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    Old 06-11-2009, 02:20 PM   #1
    gabrielkelly
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    New mom diagnosed w/vestibular disorder - looking for someone in same/similar place

    Hey everyone... I'm new to this site, and haven't had a chance to read too many stories yet. Although I noticed right away that tons of people are experiencing these balance/dizzy issues. While it brings me comfort to know that I'm not alone in this, it saddens me that anyone has to go through this. Not fun stuff.

    Anyway, here's my story in a nutshell - I was three months postpartum, doing great... and just getting to where I felt comfortable getting out and about with my baby boy. I had noticed a few times since delivery that I'd step on to the landing of our stairs at home, and felt like my feet were sinking into the floor. I thought it was strange, and even mentioned it to my husband... but quickly ignored it as it didn't happen again. SO, one night I brought my baby to a friends house for dinner, and when he started to fuss, I stood up with him and and started to rock him back and forth on my hip, and all of a sudden I got a really bad whooshy dizzy feeling in my head, and both feet felt like they were sinking into the ground as I rocked from one side to the other. The dizzy feeling went away really quickly, and didn't come back for some time... but the sinking feeling continued. Then, as the days went on, the sinking feeling became a pushing feeling, like I was being pulled backwards (not severely) and then forwards. THEN... - that feeling became a rocky boat sensation, and sometimes an up/down elevator thing. Since then it's remained that way. It's not all day, and some days are much better than others... but the bad days are just crummy.

    Through this process, I started off with regular doctors... who had no idea what the deal was... and because my ears looked fine by their eye, they refused to refer me to an ENT, and wont to this day. Unreal how insurance works. They gave me allergy meds and sent me home, which I couldn't take anyway as I'm nursing. Turns out my cousin's sister-in-law is a PT that specializes in these conditions, and said it sounded like I had a vestibular disorder. So I started off with a Chiropractor Nuerologist who I trust, and his treatments gave me some short-term relief, but didn't do the trick. While under his care though, I was able to get a referral for an MRI, and it came back clean. That gave me great peace of mind... but I still found myself fighting anxiety not knowing how I was going to feel from one day to the next, and trying to be a new mom on top of that. So now, I'm working with a physical therapist who is great, and he seems to have figured out what might be causing my particular disorder, although I still haven't gotten a specific diagnosis. He feels that it's a problem with my neck and my eyes and the way they're tracking. I continued throughout this process to get whooshy head feelings that last only for seconds... but never have had vertigo, which I'm extremely grateful for. I pray everyday that I wont have to endure that, as I don't see how it would be possible to take care of my son under those conditions. The other thing that's really important for me to mention, is that I've had three doctors now (MD, Nuerologist, PT) tell me that they are sure that my Postpartum hormones are aggrivating my symptoms... and feel that when they balance back out over time, that I should be feeling better. Wondered if any of you moms could shed some light on that, have you heard the same thing?

    LONG STORY (sorry) short... I just feel really overwhelmed sometimes, being a new mom, hormones out of whack, feeling like I'm on a boat everyday... I've been really sad some days as I so desperately want to enjoy these precious times with my baby, and I am... but wish things could be a little different. I have absolutely no one to talk to about this that truly understands. I know that anxiety comes hand in hand with these disorders, and I find myself staying home a lot, as I'm afraid to go out and have a bad episode or something. I don't want to live in fear... I feel like maybe the best thing is to just take baby steps and do one little outing a day with him. I've had this for almost four months, and some days I wonder if it'll ever end?

    Having said ALL of that, I AM a super positive girl... and I have a new acronym for myself... M.O.M. "Mom on a Mission"!!! A mission to beat the crap out of this disorder, and get on with my life. I know "this too shall pass", and I'm doing everything in my power to feel better. They say with these disorders to keep moving, moving, moving - so I walk everyday, workout... do my PT homework, etc. I don't want this to control me, I want to control it. So far I'm doing pretty good, and I can tell I'm seeing some early stage benefits with the PT. I pray everyday that this will be taken away... which brings me peace and comfort. In the meantime, I would LOVE to chat with a mom, or a new mom that is experiencing similar, if not VERY similar circumstances as myself. I not only could use some positive encouragement, but would love to cheer you all on as well. I hope this doesn't sound mean and selfish... but I'd prefer to chat with moms in particular, or women with super similar symptoms... and I'll explain why - - when I hear stories that deviate too much from what I'm experiencing, and are much more severe... it makes me stress a lot, and I don't know if I can handle much more worry at this point. Hope you all understand.

    Thank you so much... sorry for the novel. I hope to hear from another M.O.M. super soon.

    T.Kelly

     
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    Old 06-12-2009, 08:55 PM   #2
    Wilc516
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    Hello,

    While I do not know what specific symptoms you suffer from, I have a bilateral vestibular loss and have an 8 year old daughter. My balance system is shot, completely and out of the blue. I can relate to your situation completely.

    It is incredibly frustrating and the medical community seems to have little compassion and courses of treatment. There is a good deal of anxiety involved, I would imagine that would be amplified with postpartum hormones.

    There isn't much that I can say other then I understand and relate to your situation. Hang in there and take it day by day. A new friend told me in this condition (again, not knowing what your condition is exactly), its "use it or lose it". The more you force your brain to learn to re-do, the more functionality and confidence you gain.

    Best of luck to you!

     
    Old 06-29-2009, 12:55 PM   #3
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    Thank you so much for your reply, and sorry it took me so long to respond. My specific symptoms started with one quick vertigo episode. Then it lead into like a pulling sensation, and now I'm left with a rocky boat feeling that comes and goes throughout the day. I get some minor little wooshy head feelings, but nothing too bad and I'm not experiencing vertigo, thank goodness. My PT also discovered that I was having tracking issues with my eyes, etc. Which is actually getting alot better he said, but I don't get a ton of relief from the "on a boat" feeling. It also feels like the ground is moving beneath me sometimes. I also should mention that this all started with a cold. Based on all of this and the people I've talked to/research, this sounds an awful lot like Vestibular Neuritis... but the PT's that specialize in this that I've spoken to have all said the same thing... that it's less important to diagnose (since 1/2 the time people get mis-diagnosed anyway they said), and more important for them to recognize the symptoms and then treat them.

    So Long story short I'm kinda going with that for right now. I don't have any headaches, spinning, nasuea, etc., so at the end of the day I'm really very fortunate. BUT, I'm also working my butt off to make sure that I get better. I'm super determined. You're so right about the "use it or lose it" - everyone has said that. I've found that forcing myself to get out there and do the things I'd normally do help a lot, and with every little trip out, I feel more confident like you said. Exercise is also key for me. Walks, swimming, lifting small weights, etc., all help relieve the stress of this, and in turn help me with this yucky Vest. dysfunction. I wanted to throw that all out there in case it could be of some use to you/others too. I was also told by my PT and neurologist that exercise is the single most best way to get those signals goin' between your muscles and your brain. Do you live anywhere near a beach? They've been doing a lot more research on this with Vest. Disorders, and apparently, if you can take time and do your walking at the beach, or anywhere that you have a good view of the horizon, it's supposed to send that signal to your brain as far as where you're at in space... it centers you and tells your brain where the ground is, which in turn helps you balance. It's helping me SO much, I barely feel any symptoms at all when I'm there... so the theory is, the more and more I go, my brain will learn to rewire, and get me back on track.

    I hope some of this info was useful to you - I'm not super familiar with bilateral vestibular loss... do my symptoms sound like yours???

    I wish you so much success, and don't ever give up no matter what the doctors say. There's so much they still don't know about this stuff, and so much the brain is capable of... so have faith, and just keep moving, moving, moving... it's the best therapy, which I'm sure you already know.

    God Bless,

    T.Kelly

     
    Old 07-13-2009, 02:26 PM   #4
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    Gabriel - I could have written your exact post 3 years ago. I don't post here often, but like you I try to focus on people who have similar stories/symptoms. In my situation my vertigo started sometime around the birth of my first child. About 3 months after her birth I just really did not feel back to normal. I have seen one neuro-otologist, 2 ENT's and a PT. My first ENG showed a 44% difference in functionality of my R ear (no hearing loss), but now my tests are all normal. I have since had another baby and having dizziness with two small children is no easy task. While it may seem discouraging that I am still on this board after 3 years, I have improved over time. Sometimes I have to go back and look at my journal to remind myself that I am better than I used to be. I still have a boaty sensation nearly everyday, but the waves are certainly smaller than right after my diagnoses. I'm still looking for answers and hopefully a permanent solution, but in the mean time I do everything I can to help me have good days. I do PT everyday, get 3-4 days of cardio exercise/week, and I also listen to a relaxation podcast everyday. I also take 2 mg of Valium when I need it and it really seems to help. I am not the medication type and it was a last resort for me since I have been either pregnant or nursing for the first 2 1/2 years of my dizzy life. But now I'm in the clear to take something. I continue to be a M.O.M and wish the best in your recovery. Marcy

     
    Old 07-14-2009, 09:42 AM   #5
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    I was 8 months pregnant when this stuff hit. The fact that this happened around your pregnancy...leads me to believe you have MAV. Is there a Neurtologist in your area? I would suggest you go to have yourself evaluated.

     
    Old 07-15-2009, 09:49 AM   #6
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    Dear Marcy,

    I cannot tell you how happy I was to receive your response. I was starting to think I was alone in my particular circumstances, but I knew that didn't seem realistic considering how many people get hit with this. Anyway, I'm saddened to know that you are dealing with this as well, but felt very encouraged by what you had to say. I did want to clarify that I only had one episode of vertigo, (which leads me to believe that I don't have MAV) and was then left with the rocky boat thing... is that how it was for you? I do get a quick dizzy sensation sometimes, but no vertigo spinning type stuff. The only doctors I haven't seen yet are an ENT or neurotologist... I've been seriously hastled by insurance, and I'm still jumping through hoops. My question is, did you find their diagnosis to be helpful? (do you have a diagnosis?) Is there anything they can actually do for this, or is it just to get the diagnosis? Because I'll be honest, I'll do anything to feel better, but at the same time, I'm so drained from doctors visits, etc., that if they really can't help solve it, I'd rather just continue with PT. I've been chatting with a woman who's had vestibular neuritis for 5 years, and she's doing a ton better now, but what she's told me, and she seems to be more of an expert on this than most doctors I've talked to... but she and my VRT doctor both told me there's really not much they can do, that you just want to pin point the symptoms and get them treated. Wondered what your perspective is on that, and if you think it's worth me fighting to see those other types of specialists. Also, you mentioned you're doing PT everyday. I assume that means you're doing it on your own? What kind of therapy are you doing? I'd be interested to know in case there's something I could be doing that would help more. Right now I'm knee deep in eye therapy, cardio, hand eye coordination games like handball (I hear ping pong is excellent therapy but do not have a table yet), walking at the beach (apparently seeing the horizon while exercizing is great for this), and now he has me going into big stores like Target, etc. - I've been avoiding those places because my symptoms get worse, which cause me anxiety. But what I've learned since is that by doing the things that make you most uncomfortable, it helps retrain your brain to compensate for the vestibular damage, which in turns helps the symptoms, and hopefully over time relieves them completely. I'm a super positive, energetic person, so to feel that I'm being held back in any way, because of physical or anxiety type of reasons, it can be discouraging some days, especially as a mom. To feel like I can't run down to get diapers, formula, etc. because of how I'm going to feel in a store is really frustrating. But I'm so determined to not be held back by this. Did you go through that in the beginning at all? Sometimes I feel like a total freak, but hear that the anxiety pretty much comes hand in hand with this. I know by stretching myself and getting out of my comfort zone will give me more and more confidence to get back to my normal life. I like that you've kept a journal, I think I definitely need to do that so I'm aware of my victories and not worrying about the yucky days.

    The other thing that was super encouraging to me is that you had another baby. I would SO love to have another, but I'm afraid of this getting worse, etc. Could you shed some more light on that? I definitley don't want to ever let this condition rule my life and life decisions...

    As far as the valium, I've been told by others how helpful that's been too. I heard that just the 2 mg helps take the edge off the symptoms. Is that something to consider over time, or something you'd recommend right away for the bad days. What are the possible side affects? I definitely avoid any type of drugs, but if there's something that could help a little on the really bad days, I'd maybe consider it. BTW - Would you say your symptoms are significantly better than three years ago?

    In the meantime, I'm all about the exercise like you, and relaxing music, etc. I hope you don't mind my super long reply - I'm just so anxious to chat with someone that truly understands what this is like... so would love to keep in touch if that's ok.

    Thanks again everyone for your replies, and Marcy for your super helpful post. Looking forward to hearing from you...

    TK

     
    Old 07-15-2009, 10:15 AM   #7
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    Smile Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    BTW, I'm SO happy you're a M.O.M., and I hope to encourage other M.O.M.'s the way you've encouraged me...

     
    Old 07-15-2009, 01:26 PM   #8
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    I have such "oatmeal brains" these days... one more question I forgot to ask, sorry to bombard you - but was wondering... how long did it take before your symptoms began to improve? Was it months, years? I know everyone is different, but because our stories seem so similar, thought it wouldn't hurt to ask. Thx

     
    Old 07-15-2009, 02:28 PM   #9
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    TK - So glad you responded, I'll try to answer your questions to the best of my abilities. First my initial diagnosis from the Neurotologist was VN. He told me I would be better in a few weeks. He told me he didn't think PT was necessary. Obviously a few weeks came and went, I went back 4 months later had another ENG. My test came back within normal limits and I couldn't understand why I was still dizzy. He told me I had "floating female" syndrome (doesn't exist) and gave me meclizine which just made me tired and dizzy. I asked him to refer me a a PT. The PT was helpful, and helped a lot with my balance, but the underlying dizziness was still there. I decided to go back to the neuro (don't ask me why) and he prescribed me diphendol. I filled the prescription and thought I better take a pregnancy test first just in case. It was positive (crazy since it took us 1.5 years to get our first). So much for the meds! I was thrilled about the pregnancy but scared in what it might do to my symptoms. To tell you the truth, my symptoms really didn't change all that much. They were a little worse in between trimesters but I think that is when you have the biggest hormonal changes. It is the aftermath of having a baby that makes things worse - hormone changes, lack of sleep etc. But I did really well as my husband understood I had extra needs.

    Since baby #2 I nursed for 8 months went to another PT who specializes in inner ear. She speculates that my condition is still going because of either migraine or anxiety. She highly recommended going on some type of medication but if I wanted to try something more natural I could do the PT and exercise. She has me doing eye exercises with a busy background, sounds like what you are doing is even more intense. She also wants me to do cardio activity 3-4 times/wk 20-30 min at least, yoga 2x/week, and 10 min. of relaxation every day. I did that for 4 months - and saw an improvement, but still thought I needed that extra something to help. I went to my GP and he prescribed valium. I usually take about 1/day sometimes none and sometimes 3 and it really seems to take that boaty sensation away. He also said I could take it while nursing - but I would be careful with that. My baby weaned himself around the time I started taking it, so I've been on it ever since.

    Back to your questions "dizziness at the store": Absolutely! Those first few months were horrible. Stores don't bother me anymore unless I'm having a bad day- then I just take a valium before I head out.

    Seeing specialists - Good question! you might find yourself improving from the PT and not need to go to those lengths but if you're still having problems I would go see one. I know how it is trying to arrange dr. visits and such. I am currently in the market for another neurotologist (I'll probably have to travel out of state though). I would love to have a diagnoses other than floating female then I could possibly find a treatment. My guess it that most docs are going to prescribe drugs. In my case I really think I gave every effort of healing naturally - I'm still dizzy so I would like to find a specialist that can help me figure out the right med and not just use valium as needed. It's hard though, I still want more children and I'm sure most meds aren't compatible with pregnancy/nursing.

    Valium - I really don't notice any side effects at all. Occasionally if I'm having a bad day and need to take 3 I'm a little tired but rarely. So if you want to try it, it's worth talking to one of your docs. about it.

    Improvement - I would say a good 9 - 12 months. I know my triggers for bad days now so that helps (fatigue, menstrual cycle, hunger, stress). Keeping a journal will help you figure that out. I still go through bad days but nothing like the biggining.

    I really hope you don't have to deal with this as long as so many people on this board. Try not to dwell on it too much. I always feel much worse when I'm fixated on it. I stay busy and distract myself. Keep me updated on your progress and I'll keep you posted on mine. Best wishes and let me know if I left anything out. Marcy

    Last edited by mkmjohn1; 07-15-2009 at 03:01 PM.

     
    Old 07-16-2009, 10:52 AM   #10
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    Quote:
    Originally Posted by gabrielkelly View Post
    Hey everyone... I'm new to this site, and haven't had a chance to read too many stories yet. Although I noticed right away that tons of people are experiencing these balance/dizzy issues. While it brings me comfort to know that I'm not alone in this, it saddens me that anyone has to go through this. Not fun stuff.

    Anyway, here's my story in a nutshell - I was three months postpartum, doing great... and just getting to where I felt comfortable getting out and about with my baby boy. I had noticed a few times since delivery that I'd step on to the landing of our stairs at home, and felt like my feet were sinking into the floor. I thought it was strange, and even mentioned it to my husband... but quickly ignored it as it didn't happen again. SO, one night I brought my baby to a friends house for dinner, and when he started to fuss, I stood up with him and and started to rock him back and forth on my hip, and all of a sudden I got a really bad whooshy dizzy feeling in my head, and both feet felt like they were sinking into the ground as I rocked from one side to the other. The dizzy feeling went away really quickly, and didn't come back for some time... but the sinking feeling continued. Then, as the days went on, the sinking feeling became a pushing feeling, like I was being pulled backwards (not severely) and then forwards. THEN... - that feeling became a rocky boat sensation, and sometimes an up/down elevator thing. Since then it's remained that way. It's not all day, and some days are much better than others... but the bad days are just crummy.

    Through this process, I started off with regular doctors... who had no idea what the deal was... and because my ears looked fine by their eye, they refused to refer me to an ENT, and wont to this day. Unreal how insurance works. They gave me allergy meds and sent me home, which I couldn't take anyway as I'm nursing. Turns out my cousin's sister-in-law is a PT that specializes in these conditions, and said it sounded like I had a vestibular disorder. So I started off with a Chiropractor Nuerologist who I trust, and his treatments gave me some short-term relief, but didn't do the trick. While under his care though, I was able to get a referral for an MRI, and it came back clean. That gave me great peace of mind... but I still found myself fighting anxiety not knowing how I was going to feel from one day to the next, and trying to be a new mom on top of that. So now, I'm working with a physical therapist who is great, and he seems to have figured out what might be causing my particular disorder, although I still haven't gotten a specific diagnosis. He feels that it's a problem with my neck and my eyes and the way they're tracking. I continued throughout this process to get whooshy head feelings that last only for seconds... but never have had vertigo, which I'm extremely grateful for. I pray everyday that I wont have to endure that, as I don't see how it would be possible to take care of my son under those conditions. The other thing that's really important for me to mention, is that I've had three doctors now (MD, Nuerologist, PT) tell me that they are sure that my Postpartum hormones are aggrivating my symptoms... and feel that when they balance back out over time, that I should be feeling better. Wondered if any of you moms could shed some light on that, have you heard the same thing?

    LONG STORY (sorry) short... I just feel really overwhelmed sometimes, being a new mom, hormones out of whack, feeling like I'm on a boat everyday... I've been really sad some days as I so desperately want to enjoy these precious times with my baby, and I am... but wish things could be a little different. I have absolutely no one to talk to about this that truly understands. I know that anxiety comes hand in hand with these disorders, and I find myself staying home a lot, as I'm afraid to go out and have a bad episode or something. I don't want to live in fear... I feel like maybe the best thing is to just take baby steps and do one little outing a day with him. I've had this for almost four months, and some days I wonder if it'll ever end?

    Having said ALL of that, I AM a super positive girl... and I have a new acronym for myself... M.O.M. "Mom on a Mission"!!! A mission to beat the crap out of this disorder, and get on with my life. I know "this too shall pass", and I'm doing everything in my power to feel better. They say with these disorders to keep moving, moving, moving - so I walk everyday, workout... do my PT homework, etc. I don't want this to control me, I want to control it. So far I'm doing pretty good, and I can tell I'm seeing some early stage benefits with the PT. I pray everyday that this will be taken away... which brings me peace and comfort. In the meantime, I would LOVE to chat with a mom, or a new mom that is experiencing similar, if not VERY similar circumstances as myself. I not only could use some positive encouragement, but would love to cheer you all on as well. I hope this doesn't sound mean and selfish... but I'd prefer to chat with moms in particular, or women with super similar symptoms... and I'll explain why - - when I hear stories that deviate too much from what I'm experiencing, and are much more severe... it makes me stress a lot, and I don't know if I can handle much more worry at this point. Hope you all understand.

    Thank you so much... sorry for the novel. I hope to hear from another M.O.M. super soon.

    T.Kelly

     
    Old 07-16-2009, 11:32 AM   #11
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    Hi, i've just read you're very first post about you're dizziness u experienced not long after you had you're son. I too had exactly the same experience about 2 months after having my son and still 3 years later i am getting dizzy spells, eyes cant focus properly and feeling very tired and shakey most of the time. I also find going into large super markets a real problem and i do avoid them. I went to see my Doctor but he put it down to tiredness so i made sure i slept more but still no change after visiting my Doctor at least twice a week for a couple of months they sent me to have an MRI and that was clear thank goodness! I was then sent to a physio therapist but that did'nt seem to help much i was sent to an ENT specialist and he did a few tests on me but found nothing so i just gave up, i guess i had convinced myself it was all in my head. I began to get quite depressed because i could see no way out and i thought no one believed me not even my family so my doctor put me on citalapram for anxiety and i found that really helped me but i stopped taking them because i was worried about getting dependant on them.I started running 3 times a week and that helped loads I don't go out much if i can help it because i'm worried something might happen and i find sitting round the house makes it a lot worse. I know exactly how you feel its very frightening and u feel very much alone. I have decided to go back to my doctor after reading you're post because i now know i'm not going mad and there are ppl out there that can possibly help. You sound like a very positive person and i think i also need to stay positive and not let it take over my life, i wish you all the best in you're quest to get better x x x x lucy

     
    Old 07-18-2009, 12:30 PM   #12
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    Lucy, I'm so glad you reached out and posted your reply. What I've learned through this process is that YOU are not alone... WE are not alone. And, you are definitely not going mad. It's truly unfortunate that regular GP's don't seem to have a clue about this stuff. It boggles my mind because it's so extremely common, yet there seems to be very little sympathy or knowledge for it in the general medical industry. Having said that, I think being in touch with people going through it, and people finding success with their treatments is very, very helpful. I was so lost in the beginning of this, I had no idea what was wrong. I've even found that friends (friends who I've put my blood, sweat and tears into) have dropped off the planet, it's like they don't believe me at all... either that or they simply have no patience for it whatsoever. That's what's tough about this, our symptoms are "invisible". We look fine on the outside, but are struggling on the inside. I wanted to cry when you said that no one believed what you were experiencing. I'm so sorry you've had to go through that. Just know you have a bunch of M.O.M.s on this site who WILL believe you, and we'll cheer you on.

    SO, it did my heart a WORLD of good to know that my post encouraged you. I've always said that if I could even encourage just one person through my experience with this, it would all be worth it. Don't give up!

    So let me ask you a few questions. First, do your symptoms get worse with hunger, fatigue, stress, anxiety, menstral cycle, etc.? Marcy, another M.O.M. on this thread of postings noted that her symptoms get worse during those times, and I'm the SAME EXACT way. So knowing that, it makes it easier to know how to get trough those bad days. The key ingredient to making these conditions better (including the anxiety) is moving, which would include lot's of cardio (it's awesome that you're running), water aerobics (not necessarily with your head under water if it worsens your symptoms), yoga, ping pong, hand ball (for the hand eye coordination stuff), etc. That's exactly why you feel worse when you sit around the house, I'm the same way. I don't know why that is, it just IS. However it's good to have a balance. If you're truly tired it's good to try and squeak in a cat nap if possible, as fatigue usually makes this worse.

    My second question is, do you recall the circumstances leading into your first dizzy spell? (spinning vertigo, or just dizziness?) Other than your postpartum out-of-whack hormones which we all go through after having a baby, did you have a cold or flu prior? These conditions more times than not start with a virus, usually a common cold. Given that your ENT found your results to be normal, it's possible that you are suffering from a vestibular dysfunction as well. Is your only symptom dizziness? Do you have any rocky boat feelings or imbalance episodes like me? Vestibular D. often coincides with eye disturbances too, like bad tracking, etc. What happens is, if a virus caused it, it's not that you have the virus still, but the virus goes in and damages the vestibular nerve, leaving us with these awful symptoms.

    Anyway, I'm getting ahead of myself because I'm not sure how this all started for you - I'm so glad you're going to your GP...I would begin by seeing if they'll refer you to an eye specialist, (they could definitley help you if they find something), and a Physical Therapist that specializes in VRT. Vestibular Rehab Therapy. It should help quite a bit with your dizziness, and if it's done by referal through your GP, it should be paid for through your insurance. They will focus on eye exercises, hand eye coordination exercises, etc. Another part of my therapy right now is to actually go into the stores that make me most uncomfortable. Did you know that the reason why we get so anxious in those settings is physiological... because we lose our horizon. Do you tend to feel much better outside? If so, that's why. By forcing yourself into any uncomfortable situations, the good news is your brain totally has the ability to recompensate which in time should help or even relieve your symptoms. Of course it's also emotional anxiety that plagues us as well, because we're moms with kids that we're responsible for, so we totally physce(sp?) ourselves out before going into a store because the last thing we want to do is be stuck with our babies feeling like that. It's NO FUN at all. I feel your pain.

    I, like you, want to avoid taking meds if at all possible. I'm such a light weight and very affected by even stuff like advil... I like to treat things as naturally as possible. I also want quality of life. If I need to temporarily I may look into something for anti-anxiety... but I'm trying really, really hard to pull myself out of it through exercise, calming music, yoga... and challenging myself to do the things that have me anxious. Start small, go to a small store, the same one several times until your comfortable, and then try a different one. And try not to be hard on yourself or feel guilt if you struggle. Time will heal all of this!

    Also, google vestibular rehab therapy exercises... it'll give you alot of great ideas. Alot of people with this are finding relief and success doing all of this on their own. Also, drink a ton of water, eat healthy... take a multivitamin, and B-12 vitamins are excellent for helping in relieving stress.

    I hope this helps... you may have already read up on all of this, but felt compelled to send you some little tips.

    Please keep me posted on how you're doing... and don't forget to be a M.O.M.

    You're all in my prayers... We ARE going to beat this!!!

    T.K.

     
    Old 07-21-2009, 11:54 AM   #13
    lucy9877
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    Re: New mom diagnosed w/vestibular disorder - looking for someone in same/similar pla

    Hi T.K.
    Thanx for getting back to me i do appreciate it.
    well today i went back to the doctors about my dizzy episodes armed with some information on MAV but she did'nt seem too convinced and just offered me some migraine medication which i declined and oppted for the physio therapy instead.

    You asked what happened the first time i felt dizzy, i was in bed and my vision went very strange almost tunnel like, i stood up and it felt like the floor was moving and i was swaying. When i got up the next morning it had gone but over the next couple of days the swaying got worse and worse and when i was rocking my son to sleep i felt like i was gonna fall because i was swaying so much. now i get swaying, wooshing, light headedness, neck pain, ear pain and i feel like my heads gonna pop and my eyes are very tired and strained and dont seem to keep up with my head movements (tracking problems)
    I find that when i'm anxious my symptoms are much worse and the same when i'm tired also during my menstral cycle.
    I'm going to keep a food diary for the next few weeks to see if anything i've been eating or drinking has been triggering it off. I love chocolate and now know thats not good for people that suffer with migraines so i'll cut that out completely also caffeine.

    Going into stores is a real problem at the moment and i'm going to try and visit one at least twice a week to begin with just to get used to it, its very interesting what you said about the horizon thing because you're right as soon as i leave the store i'm perfectly fine, also when i'm preparing a meal in my kitchen i feel really dizzy and i have to have one eye shut sometimes because i find that helps a little.
    Do you find it gets worse when you're in the house rushing round, cleaning or looking for things e.g car keys, if i lose them and start to search the house for them it causes real bad dizziness and i then get a head ache, its all very strange! i can set my watch by my dizziness in the mornings, by about 11 i begin to feel dizzy but only if i'm at home and thats something i find very strange indeed and i cant put my finger on what it could be thats triggering it off any clues???

    I hope you're doing ok, oh yes i noticed you askjed about using running machines, i used one a few times at the gym and it caused my dizziness to get worse, when i got off the machine i felt as if the floor was still moving i get that with escalators and elevators too but when i go for a run on the roads i have no such problems at all and i feel great after a good run

    take care speak soon
    Lucy x
    oh yeah a M.O.M. x x

     
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