July three nights of no sleep followed by five months of lack of sleep really set me off. Long story short, here are my symptoms..

Feeling like I'm walking through space
Right leg feels as if I just took off my rollerblades and now it feels really light (if that makes any sense). Not numb or tingly but like I have to concentrate to make it move when walking because it feels so light. I find myself curling my left toes when walking. Also my left arm often feels like this. I have control, but it feels like they are in space.
Constant spinning head feeling especially in the back
Blurry vision sometimes especially when dizziness is worse.
Things look like they are moving back and forth.
Constant head pressure especially at the top of the left side of my head.
Left ear clogs when I blow my nose.
Left ear sounds like tinfoil being crinkled when I hear loud noises such as people talking loud or my baby crying.
Head feels like it's being pushed back and forth when I lay down.
When upright head feels like it's going back and forth and actually physically does move back and forth, very disturbing. Sometimes in bed the feeling moves down my neck and left side of my back.
Constant fatigue. The more I do, the more tired I am. Feel like I could sleep for days.
Anxiety from all of this along with controlled depression from not being able to get out of the house by myself except to go on short walks with my baby.
Every time I think it's getting better, it creeps up again, arghhhh.

Started Lexapro about 1.5 months ago which has significantly helped the depression and most of the anxiety and some of the dizziness, but the rest remains. MRI results normal. ENT visit worthless, said she didn't think it was my ear. After the deppresion and anxiety creeped in doc said "postpartum deppresion". I say "post-dizziness depression".

Can't decide if it's ear or migraine or something entirely different.
I know this is a long post with a lot of symptoms but any advice or opinions would be GREATLY appreciated.

Thanks a bunch .

Sponsors Lightbulb
Old 12-11-2005, 01:23 AM   #2
Senior Veteran
Join Date: Jan 2003
Location: UK
Posts: 1,480
hbep HB Userhbep HB Userhbep HB User
Re: What is this?? Opinions please!


I'm obviously not a doctor but to be honest you sound like you have either a condition called vestibular neuritis/labyrinthitis, or alternatively migraine associated vertigo. If you put migraine in to the advanced search on this board it will bring up loads of info on the latter condition. I also strongly suggest you read a recent thread on the first page of this board entitled 'Could this be?' where I wrote a lot about MAV to another poster who interestingly also became dizzy during her pregnancy.

General doctors tend to often be less than useless when it comes to dizziness. This also goes for ENTs who do no further training in to the inner ear. You wouldn't believe how many people who are diagnosed with inner ear of vestibular migraine disorders came away from an ENT with a duff - there's nothing wrong with you diagnosis. Or alternatively an anxiety diagnosis - that's another hot favourite with ENTs and general practitioners if people say they are dizzy. You need to see a doctor called a neurotologist (different from a neurologist) they are specialists in the inner ear who do a further 3 yrs training on top of ENT training. They will see people with your symptoms every day - many people on this board who have got nowhere with regular docs and ENTs finally get answers from a neurotologist. They can run tests, ascertain what's causing this and can treat you. They also understand how debilitating dizziness disorders can be.

The fact that you get migraines anyway could be mean that the pregnancy triggered an escalatation in the migraine and caused it to devolve in to a more constant pattern of headaches and also vertigo/dizziness. There is a good article on MAV on the net by Robert A battista, if you put his name in a search engine you will find it.

Ignore the fact your ent said it wasn't your ear (the rubbish they talk is beyond belief sometimes - I saw 2, both useless, wondered why they bothered turning up to work) I eventually saw a neurotologist and was diagnosed with peripheral vestibular damage plus migraines. If you're in the States I've often heard people say it's best to be seen at one of the big balance centres of excellence. Someone may be able to point you in the right direction. If you're in England I can tell you where to be seen.


Last edited by hbep; 12-11-2005 at 01:28 AM.

Old 12-13-2005, 03:25 PM   #3
Join Date: Oct 2005
Posts: 61
dizzymommy HB User
Re: What is this?? Opinions please!

Hbep, Thank you os much for your thorough response. I go back to my GP on Friday and I am going to ask to see a neurologist. I'll see what the neuro says and if need be, then see a neurotologist as I believe the closest one is about 3 hours away at a major university here (in the states). How are you fairing after three years? Are you taking medicine that has helped or doing VRT? I'll look up that name for the migraine. Thanks again for the info!!

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
What role does self.... evy38 Relationship Health 12 06-20-2010 12:16 PM
Ok if this can be labelled "normal" then what is labelled "crazy?!" samcunningham Depression 2 08-13-2006 06:59 AM
worry,worry, worry.........what a waste of life!!!!!!! ashley2232 Obsessive Compulsive Disorder (OCD) 8 03-09-2006 06:57 PM
what about cruel treatment?? laurie864bla Relationship Health 33 02-04-2006 09:11 AM
What's The Difference In The Types Of Fusion Surgeries? Tifferzz Back Problems 7 12-06-2005 11:05 AM
What do you suggest - a little feeback, please Hiya Relationship Health 71 10-15-2005 03:49 PM
What's A Friend To Do... Part III BLUE EYED LADY Relationship Health 145 09-01-2005 08:56 AM
What to do..opinions would be great! blonde_girl Relationship Health 12 08-19-2005 04:43 PM
psychiatrist too expensive!!! - what should I do? abcdabcd Anxiety 10 12-08-2004 06:09 PM
Screwed & in full W/d' what!?!?!? DJJester Addiction & Recovery 12 08-30-2004 08:13 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:48 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!