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    Old 06-24-2007, 08:59 PM   #1
    studyin
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    Just got hit with BPPV

    Hi Subs and all,

    Can't believe it but this morning when I woke up I was lying on my right side, turned to the centre looking up at the ceiling and WHAM. Major spinning vertigo and nystagmus with my eyes beating to the right. I haven't had this for 2 years (just that one time 9 months post VN) and this version was far worse this morning. Any head movement, created instant vertigo for a while.

    So I got down to business and did the MEP (for the right side) as Michelle mentions - ie, waiting for the spinning to stop and then holding the position for a further 30 seconds. All positions were *very* rough going with a build up of vertigo and eyes beating, peaking, and then it would drop (fatigue?) to near zero until the next move.

    Subs, not sure if I've been dealing with this all along on a more subtle level or whether migraine triggers it as is known to happen. At least this part of the story is treatable.

    So another fun day in vestibular land.

    Scott

     
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    Old 06-25-2007, 02:10 AM   #2
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    Re: Just got hit with BPPV

    Subs,

    Just did the second MEP for the day ans noticed position 1 and 3 were much better although I still had all the movement going on. Position 2 - moving my head from 45 degrees right to 45 left caused the biggest spin but again about 75% of this morning. Does this all sound normal to you and anyone else out there who's been using this (Terri?). Man, what a piece of work this is. Relentless.

    Thanks....Scott

     
    Old 06-25-2007, 05:29 AM   #3
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    Re: Just got hit with BPPV

    Thanks Subs

    I really hope this thing today was a nice fat clue as to what has been plaguing me so much. Yeah, there is definitely the fatigue thing going on. Looks like VN definitely hosed the right ear - nice job. Well I just hope that this is most of the problem because it is obviously curable.

    I'm certain I have the correct ear as beating is to the right, it started after lying on the right side while sleeping, then went nuts turning to centre and, finally, Michelle states that if in position 1 I get a spin (facing right in my case) then it's the right ear.

    I'll keep at it.

    Scott

     
    Old 06-25-2007, 02:03 PM   #4
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    Re: Just got hit with BPPV

    Subs30:
    Scotsman's symptoms sound like mine (without the nausea and headache).

    You mentioned being sure of which ear it is.

    I have thought mine was in the right ear, cause major attacks triggered when I have had head down on the right side. But I put my head down on the left pretty flat and spinning started then. So now I am confused.

    I have about three posts asking about what happens if it is both ears. I am so trying to get a handle on this thing.

     
    Old 06-25-2007, 02:31 PM   #5
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    Talking Re: Just got hit with BPPV

    Quote:
    Originally Posted by curiouscat02 View Post
    Subs30:
    Scotsman's symptoms sound like mine (without the nausea and headache).

    You mentioned being sure of which ear it is.

    I have thought mine was in the right ear, cause major attacks triggered when I have had head down on the right side. But I put my head down on the left pretty flat and spinning started then. So now I am confused.

    I have about three posts asking about what happens if it is both ears. I am so trying to get a handle on this thing.
    Hi Curiouscat

    If ur talking in relationship to the MEP---it is the ear---when first down(right ear in Scott's BPPV)---that you get a latency and then a fatiguing from/in---in the first position of the MEP..

    It is possible to have BPPV in both ears....but not to likely.....


     
    Old 06-25-2007, 06:43 PM   #6
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    Re: Just got hit with BPPV

    Hi Subs,

    Things are really much worse this morning. I woke up feeling the nausea and vertigo again and nearly fell over going to the toilet. So I went back to bed and ran through the MEP. Position 1 was bad but not 2 this time. Position 3 caused my eyes to beat downward and slightly right but more down. Then I sat up and all hell broke loose. I've never felt so dizzy and nauseous in my life man. I'm now writing this to you sitting straight up in bed and not budging. Any head movement whatsoever causes intense motion sickness.

    What do you think has happened Subs? I would have thought it would be getting better but then maybe the ear rocks are not in the right side only or are in both. No idea.

    Think I'll try and stagger up to the doc and try and get an expert opinion somehow.

    Is this how you experienced it at its worst? This is really horrific stuff.

    Scott

     
    Old 06-26-2007, 10:38 AM   #7
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    Re: Just got hit with BPPV

    Holy cow Scott!!! What a bummer
    Everything you describe sounds par for the course, however, as Subs has said. I hope you get to the doc soon.

    Terri

     
    Old 06-26-2007, 05:19 PM   #8
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    Re: Just got hit with BPPV

    Hi Terri,

    Holy %$#@ is right - now I really know what you guys were talking about. This is a very different beast to the VN one ... so much more intense, yet the duration is short. Still it leaves one hell of an impression. Now I know why yoga is something you can do without.

    As per the docs instructions I did no MEP last night, woke this morning and feel ok. I definitely didn't move my head much at all in the night so no doubt the rocks are quite stationary.

    I'm thinking I'll leave this for a few days then give the MEP a go again to see if it's easier to get through. The fact that position 2 caused no effect yesterday but did the day before suggests that the rocks are moving around at least.

    The doc took my BP yesterday and it was 145/90 - really high! But said that was understandable given the stress on the body ... but still he was concerned saying that high BP would explain the worsening of the vertigo yesterday morning. I've never heard anyone mention that before and wonder if it's an accurate statement?

    Just can't believe the madness of these last 2.5 months when things were so stable.

    Scott

     
    Old 06-28-2007, 07:04 PM   #9
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    Re: Just got hit with BPPV

    Scottsman-
    I am so sorry to hear that you've been slammed. I can so relate. I seem to be in a simulsr boat. I've been doing the MEp pretty much every day since Feb, bu t recently have been skipping 2-3 days in between because I seemed to have been doing so much better. ( I was diagnosed with BPPV in Jan. 2007.) Anyway I went to do it last night 'cause it had been a few fdays. Everything seemed fine while doing it, but about 15 minuets later, wow! I was getting really dizzy, and I was almost feeling like I did when this all started for me. (May was an almost perfect month for me with almost every day except four or so feeling 100%) I still feel ike crap today, infact as I am writing...yuck. I'm not sure if all this is normal or not. It seems like a lot of people on this site have the same experience. But you said for you that you have been better for two years? God, is there any real hope of this going away? I am thinking that VN may have been tied in with the BPPV diagnoses for me.
    I sure hope that you start to feel better soon. I really know how you feel and my heart goes out to you. Sorry, I don't have any great advise, only sympathy to ofer. Hang in there.

     
    Old 06-29-2007, 01:02 AM   #10
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    Re: Just got hit with BPPV

    Hi Centaur,

    >>>But you said for you that you have been better for two years? God, is there any real hope of this going away? I am thinking that VN may have been tied in with the BPPV diagnoses for me.

    Well I was at least in the 90% range for most of that time with the odd blip here and there. Re this going away for good ... sometimes I seriously wonder about that. However, I was doing VERY well, feeling my old self earlier this year and without drugs. So there is hope ... for me it means becoming totally zen and not ever letting stress levels get too high for too long which clearly happened at the end of March.

    Like you I feel pretty average today after running through the MEP this morning. Seasick all day and very sensitive to head motion again. Let the good times roll!

    Best....Scott

    Last edited by studyin; 06-29-2007 at 01:07 AM.

     
    Old 06-29-2007, 06:18 AM   #11
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    Re: Just got hit with BPPV

    Hey Scott
    A little late catching this thread which explains it all...I was following the other thread and missed your big morning of vertigo!
    Even though I stopped the actual "spinning" after the second time I did the MEP, I did still feel absollutely awful in the first position (same side as you) and in fact to this day do not like the feeling of going into that position. I don't know how much is psychological, in theory I should be able to sleep on that side, roll over on that side, etc but avoid it because I feel "off" whenever I do. It worries me a lot that something is there that would precipitate the rocks to become dislodged again...like the two times I have had a recurrence I can directly link it to something like a massage and the dentist chair...I wonder if the rocks were just out again and it's consequence, or are those little buggers just waiting for me to roll the wrong way???
    It is going to take a while for your inner ear to settle down, depending on how long they were in the wrong place, some damage can be done. I was in a similar situation to you as I went about 2 months of feeling like I was having another labs attack before I really figured out it was positionally related. YOur recent problems which you had been investigating as migrain related...but could it be that some crystals were in the canal but not enough to cause the actual vertigo?? Wasn't it you who found an article stating that 62 crystals must be out of place to cause BPPV symptoms (maybe you had 61 and that last little guy just hadn't fallen out until you rolled the wrong way in bed!?!) So who knows why (would love that answer) those crystals get loose in the first place, but having labs is a definite precipitator of this lovely condition.
    Hope today is better....and it will get better
    FC

     
    Old 06-29-2007, 08:27 AM   #12
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    Re: Just got hit with BPPV

    re: firechick's post to Scott
    I found on a medical site that the crystals, once loose, can become an aggregate, sticking together to form a large mass, a unit. Think boulder in a stream. (The water on both sides of the big rock flow much faster and maybe (?) create bigger 'waves.' thus major dizziness?.) (There was a photo of the inside of a canal with a white lump in it. It was broken up surgically, possibly as an attempt at a cure.) Also my ENT said crystals can dissolve, and that it takes about a week, sometimes two with different people. At the time I had no information other than what he said, so sat nearly upright, not moving for about 3-4 days waiting for the crystals to get smaller. Each day I could move my head another inch right and left without nausea, but if I did anything more i felt, or got, terribly sick, blaaach.

    A month before my last vertigo attack --in March-- tripped and fell (landing on my forehead!) so I was thinking that maybe the rocks sprang out of their 'nest' and maybe comglomerated, waiting until I put my head in a tilted position to start their slow and painful journey down the posterior canal creating major horrific vertigo.

    I wonder what Balance would say about such an event setting the stage for BPPV. (Just remembered that your 'stage' was set by Labs. That's a mystery area for me since one of my dx was V. Labs.
    Frustrating disease isn't it?) At least, now after reading your thread I understand that BPPV can exist at the same time other dx are there. Hope you get through this quickly.

    CC

    Last edited by curiouscat02; 06-29-2007 at 08:35 AM.

     
    Old 06-29-2007, 11:10 AM   #13
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    Hi Scott - remember me?? hope so! any way sorry that you are having such a bad run with this - I know it feels like - will it ever end? hang in there - day by day it will get better! Persevere with trying to move your head as normally as you can - take it easy for a short while and you will see that this will fade away and you'll feel better again! Thinking of you Ilia

     
    Old 07-01-2007, 08:49 PM   #14
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    Re: Just got hit with BPPV

    Firechick - thanks for all of your info and the detail of how you felt afterwards - all really helpful.

    Curioscat,

    >>>so I was thinking that maybe the rocks sprang out of their 'nest' and maybe comglomerated, waiting until I put my head in a tilted position to start their slow and painful journey down the posterior canal creating major horrific vertigo.

    It sure seems that way doesn't it? Since all of this occurred to me I have since realised that migraine may have been the trigger for me. I know this sounds bizarre but the night before I was whacked I was using all of these new face/ skin products for the first time. The products made my face feel really weird and eyes were stinging - 15 minutes later I had a headache with pain shooting down into my neck. The next morning I was hammered with BPPV. I didn't make any connection on this until this morning - over one week later. I have since used the products off and on since the attack and only this morning the penny dropped that after each time, headache and vertigo have gone nuts ... I thought it was simply BPPV aftermath but today the vertigo and sore head is worse than ever and I used the product twice yesterday. I have never felt so out of it before in my life as I do now. I hope the silver lining in this nightmare is that I've pushed this to such an extreme that migraine has clearly shown its ugly head as the root cause.

    Michele - have you ever come across a case or know of migraine triggering a BPPV event? There is no other way to explain this as far as I can see. I'm seeing Prof Halmagyi on Wednesday to get some answers. Let's hope he doesn't look at me like I'm nuts. Time to try Verapamil.

    Hi Ilia - of course I remember you! Glad to see you back on the board and to know that you're pretty much 100% with only short-lived blips. Great news. Is Em still dizzy after all this time?

    Best all.....Scott

     
    Old 07-01-2007, 10:03 PM   #15
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    Re: Just got hit with BPPV

    Looks like I just found my answer - just published this month:

    Epidemiology of benign paroxysmal positional vertigo: a population based study.
    J Neurol Neurosurg Psychiatry. 2007 Jul;78(7):710-5

    Quote:
    Summary

    - BPPV is probably the most common cause of vestibular vertigo accounting for approximately 20–30% of diagnoses in specialised dizziness clinics. The evolution of highly effective positioning manoeuvres has made BPPV the most successfully treatable cause of vertigo.

    - 1003 interviews were completed (that's a lot of BPPV!)

    - age of onset was not affected by sex, secondary versus idiopathic BPPV or a history of migraine.

    - In a regression model, only age, hypertension, increased blood lipids, stroke and migraine had an independent effect on BPPV.

    - a small group (14%) experienced an unspecific sensation of dizziness instead of an illusion of rotation, as previously reported in patients with BPPV confirmed by positioning testing.

    - We found the strongest association for BPPV with migraine. This association has been described previously. The frequency of migraine was three times higher in idiopathic BPPV than in BPPV secondary to head trauma or surgery.

    - It has been speculated that migraine could cause vasospasm of the labyrinthine arteries, leading to detachment of otoconia from the utricular macula.

    So there you have it folks. I know what med I'm going to be getting from Halmagyi on Wednesday.
    Best....Scott

    Last edited by studyin; 07-01-2007 at 10:32 PM.

     
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