It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Inner Ear Disorders Message Board

Roller Coaster.


Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 01-27-2008, 07:57 AM   #1
stargrave
Senior Veteran
(male)
 
Join Date: Jan 2006
Location: Mexico City
Posts: 691
stargrave HB Userstargrave HB Userstargrave HB Userstargrave HB User
Roller Coaster.

No, I'm not talking Six Flags here, but how my condition is changing to bad to great and vice-versa, during the past weeks, where I was at 100% even with a runny nose, and then I got a dizzy spell, almost fainting in the car, while I was looking for and reading for signs for apartment rental in a bright sunny day.

I've noticed that the classic runny nose cold it's not the trouble, but the clogged ear/nose/throat where I can even feel the inflammation below my ear by applying pressure with a finger, something that causes me discomfort. I believe this causes me to get to an overall decomp state.

Taking a quick shower, and going out to the street with a wet head, can cause me this condition,or at least has been a coincident factor most of the time. As soon as I get out in the rush I can feel the pressure in all my head like a helmet, Obviously I've tried to avoid this as often as I can.

Other trigger detected was stress, specially emotional driven one, where in the rush for a surprise party for my mom, I got in a decomp, something that happens the other way around during a do or die stressful situation, where the "forced compensation" that I've mentioned in many past posts, takes place.

Finally, in close relation to this, mental toughness is really helpful, where even on a rude episode, I've decided to face it, challenge it, and keep on living, driving, shopping, etc... and this is something that might have not cured me, but I do feel like It can make me feel better, both physically and in mood, because even after a tough episode, I can go back to almost normal on the same day.

Unfortunately, even without the now detected triggers, I can go back from almost normal to a decompensated without warning, so even as I feel better in my daily battle with dizziness, I still haven't found a way to make it go a way for good just yet

 
Sponsors Lightbulb
   
Old 01-28-2008, 04:08 PM   #2
missy7777
Veteran
(female)
 
Join Date: May 2007
Location: Torrance, CA, USA
Posts: 439
missy7777 HB Usermissy7777 HB Usermissy7777 HB User
Re: Roller Coaster.

Good to hear from you Stargrave - not so good that you still have this "thing" - whatever it is. Just keep doing like I do - looking forward to the day that it is gone for good!!

I know what you mean about the in/out, good/bad, normal/dizzy episodes. I definitely attribute this to stress as well for sure. It's like we have had chemotherapy and our immune systems aren't up to par. Except in our case, our vestibular/neurological systems aren't up to par. For example, I have ALWAYS been senstive to motion. But now, it would be a complete joke to even consider getting on anything that moves quickly like a boat, or a roller coaster, or a slide, or even a swing. My senses are ultra sensitive. I still think it's all migraine associate. I think our migraine has been activated and it remains activated in different degrees. If I could just put that dang monster back to sleep it would be great! Even though it rests often, and leaves me alone for some time, I always know that my migraine monster is like a sleeping baby - ready to awake at any little thing I do whether it be hormones going haywire, a stressful event, a food trigger, etc.

Hang in there!

 
Old 01-28-2008, 05:25 PM   #3
charlotte67
Senior Veteran
(female)
 
Join Date: Oct 2006
Location: maine, usa
Posts: 1,166
charlotte67 HB User
Re: Roller Coaster.

Star, I honestly think this is good news. Why? Well I know once put on the meds to control my migraines..I have been having exactly that. Feeling great, then almost passing out...feeling better...then smelling something and having severe symptoms...

Could you be coming out of it?

I hope so!!!!

 
Old 01-29-2008, 08:48 AM   #4
stargrave
Senior Veteran
(male)
 
Join Date: Jan 2006
Location: Mexico City
Posts: 691
stargrave HB Userstargrave HB Userstargrave HB Userstargrave HB User
Re: Roller Coaster.

Hi Missy

Yes I think that MAV monster came out of the deep regions od our body and is attacking, like in Cloverfield.

Now that I recall, I've even had some of the woozy symptoms before, where the only new ones (from two years to date) are the jumping visual, an the unsteadiness.

So MAV was there for sure, maybe some estibular stuff awoke it, and here I am still waiting for the final cure.

Hi Charlotte.

Hope you're right and this is the "way out", I still have to get try a more direct approach to migraine(meds), but I will do that only under medical supervision. Unfortunately, not until now, some doctors(not my neurotologyst) give migraine some relevance on a dizzy case.

Onthe other hand I NEED to take control of my allergies, for the liquid in ears stuff, that surely isn't helping me at all. Buand as stubborn as I may sound, I still can't get the specialist through social security, since any other option equals big bucks, something I still haven't got.

I've noticed an overall improvement nevertheless, but the better I get, or any of us, the worst you feel having a decomp, even if it's actually milder than before, because you feel like you're so close...

Thanks for the input I hope you're both all right.

 
Old 01-29-2008, 09:00 AM   #5
missy7777
Veteran
(female)
 
Join Date: May 2007
Location: Torrance, CA, USA
Posts: 439
missy7777 HB Usermissy7777 HB Usermissy7777 HB User
Re: Roller Coaster.

Quote:
Originally Posted by stargrave View Post
Onthe other hand I NEED to take control of my allergies, for the liquid in ears stuff, that surely isn't helping me at all. Buand as stubborn as I may sound, I still can't get the specialist through social security, since any other option equals big bucks, something I still haven't got.
Sometimes I think we give too much focus to our allergies and sinus problems. From what I have gathered after lots of research, attacking our problem from the migraine side will in fact help clear up the allergies/sinus side. I think that when we have migraine, we are actually swollen in our heads. That means our sinuses are swollen, our blood vessels all around and in our heads are all swollen causing headaches, ear fullness, sinus pressure/problems, dizziness, sore muscles in the neck, jaw, etc. So I think if you focus on getting rid of the migraine, you will see that the sinus problems will also go.

 
Old 01-29-2008, 10:07 AM   #6
sheriff56
Senior Veteran
(female)
 
Join Date: Oct 2006
Location: Stourbridge, UK
Posts: 593
sheriff56 HB User
Re: Roller Coaster.

Stargrave, you sound good, positive and in control of all of this, thats good news, decomps are horrid but we have the good parts in between to remember.
I took the same view of deal with it as you did and I am sooo much better oh I am expecting decomps sometimes, but I'll deal with that when it happens.

I am so pleased for you.
Jayne
x

 
Old 02-01-2008, 07:20 AM   #7
stargrave
Senior Veteran
(male)
 
Join Date: Jan 2006
Location: Mexico City
Posts: 691
stargrave HB Userstargrave HB Userstargrave HB Userstargrave HB User
Re: Roller Coaster.

Hello Again Missy

Yes, I'm with you in all the post nasal drip and congestion caused by Migraine, because I do recall those episodes in the past where I was driving, I felt weird, and when I got home, my nose had some momentary flu like condition.

Nevertheless I'm also the kind of person whose allergies can close one side of the nose, by pure inflammation where I can even feel how the air is not coming through(in or out) that side, and this switches between sides.

I've even developed some conducts wher if I scratch my nose I even open my mouth to breath without noticing it(until recently). So, combine that with a polluted air, and you have myself breathing much less air than the one I need, making me dizzy, so I really have to get this under control.

Add the MAV condition, which also gives you some nasal trouble by itself, and maybe some residual VN from three years ago, and you have my dizzy problems exposed. But I agree with you, when MAV gets under control, everything will be better, much better.

And hello Jane:

Thanks for the input, I'm really trying to stay under control, because panic won't help at all, so even as I get really scared and down on a new decomp I'm keeping myself positive, being aware of how much better I'm now, and with some real 100% moments here and there, it gives me hope, this can be cured.

I've noticed those great blips different to my overall, better attitude adaptation, where I've sort of learned to live with the mild dizzies without panic, but I've detected the differences with a 100% state in the little things where nothing jumps on my vision, I "forget" about my feet not being always making an extra effort to stay in balance, and even while I'm lying on bed, where if I'm with the dizzies, I feel "insecure" to put it some way, both in moving around and in my point of support, my hips, back, or anything that is "touching ground" where the off-balance sensation can be felt even sitting or lying down.

Hope this continues, and hope this can be an positive example. I'm not cured yet, or at a permanent 100% like subs, and I still feel scared and down sometimes, where surely I'll come back screaming for answers, but those fine moments really told me that no matter how hard it seems, there is a way out of this, we only(both patients and doctors)have to figure out the way to get there and to stay there.

Cheers to all.

Last edited by stargrave; 02-01-2008 at 07:21 AM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
One day you wake up and find yourself about to board a roller coaster... rider1 Hepatitis 3 11-27-2007 05:15 PM
Androgel Roller coaster update AZMan07 Men's Health 21 11-06-2007 11:52 AM
Roller Coasters Ladykit1980 Blood and Blood Vessel 0 08-11-2006 12:19 PM
Roller Coaster ride with husband at Stage IV gnik Cancer: Lung 3 06-16-2006 08:13 AM
Roller Coasters? Sharikaaria Heart Disorders 8 05-18-2006 08:13 AM
Is recovery a roller coaster? 6Blues Lyme Disease 25 05-13-2006 06:39 AM
TTC has been a roller coaster. How about you? marriot Infertility 17 12-18-2005 12:02 PM
Roller Coasters, Ears, Off balence, help! :) adam2000 Inner Ear Disorders 4 12-29-2004 06:31 AM
Off Balence after Roller Coaster Rides in May 04 - Opinions? adam2000 General Health 3 12-27-2004 03:39 AM
Mental roller coaster sanrun Obsessive Compulsive Disorder (OCD) 4 11-11-2004 06:25 PM




Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 01:43 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2017 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!