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steve77 11-25-2009 06:56 AM

How to get well from dizziness!
I wanted to write my story on all the major dizziness websites to enlighten you, encourage you and prove to you all that there is a way out of the dizziness hell hole!

My dizziness journey began in February 2006 when I was 6 weeks pregnant with our first baby. I was a fit and healthy 26 year old with minimal previous medical history. The spinning vertigo attacks would came out of the blue and were terrifying and debilitating to say the least. In between I would feel spacey and incredibly dizzy and generally unwell. Both the GPS and the midwives were baffled and put my symptoms down to pregnancy.

The birth of our son Isaac in the November of that year proved to be a pinnacle for the dizziness, unfortunately in the sense that things became much worse. I was spinning almost 24/7 and some days I would just faint all day or feel incredibly out of it. The GP tried to diagnose me with depression, but im a hearty woman and knew I defiantly did not feel depressed just unwell!

I am now told I am one of the lucky ones as I did have a diagnosis at this point from an ENT consultant who believed it to be an inner ear problem. This was great as I was at least respected and not treated like a loon, as im told so many people with chronic dizziness are. I was given exercises to do and told that things would improve. However they did not, they just got worse! I spent the good part of a Year in bed and it was only by chance that a friend mentioned the term a neuro-otologist! This happens to be someone who specializes in dizziness and is a consultant who has in fact completed extra training on top to specialize in this key area.

I am so passionate about this as I did get the right diagnosis in the end and my condition was easily treatable. This has been the worst three years of my life and I know im only 28 but I had already experienced some tough things as my brother committed suicide and our family was not the best, but I have to say this illness really took me to the edge and back. I am a midwife and my husband is a surgeon and none of our medical friends have heard of neuro-otologists, so I dread to think what the general public understand in regards to this matter. Dizziness is so common, that I feel it is important and fair that people know they exist.

One of the main problems neuro-otologists face are Neurologists and ENT consultants who feel frightened of this specialty as it takes a lot of their business, whilst lowering their self esteem as they claim to understand dizziness too. They do indeed understand a fair amount in regards to dizziness but they specialize in other areas. It is such a shame that they do not see this change as positive rather than arrogantly carrying on blindly.

If I can spare just one person one dizzy day in bed then my illness has been worth it. There are over 300 causes of dizziness, many easily treatable and if not cured then well controlled. I gave away over two years of my life to an illness that if had been diagnosed earlier could have been treated within a matter of weeks. I cannot impress on you enough that if you have chronic dizziness that is not improving please see a neuro otologist who will give you a correct diagnosis, therefore leading to the correct form of treatment for your illness.

The Consultant I saw was Dr S. S Surenthiran who has been fantastic. He is one of the best neuro-otologists in the world and is just opening a major balance centre in Fitzroy Square London, he also has clinics at The Blackheath Hospital.

I know a lot of people go to see Professor Linda Luxon, but having spoken to many dizzy sufferers her success rate of correct diagnosis seems to be poor and her overall patient care a little dated! I did have dealings with her myself personally and she too misdiagnosed myself. I have added this in as I feel too many people out there are so vulnerable when they are unwell and end up stuck with a wrong diagnosis and dont push any further than Professor Luxon.
I am back working as a midwife and doing ballet and most importantly LIVING! I promise there is a way! Just remember to follow the light and ignore the dark cracks along the way. Lara

Zoe26 11-25-2009 10:55 PM

Re: How to get well from dizziness!
Know a good one in NY by any chance?? :)

Lucille88 11-28-2009 12:19 PM

Re: How to get well from dizziness!
What did you do to get yourself treated?

friendsville 11-28-2009 06:33 PM

Re: How to get well from dizziness!
I loved your post,but I wish you had given a HINT, as to the treatment given to you by the neuro-otologist.I would like to know,as I have some inner ear problems. I am battling periodic dizziness,which precludes me driving any vehicle.I have heard of this type of doctor,and will check this out. Thank you so much for sharing this information.Best of luck. Bill

LaVanity 11-29-2009 11:00 AM

Re: How to get well from dizziness!
What was your diagnosis?

Dizzygal 12-01-2009 06:44 PM

Re: How to get well from dizziness!
It would be helpful to know what your diagnosis was and what the treatment was?

Dizzygal 12-08-2009 06:36 AM

Re: How to get well from dizziness!
Wow-doing ballet!? I too wish one of the 4 ENT's that I went to would have sent me to the neuro-ENT down the block, would have saved me thousands of dollars and over 2 years of misery not to mention my job. I am unable to work and drive at this point but am slowly getting better with VRT. You have given me some hope though and that is worth it's weight in gold at this point in my life.
I even went to a naturopath who told me it was a yeast infection, I ended up in the hospital with low potassium because one ENT gave me diazyde to "get the fluid out of my inner ear". One ENT in Omaha, B.T. who everyone says is the best ear dr. in town, just told me it would take time- and I have bilateral vestibular disorder with migraines. He offered no treatment whatsoever except valium and meclizine which just made me sleepy.
Thanks, Karen

studyin 12-08-2009 03:21 PM

Re: How to get well from dizziness!
hi Guys,

This person had Migraine Associated Vertigo and was treated as follows:

Started on amitriptyline, the MAV diet and sufficient rest/hydration. Also started to wear a hat and sunglasses everywhere as this helped with the light sensitivity immensly! Now on 70 mg of nortriptyline. The doctor thought the side effects would be too great on amitriptyline. The diet works wonders for too but if i stray onto anything with flavourings, yeast extract, or barley malt extract, which you are probably aware are all forms of MSG, it brings on varying symptoms! I now go without a hat and glasses and most of the time notice no symptoms!

Best ... Scott

ktsooners 12-08-2009 06:58 PM

Re: How to get well from dizziness!
It is GREAT that you have been relieved of the 24/7 dizziness...please expand on diagnosis, treatment, etc.
My husband has been "dizzy", seen every doctor, had every test except the rotational chair and so far nothing....

studyin 12-08-2009 07:00 PM

Re: How to get well from dizziness!
[QUOTE=ktsooners;4139661].please expand on diagnosis, treatment, etc.[/QUOTE]
See above post. S

ktsooners 12-08-2009 07:28 PM

Re: How to get well from dizziness!
Sorry, I guess I did not scroll down far enough to see Scott's response.

Scott, I was wanting to get some information from you as you seem to have a lot of insight. As I mentioned, my husband has been to just about every Dr. associated (ent, neuro, neurosurgeon, blah...). He has even sent his records off to two specialists that looked at everything and one said he could see no vestibular problems and the other basically agreed and diagnosed him with MAV. He tried the diet and has been on verapamil (sp?) for months but no change. He's also tried acupuncture (she said it's all due to allergies & candida) and chiropractor, all to no avail. His latest attempt has been to take 2.5mg valium in the morning and evening. While he thinks this is giving him some relief (I just think it's taken the edge off because he still doesn't feel all that well) I find that he just comes home and crashes. In my research I have come across a Dr. Jeffrey Staab, Mayo Clinic, that has studied "Chronic Dizziness and Anxiety" and resulting treatment with SSRI.
Do you know of anyone that has had success with taking SSRI for dizziness?
I would appreciate any information you have to share.
In addition, we will be starting on the road to get a 2nd opinion at the beginning of the year. My question is should he start from scratch w/a new physician/clinic or continue to send the same records? At this point, we are considering taking the leap and traveling to the best facility we can find but I feel very strongly that it would be in his best interest to start over with all of the testing. Any thoughts??

Thank you for your input (& your time)!!

studyin 12-08-2009 07:44 PM

Re: How to get well from dizziness!
Hi kstooners,

Good to see you're doing your homework on this because we really have to. Not many no what to do about this garbage.

You're on the right track. Yes, SSRIs are effective for this for some people (including me). Verapamil does not always work as we have seen on mvertigo but for some it does. Migraine is a nerological disorder of the brain that involves many different chemical pathways. Every migraineur is different and has different problems with these pathways. For this reason finding the right treatment can be difficult. Forget verapamil and move on. The next med you might like to try is Effexor or Nortriptyline. Dr Hain uses the former with great success for MAV and Rauch likes Nori. Tell your husband to keep using the valium when necessary. This drug is one of the best for MAV relief but should not be used daily. Klonopin might be ok at 1 mg daily however. Best to consult with one of the docs below.

I would suggest you seek out any of these doctors in the US:

Dr Timothy Hain, Chicago (you can do a phone consult)
Dr Steven Rauch, Mass. Eye & Ear Infirmary
Dr Robert Baloh, UCLA
Dr Carolyn Bernstein (not sure how well aquainted she is with MAV)

Good luck ... Scott

edit: I forgot to mention that your husband should not waste his time with chiropractors and acupuncture. Neither of these treatments is effective for anything apart from some evidence that chiro adjustments may help with lower back pain but that's it. An acupuncture session may be calming and helpful if they incorporate massage too but it will do nothing to alleviate this illness (or anything for that matter). A lifestyle intervention followed by meds (if lifestyle is not enough) is the only way to manage MAV.

Dizzygal 12-09-2009 01:11 AM

Zoloft or Buproprion for dizziness?
Has anyone tried buproprion or zoloft? I used to take buproprion for depression but now as I look back the dizziness got worse as I weaned off of it.
Then started Zoloft several months later for the dizziness and it did help clear my head but I am awake every night for a couple hours.

Zoe26 12-11-2009 03:40 PM

Re: How to get well from dizziness!
What is the MAV diet?

Can you have MAV if you don't get migraines? Does that make sense?

studyin 12-11-2009 07:21 PM

Re: How to get well from dizziness!
Hi Zoe,

Yes, migraine can occur without headache. Migraine is a neurological disease and not just a headache as so many think. That's a myth.


dino1736 02-20-2010 02:39 PM

Re: How to get well from dizziness!
Hope that I'm doing this correctly. I'm 74 old and have been helped a lot by website such as yours. This is my first posting, so I pray that It comes out o.k.

I woke up one morning about 6 months ago and the room was spinning around. I was shocked, and I woke my wife and told her what was going on. Being a Pharmicist tech, she knew right away what it was. She cradle my head and then I was able to walk to the bathroom. But it linger, so I knew that I had to do something. Then I search the net and found out about the Epley Maneuver. My wife tried it on me, but I was still dizzy. One of the doctors in my doctors office is an O.D. Physician. I asked her if she knew of the Epley Maneuver and she said YES. She laid me on the table and moved my head below the table and moved it back and forth and then raised me up quickly. The manuever took less than 5 minutes and then Voila, the Vertigo was gone. Praise God!! it's been over 6 months and it has not returned. I hope this can help someone.

alborde 02-20-2010 08:07 PM

Re: How to get well from dizziness!
if i were you, i would start a new thread with a new topic.
you have new information to add that is different from the original poster.
that way, people are more likely to read what you wrote.
so glad to hear your good news and welcome!

studyin 02-21-2010 02:08 AM

Re: How to get well from dizziness!
Hi Dino,

You suffered from a very common vestibular problem that occurs with a much higher frequency in older people BPPV. The Epley or Modified Epley Procedure (MEP) clears these things up quite well (ocr 90% success rate).

Don't praise God, but praise the hard working scientists who develop these techniques. Without them, you could still be feeling dizzy.

All the best ... Scott

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