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    Old 02-18-2006, 05:29 PM   #1
    comeandrelax
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    really lightheaded

    hello

    ive had this inner ear infection for 5 months to the day. ive started feeling alot better and am left with just really bad lighthead feeling and its driving me crazy. does anybody else have that as a main symptom? its just a spacey weird off feeling. the pressure has stopped....no ringing in ears....no fullness. those have all stopped.

    one more thing is that i get these bad panic attacks just out of no where. almost for no reason. when i have them i feel like i can't breathe and that i need to get out of the place that i am at. i noticed that for some reason i calm down when i chew on gum or like a candy. it really works....try it out.

    any thoughts?

    chris

     
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    Old 02-19-2006, 01:06 AM   #2
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    Re: really lightheaded

    Hi there Chris,

    I`ve had an ear disorder for nearly 13 yrs now and my main symptom is lightheadedness, feeling like I am going to faint. I also chew gum, every day infact and yes it does help to take your mind off of the lightheadedness. I have a cold at the moment and was in a shop the other day waiting at the till and I really felt as if I was going to pass out, almost had to drop what I wanted to buy and leave the shop.

    Have you tried VRT yet? It seems to help a lot of people. I watched the video about it the other day (there is a link in the sticky archive) and it was very helpful. I also find that breathing exercises can help too.

    Hope you will feel better soon,

    //(*_*)\\ Sally

     
    Old 02-19-2006, 03:56 AM   #3
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    Re: really lightheaded

    Hi Chris

    The panic attacks and anxiety are caused by the Labyrinthitis, as they reckon that the balance nerves etc control the anxiety levels in your body so almost everyone who has this illness suffers from anxiety at some stage. Good news though, it does go. I am not at all an anxious person, no more worries than anyone else, but I suffered terrible anxiety when I caught Labs last year. As I got better the anxiety faded away until it went completely. The recovery process is very slow and I am having a bit of a setback at the moment because I have had a really bad cold. I have been really off balance the last few days but realise this is a normal reaction.

    I also chew gum when I am out and about and start to have symptoms (I do not consider myself fully recovered yet after 15 months but I live a pretty normal life now), and I find that it really does help me. Seems silly but it seems to make me feel more confident and it does take your mind off it! I have chewed more gum in the last few months than I have ever chewed in my life!

    Mac2

     
    Old 02-19-2006, 07:15 AM   #4
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    Re: really lightheaded

    funny...thought i was the only wierd one that chewed gum....it does help;....clerarly it's an anxiety reducer...xanax would do the same.

    hope you're feeling better soon all...i've been dealing with this symptom (really the only thing that tells me i'm sick) since sept.

     
    Old 02-19-2006, 10:28 AM   #5
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    Re: really lightheaded

    thanks for the replies

    wow 12 years is a long time! im assuming you did all the tests and everything to see whats wrong. i would look into the migraine thing cause you don't even have to have a headache for that to be true. silent migraines are possible. and if thats the case your lucky cause those suck!! my mom gets those.

    im gald im not the only one who chews gum and eats candy to feel better. who knows why it works it just does! i think i might also have tmj problems because i chewed gum non stop when i 1st got this and my jaw and temples would kill when i did. that stuff went away after i stopped.

    mac2
    did your labs start off with a true spinning thing or just off balance? mine started with just off balance and got worse and then peaked. then stuff slowly started going awaya dn now im left with lightheadand still alittle off balance or wozzy in the head sometimes. when did you notice improvement?
    did you do vrt?

     
    Old 02-20-2006, 02:09 AM   #6
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    Re: really lightheaded

    Hi Chris,

    Yes, I`ve had all the tests which showed damage to the inner ears, one a bit worse than the other apparently. I think that I haven`t compensated,(apart from briefly for 2 secs a few yrs ago), due to stress and not being able to keep up with the VRT.

    I started again before Xmas though, and hope to keep it up this time. If I had a small improvement, even if only for 2 secs, then there is a bit of hope I guess.

    Best wishes to you,

    //(*_*)\\ Sally

     
    Old 02-20-2006, 02:49 AM   #7
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    Question Re: really lightheaded

    Hi,

    My Labs did not start with spinning vertigo and I have never experienced this sensation. I also have never suffered any deafness. Mine started with lightheadedness for a few months and then I caught gastoentritis and I started to suffer dizziness and was off balance for a couple of months. The off balance feelings went away but the dizziness stayed all in all for a total of 5 and a half months at which time I felt well enough to go back to work. From the start i.e. lightheadeness,when I was told by a doc it was my inner ear, to going back to work it was a period of 10 months, though I was only really ill for the 5 month period, and I have been back to work for 6 months. When I was off work, at my worst, I also had terrible anxiety, at first I could not watch TV or use the phone or indeed concentrate for long enough to talk face to face with anyone. I was very noise sensitive and still can be some days. Since I have returned to work I have not suffered from dizziness but have been slightly off balance all that time. Some days I am absolutely fine and I did go for a period of 5 weeks with barely no symptoms at all. Two weeks ago however I caught a bad cold and the off balance feelings were horrendous, I could not even stand up properly. This lasted for 2 days and has eased off considerably since then (last Thurs/Fri), but I still feel off kilter. This is a normal reaction to your body fighting a virus and being under stress.

    Yes, I have done VRT but only stuff I got from the internet and I do think it helped immensely because I was back to work after 5 months. I don't do it now but maybe I should to get rid of the rest of it! I am due for Rehab at the ENT next month where they will devise some VRT especially for me, so I think I will wait until then cos maybe I could be doing the wrong ones!

    All in all I am much happier with my life at the moment compared to last year, though it does still depress me when symptoms come on stonger.

    Take care

    Mac2

     
    Old 02-20-2006, 09:33 AM   #8
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    Re: really lightheaded

    mac2

    hey so your on month 10? when you say you go 5 weeks with little or no symptoms when did that start? i just started month 5 and im not off balance anymore....never was really off balance....never felll or felt like i was going to. just wozzy head and kinda like the boat is in my head and not under my feet.

    why don't neurologist and other docs tell you this may take this long? i just keep being told....don't worry this will pass soon. my girlfriends grandma was the 1st one to tell me that this might take months rather than weeks. some days i feel like i might be getting better and some times during the day i feel like this is never going to go away.

     
    Old 02-21-2006, 06:19 AM   #9
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    Re: really lightheaded

    Hi Chris,

    Yes I am in month 10 if you don't count the previous 5 months of lightheadedness before I fell really ill with it, otherwise it's month 15!

    The five week period where I had barely any symptoms was just before I caught the cold two weeks ago, so you could say month 8/9 from my worst attack.

    My off balance problems have been much worse since I caught this cold and have been very scary. I was sent home from work last Friday and didn't go in on Saturday. I only work three days a week and don't think I will be in this week. It's a very strange illness in the way the symptoms can change.
    I was fine on Sunday and went shopping to one of our indoor centres for three hours. Had my husband and daughter with me for support but I was absolutely fine. Next day I wanted to take my youngest to the cinema as she is on half term from school. I had been feeling a little off balance before we went but nothing I couldn't handle. Luckily my husband was with us because we were going for lunch first. I got into the Burger bar, joined the queue and nearly keeled over there and then, grabbed onto my husband, burst into tears and had to be supported all the way back to the car. Today, I have been to do the weekly shop with my son and daughter for support and managed to stay there for 2 hours, a little wobbly but not too bad. They reckon this will last a couple of weeks, so fingers crossed! I just need to know why it feels worse than my previous balance problems? Before, I was off balance but never felt like I was going to fall right over. This time I feel like I am going to hit the deck, I kind of lurch to the side, very scary!

    You are right in saying that the doctors tell you nothing. I think that is because they do not know anything! That is the general feeling I got. I saw five doctors on different occasssions in the early days and they all wanted me to keep on taking the stemetil, take as many as you like for as long as you like! Only from doing my own research did I realise that you should not take these drugs as they do not help you to compensate. I was lucky in the fact that one of my doctors did know something about it and got me referred straight away, and he would not prescribe me stemetil and said I must not take any more of the stuff I did have. But, I know that lots of people are not so lucky and go on for years trying to get an answer. I have a friend who is into year 3 and they tell her it is all in her head. Well, it is literally, but poor thing has not been referred for any treatment and was gobsmacked when I told her that I have my Rehab appointment for next month! Mind you the doc I am seeing at the ENT, although he is supposed to be the dizzy expert there, has not really told me much about this thing. You would think they would sit you down and explain what is happening to you but that is not the case. He answered my questions but you get the impression that you are just another statistic! I f I had not done my own reasearch, I would have come out none the wiser.

    Rest assured though, you are having good days now and things will keep improving. I was at the same stage as you, starting month 5, when I noticed a change. Gradual at first and then it would be "hey, I haven't felt dizzy in three days". It kinda creeps up on you! I got a lot more confident at this stage and the anxiety started to fade away. By 5 and a half months I was ready to go back to work, though I hadn't even done any shopping on my own at the time I went back to work. I knew I was with freinds and they would help me if anything happened.

    It is an amazing feeling when yo have got back into normal activities to look back over your day and think "hey, I did ok there!". Even at this stage there are things I still haven't done i.e. go to the hairdressers. I had a couple of really bad turns in there and can't ever see myself going back. And, no my hair is not all over the place, I have a friend who does it for me at home!

    I also don't socialise a lot now, can't stand the noise! Just like to go for a quiet meal, or the cinema, though sometimes I have to wear earplugs in there because my symptoms start. But, I get by that's the main thing.

    As long as you have the support of your family and friends, you get by.

    Take care.

    Mac2

     
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