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misdiagnosed BPPV??


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Old 02-11-2008, 06:20 PM   #1
zooey91
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misdiagnosed BPPV??

First, I am not using the board as a substitute for medical care, and am seeing a Neurologist and have follow up appointments scheduled.

For the last couple of years I've had light headedness and slight dizziness a few times a week. No nausea or loss of balance, and as far as I can tell it isn't caused by any particular position or change of position. It's a slight nuisance, but I wanted to make sure it isn't a sign of something serious so I talked to my doctor about it.

My doctor sent me to a Neurologist, who fairly quickly said I had BPPV. He told me to do what I've since discovered is the Brandt-Daroff exercise twice a day.

I did that for three weeks. My symptoms didn't lessen, but on top of the occasional spell I generally felt awful all the time, something that wasn't part of the package before.

After reading up on the exercises I decided to change to MEP exercises a week ago. Now I feel nausea and loss of balance on top of everything else, which isn't getting any better after doing it for a week.

While the exercises make me feel dizzy, they don't bring on the original symptoms, which continue to occur at odd times of the day, sitting or standing, no explanation that I can tell.

I told the Neurologist this on Friday and he said that my dizziness should have gone away by now, and wants to do an MRI to rule out whatever an MRI would discover. When I wondered out loud whether I was doing the right exercises, or doing them correctly, he said he could refer me to a vestibular rehab specialist for physical therapy, so I may see about doing that.

But the bottom line is that I felt much better before doing any of these exercises.

Is that in some strange way a good sign? Or should I stop immediately? Can the exercises actually give you BPPV?

I know that the therapist will probably have some good advice, but I'm curious to hear any input from the board as well.

 
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Old 02-12-2008, 05:56 PM   #2
ssdizzy
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Re: misdiagnosed BPPV??

Hi Zooey .... I don't have any real answers to your questions - but I do know that if you don't have BPPV, doing the MEP or Brandt exercises won't give you BPPV.

Also, as a BPPV sufferer, I do know that the MEPs and the Brandt exercises can make you feel awful afterwards. Also, I know for me, the first time I went thru the Epley, I felt off for a couple of weeks. (According to my Physical Therapist and neurotologist, many people immediately feel fine after the Epley - but that definitely wasn't the case for me.) I have had a few Epleys over the past year and the recovery seems to be shorter each time, but I definitely feel off after the maneuver. Not sure if that helps or not ....

Hope you get things sorted out soon!

 
Old 02-12-2008, 07:08 PM   #3
zooey91
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Re: misdiagnosed BPPV??

I guess it's good to know that feeling awful isn't necessarily a bad thing. But I do wonder if the exercises are exacerbating another condition.

I've been doing them for a month with no improvement, I have an MRI in 2 weeks, and an introductory PT appointment the week after, so I think I'm inclined to stop for now.

Does that seem foolish?

 
Old 02-13-2008, 04:15 AM   #4
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Re: misdiagnosed BPPV??

Hopefully the PT appt will help determine if it's BPPV. You have to be symptomatic for them to be certain if it's BPPV - and doing the MEP is designed to move the crystals back into place (i.e. you then wouldn't be symptomatic) .... so it may make sense to stop them until you can get a clear diagnosis. If the problem is BPPV, it definitely won't hurt anything to stop doing them until you see your PT.

 
Old 02-14-2008, 02:34 AM   #5
StarWars1985
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Re: misdiagnosed BPPV??

Zoey, can you describe some of your symptoms when u get dizzy. Most BPPV cases are short bursts of rotational vertigo that you can really feel. Kind of hard to not know if it's BPPV or not when u feel spinning. Also when you get dizzy, have u noticed it being caused by a certain change in head position?

 
Old 02-14-2008, 09:07 AM   #6
zooey91
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Re: misdiagnosed BPPV??

The dizziness that prompted me to go to the doctor in the first place consisted of a sudden light headedness and slight dizziness, about 4 times per week. I never have been able to connect it with any particular activity, such as sudden head movement, but instead it seems to come on randomly (sitting, standing, before eating, after eating). It can last as little as a few seconds or as long as 10 minutes. It doesn't include nausea or loss of balance.

However, after doing the exercises I have experienced nausea and a feeling of loss of balance, as well as generally feeling awful and having difficulty concentrating. I stopped the exercises three days ago and am feeling better now, although the original symptoms continue (that is to say I've had about 3 spells in the last 3 days).

 
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