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    Old 11-08-2007, 06:37 AM   #1
    Jill43
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    Not Inner Ear or MAV

    Hi Everyone,

    I just want to pop in to let everyone know what I finally found is causing my dizziness, tinnitus, one sided head and face pain, deep ear pain and ear fullness.

    I had an MRI that showed I have an abnormal right side TMJ Joint and because the jaw is so close to the ear that is what is causing my problems.

    I still don't know what is going to be done to fix the problem because I have to see yet another Doctor next week.

    I just want to let everyone know about this because if I can help even one person in their qwest to get to the bottom of their dizziness I would be happy. It took me four long years to get to the bottom of this and I certainly would not wish that on anyone.

    I hope everyone is doing well.

    Take care,
    Jill

    Last edited by Jill43; 11-08-2007 at 06:38 AM.

     
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    Old 11-10-2007, 11:33 AM   #2
    Frodoh
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    Re: Not Inner Ear or MAV

    I am interested in hearing what can be done about this - as I think my jaw is intefering with my ears too.

    good luck and please post your progress

     
    Old 11-11-2007, 09:10 AM   #3
    gloria2936
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    Re: Not Inner Ear or MAV

    Hi Jill,

    Nice to hear from you!

    Wow. They never saw this before in your prior MRI? Weird. I'd be curious to know if the flight you had to Las Vegas or the virus sparked your symptoms or if it is just coincidence. I met a lady that had pulsating tinnitus for 3 years and finally a specialist she saw caught glimps of an abnormality in a little blood vessel in her MRI. To make the story short, she had it surgically repaired and her tinnitus is all gone.

    Please let us know what the specialist says next week. I hope it will be an easy fix to end these problems for you.

    Best of luck to you,
    Gloria

     
    Old 11-14-2007, 09:10 AM   #4
    Jill43
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    Re: Not Inner Ear or MAV

    Just an update on the Dr. appt. I had. For the chronic pain the Dr. wants me to start on Effexor XR an anti-d. He claims this can be helpful with chronic pain, headaches and dizziness. I'm a little worried about starting this but at this point I feel desparate for any relief.

    My dentist also looked at the MRI and thinks that a bottom repositioning splint as well as braces, I don't have crooked teeth but he thinks it would help to bring my jaw down and forward slightly which may help with the ear pain, pressure and dizziness but no promises and this is not covered by insurance. He thinks a nerve is pinched in the jaw joint area. He also feels that any surgery would make it worse.

    So that's where I'm at now. Still not knowing what to do. I hope everyone is doing well.

    Jill

    Last edited by Jill43; 11-14-2007 at 09:11 AM.

     
    Old 11-14-2007, 03:53 PM   #5
    Frodoh
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    Re: Not Inner Ear or MAV

    Jill thanks for the update

    I have heard the idea of bringing the jaw down and forward. I believe it repositions the mandible away from the ear space. As for the nerve issue I am assuming he's talking about the trigeminal nerve.

    Try this. Put your pinky fingers in your ears and open and close your jaw a few times. Do you feel the mandible moving up and down? Do you think it's pushing too far up into your ear space?

    Also have you tried a soft / liquid diet for a few days to relieve pain and pressure?

    Also, try this. It sounds goofy. Buy two bottles of 32 ounce gatorade. Drink or pour out the gatorade and then fill each one with warm/hot water. Press the bottom of the gatorade bottle into your cheek/jaw. The bottom is concave and perfectly shaped for that area. Massage it into your jaw gently and see if it helps relax the jaw muscles. I also use the bottles on the back of my neck to soften the muscles.

    Good luck!

     
    Old 11-15-2007, 06:37 AM   #6
    Jill43
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    Re: Not Inner Ear or MAV

    Thank you for the great tips! Yes it does feel like my mandible is to close to my ear space. My ear cannal actually feels swollen. I can try the gatorade bottle. What a good idea.

    I would hate to take the chance on braces and have it not work because it is very expensive and I'm 45 years old. I think that would look kind of crazy at my age but I guess if it helps it would be worth every penny.

    Do you have a jaw problem? What are you doing for it?

    Thanks again for the good tips!
    Jill

     
    Old 11-15-2007, 10:45 AM   #7
    Frodoh
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    Re: Not Inner Ear or MAV

    Neck tightness, upper back pain and tightness and most of all ear fullness / pressure. I suspect that my jaw is interfering with my ear space and causing problems with my TMJ joint and Eustachian tubes.

    I also have dizziness and head fog almost all the time as well as headaches on my right side and a whole lot of scalp tightness.

    Braces and a Splint will cost you a fortune.

    Have you tried jaw exercises?

     
    Old 11-15-2007, 04:41 PM   #8
    meniero
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    Re: Not Inner Ear or MAV

    I have been diagnosed with MAV after a long year of not knowing what was wrong with me. After doing my research, I keep coming back to TMJ and wondering if this could be playing a part in my dizziness. I was diagnosed with TMJ in college about 15 years ago. I woke up one morning with my jaw locked. I was fitted for a night guard and became very aware of my clenching. Fifteen years later, I'm wondering if I still hold a lot of tension in my jaw. I always have neck pain and recently had a massage where the masseuse informed me that I have a thousand knots in my neck and on each side of my spine. I told him that I suspect I have TMJ, he massaged my jaw and said I have a huge knot in my left jaw, the same kind of knot you would get in your back. I am now aware of it, directly below my cheekbone in front of my lower ear. He told me there is physical therapy and exercises for jaw massage. I wondering how to take this further, are there TMJ specialists? Or are they just dentists? I've also had an MRI done, but if they weren't looking for it, would they necessarily find the problem? This is what I've found on a website regarding symptoms of TMJ:

    "Many TMJ patients have TMJ dizziness and this is very often what bothers the patient the most. There are two possible causes.

    The first cause may be related to the fact that the jaw joint is located just in front of the inner ear. Part of the inner ear acts like a carpenter's level and automatically helps your body balance you. When a patient's TMJ is inflamed and sore, it's next door neighbor (inner ear) can be effected causing TMJ dizziness. If you injure a muscle, all of the muscles around the injured muscle contract tightly, not just the injured muscle. The inflamed TMJ muscles might cause the muscles in the inner ear to tighten and create problems.

    The second possible cause is the tightening and inflammation of the sternocleidomastoid muscle (SCM). The SCM is often sore in TMJ patients. Unfortunately, the SCM, like the inner ear, helps your body keep in balance. When the SCM is in spasm, a patient can get spinny. Dentists know that the ear is effected by TMJ problems because TMJ patients often have ringing in the ears (tinnitus), stuffy ears, TMJ dizziness,excessive ear wax and decreased hearing. Unfortunately, many physicians are not aware of these anatomical relationships and patients are often treated for misdiagnosed problems such as Meniere's Disease."

    I will keep searching...good luck to you.

     
    Old 11-16-2007, 07:36 AM   #9
    Jill43
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    Re: Not Inner Ear or MAV

    Meniero,

    I have everything you described. My SCM is so tight and full of knots as well as my face and above my right ear.

    That's the first thing that bothered me when this first started. I was very dizzy and could feel the knots in my SCM on the right side. Every Dr. I saw thought I was just making this up and then finally I got the Menieres dx from a well known neuro-otologist.

    I had to almost beg for an MRI of my TMJ because I just knew that's what was wrong. I have lost a lot of faith in Drs. I would love to send a copy of my MRI to every Dr. I saw that said I needed mental help just so they know that there really is something wrong and I was not making it up.

    I'm still trying to figure out what my next step will be but I'm going to be very careful and do alot of research before I submit to anything.

    Thanks again for the information. It describes me to a t.

    Take care of yourself and please keep me updated on what you find out regarding your dizziness.

    Jill

     
    Old 11-16-2007, 08:56 AM   #10
    Frodoh
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    Re: Not Inner Ear or MAV

    If you think it's your SCM muscles then getting a professional massage is the best option. A good trigger point or massage therapist would be a lot cheaper than braces and splints

     
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