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    Old 01-23-2009, 01:39 AM   #1
    alepay0523
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    Exclamation Does anyone here feel a "on a boat" sensation?

    It all started when I was at school, I was studying, and I got this sudden "out of it" feeling, I see the phrase "brain fog" mentioned a lot on these posts and it's exactly what I was feeling. I turned my head up and I just felt out of it. I felt this pressure on my forehead, on my temples, and behind my eyes. I thought it was nothing at first, I thought I was just really tired. But that night when I went to bed I woke up with the room spinning in the middle of the night. The next day I woke up with all this pressure in my head and when I was walking down the hall I felt this "on a boat" sensation, like the floor was moving up and down every few steps. And I that's when I thought Ok, this is not good.

    So, I went to my general doctor to get some answers to theses problems. At first I mentioned the pressure and the unbalanced sensations and my doctor thought it was my sinuses. After a CT scan they said I had an infection in my sinuses that it was probably putting pressure and fluid in my inner ears and that was causing my imbalance/dizziness. My doctor also said that brain-fog feeling was just congestion. The strange thing to me was I never had a runny nose or any drainage and it didn't really feel like normal cold/stuffy like congestion. I just felt out of place.

    They put me on antibiotics saying that it would take care of the infection and that the symptoms should subside. I still felt the dizziness and unbalancedness and brain fog even after the antibiotics where done. I was then referred to an ENT specialist that examined me and concluded that my symptoms may just be allergy related. I have found myself very frustrated because at first I thought I knew what was causing these symptoms and now I feel like I'm back at square one.

    Is anyone been having similar symptoms?

     
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    Old 01-23-2009, 12:54 PM   #2
    pamg6
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    Re: Does anyone here feel a "on a boat" sensation?

    Hi,

    I am sorry that you have been experiencing that. Do you have Migraine? You DO NOT have to have a headache with Migraine. The floor moving is a biggie for migraine...your others symptoms as well....

    Pam 3

     
    Old 01-23-2009, 05:05 PM   #3
    alepay0523
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    Exclamation Re: Does anyone here feel a "on a boat" sensation?

    hey Pamg6,

    Wow, I didn't know that.
    I'm actually sure if it's Migraine because I don't know how to identify it without the headache. Would you have to get diagnosed to know for sure? The sensation I feel is constant, but the pressure and unsteady feeling get worse when I'm in a busy place like the at the mall. Also bright lights and loud music really don't help.

    I actually just went back to my doctor today, and they said that they're still convinced that the symptoms are allergy related and the told to get some Sudafed and that should relieve some pressure.

    I'm so lost right now I'm not sure if I should look for another specialist or just try this out. I don't see how'd they work when I've been trying everything they've given and nothing seems to work.

    I've been looking around different posts and someone mentioned this clinic in this place in Los Angeles call House Ear Institute, from what that person said, it's supost to be one the best. Ever heard of it?

    Thanks, Alepay0523

    Last edited by alepay0523; 01-23-2009 at 05:06 PM.

     
    Old 05-11-2010, 02:55 PM   #4
    SSU1315
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    Re: Does anyone here feel a "on a boat" sensation?

    I have been feeling the same way for a while. I have been doing research but no real answers. Just was wondering if you have found the cause or approx. cause to your sensation feeling of being on a boat.

     
    Old 05-24-2010, 07:34 AM   #5
    gabrielkelly
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    Re: Does anyone here feel a "on a boat" sensation?

    Quote:
    Originally Posted by alepay0523 View Post
    It all started when I was at school, I was studying, and I got this sudden "out of it" feeling, I see the phrase "brain fog" mentioned a lot on these posts and it's exactly what I was feeling. I turned my head up and I just felt out of it. I felt this pressure on my forehead, on my temples, and behind my eyes. I thought it was nothing at first, I thought I was just really tired. But that night when I went to bed I woke up with the room spinning in the middle of the night. The next day I woke up with all this pressure in my head and when I was walking down the hall I felt this "on a boat" sensation, like the floor was moving up and down every few steps. And I that's when I thought Ok, this is not good.

    So, I went to my general doctor to get some answers to theses problems. At first I mentioned the pressure and the unbalanced sensations and my doctor thought it was my sinuses. After a CT scan they said I had an infection in my sinuses that it was probably putting pressure and fluid in my inner ears and that was causing my imbalance/dizziness. My doctor also said that brain-fog feeling was just congestion. The strange thing to me was I never had a runny nose or any drainage and it didn't really feel like normal cold/stuffy like congestion. I just felt out of place.

    They put me on antibiotics saying that it would take care of the infection and that the symptoms should subside. I still felt the dizziness and unbalancedness and brain fog even after the antibiotics where done. I was then referred to an ENT specialist that examined me and concluded that my symptoms may just be allergy related. I have found myself very frustrated because at first I thought I knew what was causing these symptoms and now I feel like I'm back at square one.

    Is anyone been having similar symptoms?




    I wish I would've found your post before now - I noticed you posted this back in Jan... are you feeling any relief yet? I really hope so. If not... wanted to let you know that I totally understand and sympathize with your frustration. You are definitely not alone. Unfortunately I've had your exact same symptoms for about 15 months now. (I no longer feel pressure in my head though, symptoms tend to change as you go along) I was diagnosed with MDDS -- Google it, I have a feeling it's going to fit your symptoms like they do mine. On one of the threads here I noticed someone mentioning migraine as well. That definitely can be associated with migraine, as they've linked that with MDDS. (I do not get migraines) Something that I have learned though, through the tons of doctor appts, tests, treatments, etc., and people that specialize in this, is that these conditions get mis-diagnosed ALLLL the time. I'm not saying it's not important to try and get a diagnosis, but it should take a back seat to actually identifying your symptoms and treating them. I can almost assure you that you're dealing with a Vestibular disorder (google that as well) - and there are physical therapists that specialize in that kind of therapy. Vestibular dysfunctions seem to be closely connected to the balance of your inner ear, and the function of your eyes. Vestibular rehab includes a lot of eye exercizes, which are a bit uncomfortable, but do help. These conditions are more times than not totally benign... they are essentially a brain signal issue, rather than a physical issue. That's why you have trouble in malls and things. When your eyes can't see the horizon, the sky and the ground outside, your brain has trouble knowing up from down. They call going into places with this condition like Target, CostCo, the mall, the grocery store, etc., the BIG BOX syndrome. When you enter these places, your brain has trouble knowing where the floor is, and of course the lighting doesn't help and the chaos of the aisles, etc., so you'll start to feel a lot more symptomatic. Do you usually always feel better outside? Well that's exactly why. The great news is, our brains have the ability to re-program and get back in sync... so by forcing yourself in the very situations that make you uncomfortable, will help you feel better, faster.

    The other huge bummer is that these conditions also tend to come with high levels of anxiety... because you never know how you're going to feel from one day to the next. Not a fun feeling, I know. I was hit with this three months after having my first baby. Being a new mom and living with this everyday was a huge struggle for me. There comes a time/day though, where you realize that "hey, this could hang on/take awhile, so I'm gonna live my life in a positive way and do whatever I can to make the symptoms tolerable/manageable". Here's some things that you can do to lighten the load of this burden:

    1.Get plenty of rest at night - but stay as active as possible during the day, the more you move the better you're feel, and the less you'll notice the symptoms
    2. Get lot's of exercize but don't overdo it - long brisk walks, light jogging, yoga, jump rope, etc. are awesome. You'll feel a little more symptomatic for a brief amount of time after, but not for long.. and this will make your symptoms and any anxiety so much better
    3. Eliminate caffiene and alcohol.. drink tons of water, and eat as healthy as possible.
    4. Google vestibular rehab therapy - ping pong is excellent therapy because it requires hand/eye-brain/eye coordination. Someone else going through this taught me that. Also, if you live near the beach, walk on the coast as you're watching the horizon. That was part of my therapy and helped so much.
    5. Keep your stress level as low as possible, stress and anxiety make the symptoms much worse. So does hunger, eat small meals/snacks throughout the day.
    6. I know you're a guy, but for all of the females reading this, hormones really aggrivate this as well, so just plan to kind of take it easy on those days, but deifnitely still get out and walk.

    I think those are the main things. ANother thing to know is that regular, GP doctors know VERY LITTLE about this - as long as you've ruled out anything serious by having a CatScan or MRI... then I would look down another route (like the House Ear Center like you mentioned - heard they are awesome, but very expensive). My GP tried to chock my syptoms up to allergies as well.... but SO not true, and it'll just keep you from getting the treatment/diagnosis that you're looking for. Everyone with these conditions is completely different. No one will have the same outcome as the next. So try not to rely too heavily on what everyone says on this board... take the tidbits that are helpful to you, and seek the treatment that best fits your needs. I found that listening to everyone all the time made my anxiety worse... so just know that you will get help, you WILL get better. Someone put it best on the MDDS site... "these are not life threatening disorders, just life altering, so we have a lot to be grateful for". It's so true... so just stay positive, and try not to worry too much. Stay super active and super positive and do things that will keep you relaxed like the exercize.

    One last thing... alot of neurologists prescribe 2mgs of valium for this. It's a VERY small amount of medicine... so small that you can drive and do all the things you'd normally do. I went a year without any meds, as I was determined to get through this naturally - but finally realized that I need some relief. I split my pill, and take 1mg in the morning and 1mg in the afternoon - and it does the trick for me. You would not believe how much it helps. As a guy, you may need 2mg's in the morning and 2 in the afternoon, as needed. Might be worth asking your GP about. Usually they don't have a problem prescribing this in such a small dose. I do this along with regular exercize.

    As a mom, I'm on a mission to get 100% better, and know that I will. The key is to stay positive and active. Sorry for the novel... but I remember how LOST I was when this first started, and how lost the doctors were, and it helped me so much when people reached out to me that had gone through this.

    I hope this info helps... although I'm hoping your symptoms already went away!

    M.O.M. (MOM ON a MISSION)
    Tammy

     
    Old 05-27-2010, 07:12 AM   #6
    hollygirl33
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    Re: Does anyone here feel a "on a boat" sensation?

    Quote:
    Originally Posted by gabrielkelly View Post
    I wish I would've found your post before now - I noticed you posted this back in Jan... are you feeling any relief yet? I really hope so. If not... wanted to let you know that I totally understand and sympathize with your frustration. You are definitely not alone. Unfortunately I've had your exact same symptoms for about 15 months now. (I no longer feel pressure in my head though, symptoms tend to change as you go along) I was diagnosed with MDDS -- Google it, I have a feeling it's going to fit your symptoms like they do mine. On one of the threads here I noticed someone mentioning migraine as well. That definitely can be associated with migraine, as they've linked that with MDDS. (I do not get migraines) Something that I have learned though, through the tons of doctor appts, tests, treatments, etc., and people that specialize in this, is that these conditions get mis-diagnosed ALLLL the time. I'm not saying it's not important to try and get a diagnosis, but it should take a back seat to actually identifying your symptoms and treating them. I can almost assure you that you're dealing with a Vestibular disorder (google that as well) - and there are physical therapists that specialize in that kind of therapy. Vestibular dysfunctions seem to be closely connected to the balance of your inner ear, and the function of your eyes. Vestibular rehab includes a lot of eye exercizes, which are a bit uncomfortable, but do help. These conditions are more times than not totally benign... they are essentially a brain signal issue, rather than a physical issue. That's why you have trouble in malls and things. When your eyes can't see the horizon, the sky and the ground outside, your brain has trouble knowing up from down. They call going into places with this condition like Target, CostCo, the mall, the grocery store, etc., the BIG BOX syndrome. When you enter these places, your brain has trouble knowing where the floor is, and of course the lighting doesn't help and the chaos of the aisles, etc., so you'll start to feel a lot more symptomatic. Do you usually always feel better outside? Well that's exactly why. The great news is, our brains have the ability to re-program and get back in sync... so by forcing yourself in the very situations that make you uncomfortable, will help you feel better, faster.

    The other huge bummer is that these conditions also tend to come with high levels of anxiety... because you never know how you're going to feel from one day to the next. Not a fun feeling, I know. I was hit with this three months after having my first baby. Being a new mom and living with this everyday was a huge struggle for me. There comes a time/day though, where you realize that "hey, this could hang on/take awhile, so I'm gonna live my life in a positive way and do whatever I can to make the symptoms tolerable/manageable". Here's some things that you can do to lighten the load of this burden:

    1.Get plenty of rest at night - but stay as active as possible during the day, the more you move the better you're feel, and the less you'll notice the symptoms
    2. Get lot's of exercize but don't overdo it - long brisk walks, light jogging, yoga, jump rope, etc. are awesome. You'll feel a little more symptomatic for a brief amount of time after, but not for long.. and this will make your symptoms and any anxiety so much better
    3. Eliminate caffiene and alcohol.. drink tons of water, and eat as healthy as possible.
    4. Google vestibular rehab therapy - ping pong is excellent therapy because it requires hand/eye-brain/eye coordination. Someone else going through this taught me that. Also, if you live near the beach, walk on the coast as you're watching the horizon. That was part of my therapy and helped so much.
    5. Keep your stress level as low as possible, stress and anxiety make the symptoms much worse. So does hunger, eat small meals/snacks throughout the day.
    6. I know you're a guy, but for all of the females reading this, hormones really aggrivate this as well, so just plan to kind of take it easy on those days, but deifnitely still get out and walk.

    I think those are the main things. ANother thing to know is that regular, GP doctors know VERY LITTLE about this - as long as you've ruled out anything serious by having a CatScan or MRI... then I would look down another route (like the House Ear Center like you mentioned - heard they are awesome, but very expensive). My GP tried to chock my syptoms up to allergies as well.... but SO not true, and it'll just keep you from getting the treatment/diagnosis that you're looking for. Everyone with these conditions is completely different. No one will have the same outcome as the next. So try not to rely too heavily on what everyone says on this board... take the tidbits that are helpful to you, and seek the treatment that best fits your needs. I found that listening to everyone all the time made my anxiety worse... so just know that you will get help, you WILL get better. Someone put it best on the MDDS site... "these are not life threatening disorders, just life altering, so we have a lot to be grateful for". It's so true... so just stay positive, and try not to worry too much. Stay super active and super positive and do things that will keep you relaxed like the exercize.

    One last thing... alot of neurologists prescribe 2mgs of valium for this. It's a VERY small amount of medicine... so small that you can drive and do all the things you'd normally do. I went a year without any meds, as I was determined to get through this naturally - but finally realized that I need some relief. I split my pill, and take 1mg in the morning and 1mg in the afternoon - and it does the trick for me. You would not believe how much it helps. As a guy, you may need 2mg's in the morning and 2 in the afternoon, as needed. Might be worth asking your GP about. Usually they don't have a problem prescribing this in such a small dose. I do this along with regular exercize.

    As a mom, I'm on a mission to get 100% better, and know that I will. The key is to stay positive and active. Sorry for the novel... but I remember how LOST I was when this first started, and how lost the doctors were, and it helped me so much when people reached out to me that had gone through this.

    I hope this info helps... although I'm hoping your symptoms already went away!

    M.O.M. (MOM ON a MISSION)
    Tammy
    Hello Tammy As odd as this sounds I am so glad to see you on this board,I feel exactyl like you. I've suffered with this for 2 and half yrs now. I did the vestibular therapy and it made a hell of a difference. I am not perfect by any means, but atleaste I can go in a store and adjust to the settings. Walking on the beach was very hard for me, the waves coming up on shore and returning made me sooo dizzy, I to looked at the horizon to help the feeling. I got no help from any doctors at all. I had every test done known to man. All normal. But I strongly believe I have a inner ear disorder. All my symptoms came after a bad head cold in early 2008. I would like to talk to you more about this. I hope we can talk. Would love to have support from someone who knows how this feels. Thanks Holly

     
    Old 06-03-2010, 08:12 AM   #7
    gabrielkelly
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    Re: Does anyone here feel a "on a boat" sensation?

    Quote:
    Originally Posted by hollygirl33 View Post
    Hello Tammy As odd as this sounds I am so glad to see you on this board,I feel exactyl like you. I've suffered with this for 2 and half yrs now. I did the vestibular therapy and it made a hell of a difference. I am not perfect by any means, but atleaste I can go in a store and adjust to the settings. Walking on the beach was very hard for me, the waves coming up on shore and returning made me sooo dizzy, I to looked at the horizon to help the feeling. I got no help from any doctors at all. I had every test done known to man. All normal. But I strongly believe I have a inner ear disorder. All my symptoms came after a bad head cold in early 2008. I would like to talk to you more about this. I hope we can talk. Would love to have support from someone who knows how this feels. Thanks Holly


    Hi Holly, sorry it took me a bit to reply. With the holiday and a busy little boy to chase around, the time gets sucked away before I know it.

    I don't think that sounds odd at all, I know what you mean though. It's like you don't want to feel happy that other people are going through this, but are so relieved to know you're not alone and can get support from people that understand. It sounds like your symptoms are very similar, but a bit different from mine. I never had issues walking on the beach or with watching the waves or anything, in fact being outside in general was great therapy for me. I do however get a quick dizzy feeling if I turn my head too fast or a certain way, and it's usually when my symptoms are being aggrivated by hormones, fatigue, etc. Do you notice that? My main symptom is the rocky boat thing, mostly when I'm sitting or laying down... and actually it has gotten better, even before I started taking the 1mg of valium in the morning and at night. I think once I got a handle on the stress/anxiety that comes with these conditions, my symptoms got better. I realized that the more you focus on the symptoms, the worse they get. So I just try and stay super busy, which isn't hard with a 1 and 1/2 year old. I do lot's of walking, up hills and otherwise, lift weights, etc. I keep music playing whenever possible, pray a lot to stay positive, etc. That really seems to be the key... staying positive. I know I've mentioned it a million times in these threads, but it's so true. Are you a mom by any chance?

    As far as you feeling as though this is an inner ear disorder... that could be true? But, if you do in fact have a vestibular disorder and it was followed by a bad cold, what I understand and what I've learned is that the cold virus has the ability to find it's way to a vestibular nerve in your brain, which is SO microscopic that it'll never be picked up on an MRI, etc., and it does damage to it. So while the cold maybe gone, it's left the vestibular damage. But again, the good news about that is our brains totally have the ability to recompensate... and it does that when we force ourselves to do all the things that are uncomfortable and live our lives as normally as possible.

    I hope this is all encouraging for you - I know you've had this for a long time. I think the other thing that was really getting me down for awhile was the fact that I'd hope and pray every morning that it had passed... and when I realized that it hadn't, I'd feel really depressed. Once I took on the attitude that "hey, this is clearly here to stay for awhile, so I'm not gonna let it rule me"... I started to get SO much better. Crazy how our minds work and how they can be that powerful, which is good news.

    So I'm happy to be support and hope that this has helped.

    Stay in touch!

    Tammy

     
    Old 07-23-2010, 10:55 PM   #8
    Chriss75
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    Re: Does anyone here feel a "on a boat" sensation?

    Quote:
    Originally Posted by alepay0523 View Post
    It all started when I was at school, I was studying, and I got this sudden "out of it" feeling, I see the phrase "brain fog" mentioned a lot on these posts and it's exactly what I was feeling. I turned my head up and I just felt out of it. I felt this pressure on my forehead, on my temples, and behind my eyes. I thought it was nothing at first, I thought I was just really tired. But that night when I went to bed I woke up with the room spinning in the middle of the night. The next day I woke up with all this pressure in my head and when I was walking down the hall I felt this "on a boat" sensation, like the floor was moving up and down every few steps. And I that's when I thought Ok, this is not good.

    So, I went to my general doctor to get some answers to theses problems. At first I mentioned the pressure and the unbalanced sensations and my doctor thought it was my sinuses. After a CT scan they said I had an infection in my sinuses that it was probably putting pressure and fluid in my inner ears and that was causing my imbalance/dizziness. My doctor also said that brain-fog feeling was just congestion. The strange thing to me was I never had a runny nose or any drainage and it didn't really feel like normal cold/stuffy like congestion. I just felt out of place.

    They put me on antibiotics saying that it would take care of the infection and that the symptoms should subside. I still felt the dizziness and unbalancedness and brain fog even after the antibiotics where done. I was then referred to an ENT specialist that examined me and concluded that my symptoms may just be allergy related. I have found myself very frustrated because at first I thought I knew what was causing these symptoms and now I feel like I'm back at square one.

    Is anyone been having similar symptoms?

     
    Old 08-01-2010, 09:14 AM   #9
    mviramgama
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    Lightbulb Re: Does anyone here feel a "on a boat" sensation?

    Let me share my horrible dizzi journey with you guys.

    In 2004, one day when I wakeup in the morning immediately I fell down as everything moving around. Then my journey started with all doctor visits.

    Issues:
    1. I was not able to walk properly as dizziness.
    2. Driving was difficult and become severe after 2 year and then stopped driving.
    3. I couldn't turn my head upward or downward as feeling wierd feeling of falling sensation
    4. Stopped to go out and avoided airplane travel.
    5. Computer work was difficult but had no choice as I am software engineer.
    6. almost all day dizziness.

    Dignosis:
    1. First I was diagnosis as inner ear problem by physician and he send me to ENT.
    2. ENT diagnosis was BPPV for me and he did lot of test related to BPPV.
    3. I tried almost all doctors. 4 ENT, 2 Nurologist, Cardiologist, Homeopathy, Ayurvedic, Allergist, Vision, Chiropractice, Hypnotysm etc. from 2004 t0 2009. But situation was not improving but worsening.
    4. Then I came to know lot of people are improving by MAV (Migrain Associated Vertigo) treatment. In Feb, 2009, I visited Headache Specialist doctor and told her to treat me for Migraine. She started the treatment and within 2 weeks, I found little improvement. She prescribed Nortriptylen start with 10 mg dose and continued up to 60 mg dose till May, 2010. Now she is reducing dose to 0 level.

    But as of today, I am 90% OK and can do all the activities as normal. Thank god and this website that I got the idea of MAV treatment.

    Wish you all people GOOD LUCK for improving your health.

     
    Old 08-05-2010, 05:17 AM   #10
    woodete
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    Re: Does anyone here feel a "on a boat" sensation?

    Were you tested for Lyme. It sounds like it could be it. The problem here is getting a doctor to diagnosis it. I would request a Lyme Test. If you come back negative, you may still have it. Dr. Leslie Ann Fein is a great Doctor who specializes in Lyme. You can just google her. I am not sure where you are from, but she is in NJ.

     
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