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New with vestibular lesion

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Old 09-10-2003, 02:38 AM   #1
Join Date: Sep 2003
Location: Finland
Posts: 1
Fallon HB User
Smile New with vestibular lesion

Hi to you all,

I just found this board with Google. I'd like to obtain information of my condition. I'm 26 years old, and I've been diagnosed with "vestibular lesion" in both sides in 1995. At that time I had mainly dizziness.

Now what exactly is this "vestibular lesion"? Where could I find more information? The dr who diagnosed me gave me an exercise sheet and no other treatment. He said that I may not be able to look at the stars without feeling dizzy, and that I may be more dizzy when it's dark. Well, he's been correct As years go by, I find it more hard to walk outside if it's dark. I have noticed that I'm not able to tolerate high places; I've never been good at that but now even few stairs in an observation tower make me really dizzy and nauseous. I used to live in 5th floor 3 years ago - when I visited my old apartment for the first time in 3 years, I felt really dizzy standing at the balcony and gazing at the view.

Does this sound familiar to you? Are there anyone who has similar problems? What other symptoms do you have?

Thanks for listening

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Old 09-10-2003, 03:49 AM   #2
Senior Member
Join Date: Jul 2003
Location: London, England
Posts: 199
dizzyblonde1 HB User

Hi there, welcome to the board, though sorry you're still suffering with this after so long.

Basically your vestibular system comprises three fluid filled semicirclar canals which detect where you are in space and which direction your head is moving, and the vestubular (8th cranial) nerve which transmits this info to your brain.

If this system is not working properly, the information it sends your brain is at odds with the information your brain recieves from your eyes and muscles etc, which makes you feel dizzy.

Often a virus is thought to affect this system which leads to vestubular nerve damage, though there are many different causes of such dysfunction.

Often this damage is irreversible and you get better through the development of new nerve pathways, which take over the work of the damaged part. Exercises (often Cawthorne Cooksey exercises)help to speed up this process (known as compensation).

Compensation has obviously occurred to a large degree in your case though not completely, which is why when your vision is compromised in any way (darkness/up high etc)your symptoms return.

A good link to start with that subs usually recommends is: [url=""][/url]

Also have a look back through the old post's on this board, they are full of useful info and good links that people have found.

Hope that gives you somewhere to start,

Old 09-10-2003, 10:47 AM   #3
Join Date: Nov 2002
Location: UK
Posts: 1,400
Emsybobs HB User

Hi there...welcome. I have never hard of vestibular lesion I must say but I know just what you mean about the height and the dark thing as I have both. Havent been properly diagnosed yet but there is something wrong with my vestibular system! I would go back to a different specialist if I were you, if you are at all uncertain about your condition. xxx

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