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Cervical Dystonia and "Head Symptoms"

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Old 06-09-2008, 08:37 AM   #1
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Location: Rochester, NY
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Wowwwweeee HB User
Smile Cervical Dystonia and "Head Symptoms"

Hi Board,

After seeing my primary doctor about my "head symptoms" recently, he wanted me to see an brand new neurologist for an independent examination.

Last week I met with a new neuro, who put a different slant on things.

He spent two hours with me, just going over my "head symptoms", which for those of you who know me on here, also seem to be related to some bizarre neurological symptoms.

At the end of our first meeting, he wanted to talk about how my head tilts to the left when I am sitting.

He stated that since I have been dealing with my head stuff for so long, there was no way that he would be able to draw many conclusions from just one visit.

But he did want to immediately address my head tilt. I told him that since being off-balance, dizzy, etc., my head just "naturally" tilts to the left now, whenever I am in a sitting position. I explained to him how awful that was for me, especially when I am in work meetings. And how uncomfortable it was for me to try to keep my head upright (straight) - because when I do that in a sitting position, I start to feel off-balance or woozy or dizzy.

He stated that he feels that I may be dealing with Cervical Dystonia, and although that that is probably not the cause of my head symptoms, it can definitely play a part in the vertigo/off-balance symptoms I have.

He has prescribed me a very lose dose of Valium to take (2 mgs, daily), so I can begin to relax the muscles in my neck as a starting point to treating my head symptoms.

I was very surprised also, when this new neuro asked me to provide to him my printout of my head (and related) symptoms, that I usually give to new specialists, so he could read it before I see him again. I didn't bring it with me because so many specialists in the past didn't devote time to that.

I've made a follow up appointment in a few weeks at the end of the day. My head symptoms are usually at their worst by then, so he wants to see me when I am at my crappiest (lol). He also requested me to be his last appointment so he can take his time, which I think is great.

I am VERY nervous about taking the Valium - you know how nervous I can be, and since I've had some interesting side-effects with some of the other meds I've tried in years past, I am high anxiety today.

My head symptoms have me greatly depressed, so I am happy to have a new neuro who has really taken an interest in me.

I would be interested in hearing any comments on the Cervical Dystonia/Vertigo idea.

Wishing everyone a nice day. xo

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Old 06-09-2008, 12:18 PM   #2
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Join Date: Feb 2005
Location: Pittsburgh, PA
Posts: 1,147
gloria2936 HB User
Re: Cervical Dystonia and "Head Symptoms"

Hi Wowwwweeee,

Nice to stop in and see you are headed onto something after so long. It is wonderful you have stayed persistant and have possibly found a good neurologist. I think that make a huge difference in dealing with this junk. It makes sense that your problems could have developed into something else as mine had done over the years.

Relax about the valium. Your new doctors makes a lot of sense and sounds like he is taking steps to get to the bottom of this. If he can get that corrected then maybe the rest will follow. I am doing better these days on the SSRI I started taking in January. I've been having some neck, shoulder and arm pain on my right side but think I am doing something at the healthclub to aggrevate it as it came on co-inciding with my start back up at the health club. Give the valium a try as it may just be the start of correcting your problem or getting you to the point you can function and enjoy life better.

Take care and let us know how it all goes with the new doctor.


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