It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Inner Ear Disorders Message Board

MAV or Meniere's or what?...

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-18-2011, 02:27 PM   #1
Junior Member
Join Date: Jan 2011
Location: New London, CT
Posts: 17
sukanya HB Usersukanya HB User
MAV or Meniere's or what?...

I've been on this board for about 6 months.
My backstory: I got vestibular neuritis last November.. It turned into BPPV earlier this year, I started VRT in April and by May ,my symptoms were all in check.

About 10 days ago I suddenly started feeling randomly dizzy. It was a Friday night and I decided to sleep it off. Woke up the next day feeling okay. The following week (last Monday), I started a new job. I've been unemployed for a year and a half, so it's been a big adjustment starting a new job. I stare at the computer all day, and last Tuesday I started getting really lightheaded/spacey at work... It's this "drunk" feeling that I always used to feel before. I came home that night and did an Epley, sure enough there was spinning when my head was back and to the left. The following days were rough, I Was very tired and by the time, nighttime came, I was so lightheaded, all I could do was lay down. On Friday night, I did an Epley and to my surprise... no spinning. On saturday, I spent the day in NYC, and by the time we got home that night I was so lightheaded, I needed help going up the stairs. I did the Epley Saturday and Sunday and once again, no spinning.

Another thing I should mention is that I've found over the past few months that when it's around "that time of the month", I feel very lightheaded and anxious and nauseous.. It always starts happening a few days before my period. This month, because of work, I don't have the luxury to just lay down and relax.. so I thought that played into it.

I should also mention that my ENT is a pompous youknowwhat. However, he's my only choice because he's a family friend and I have NO health insurance right now, so he's nice enough to see me for free. Today I saw him in regards to these new issues I am having. While he didn't outrightly say "You have meniere's disease" he mentioned it several times, and gave me a diuretic to take for 3 months.

I've never had true spinning vertigo (except during the epley maneuver), just a lightheaded/drunk kind of feeling. I also have NO hearing loss or fullness in the ears... so I am not sure why he gave me the diuretic. I do have tinnitus, but it's something that comes & goes ever since I had vestibular neuritis.

As someone who over-thinks everything, I am petrified. My #1 fear from the start was that I would eventually get Meniere's.. and now here I am given a medication that controls it. Though he did not say I have it just yet, he did mention that the age of onset is near your 30's.

I completely forgot in my appointment to mention Migraine Associated Vertigo (MAV) to him... as I do get migraines (food allergy, and sometimes period/weather related. But rarely ever with dizziness). But I forgot to say it, and I was also kind of afraid, because he's the type of doctor who doesn't like when his patients self-diagnose themselves. I really wish I could go see someone else for a second opinion... Except I don't have health insurance right now, and could not afford the out-of-pocket expense... Dr. Pompous is my only option.

I know that no one on these boards are a doctor, but for those with Meniere's, how did the doctor come up with your diagnosis? Do those with MAV have similar symptoms? Any females out there whose symptoms get worse with their periods?

I haven't felt this alone & scared since my diagnosis with vestibular neuritis. I know how much anxiety and fear play into dizziness, so I think that talking with people will give me more piece of mind.

Thank you

Sponsors Lightbulb
Old 07-18-2011, 06:05 PM   #2
Join Date: Dec 2010
Location: San Francisco, CA
Posts: 456
bindar HB Userbindar HB Userbindar HB Userbindar HB Userbindar HB Userbindar HB Userbindar HB Userbindar HB Userbindar HB Userbindar HB Userbindar HB User
Re: MAV or Meniere's or what?...

I dont think your symptoms merit a Meneires diagnosis because you dont have all the symptoms. Meneires causes true vertigo, not lightheadedness, and not positional vertigo like you experience.

MAV usually surfaces around that time of the month for women. MAV can describe all of the symptoms you experience, even the positional vertigo. This diagnosis is greatly strengthened with your history of migraine headache.

You dont need to be petrified that you will eventually get Meneires, its very rare (2/1000 people). MAV is MUCH more common, and it describes your symptoms perfectly.

Here is a good plan of action to get you started. I would start the migraine diet and lifestyle, and strictly adhere to this for 1 month. If this does not eliminate your symptoms, then I would find some online medical journal articles on MAV and take them into your doctor and ask for prophylactic medication.

Last edited by bindar; 07-18-2011 at 06:09 PM.

Old 07-22-2011, 06:00 AM   #3
Join Date: Dec 2008
Location: Westminster, CA Orange County
Posts: 6
Puddinsnana2007 HB User
Re: MAV or Meniere's or what?...

Sukanya, I was diagnosed with Vestibular Migraines 3 years ago. I think mine are definately hormone related too. I am 56 and don't have periods but they come in monthy cycles just like a menstrual period. Mine are mostly symptoms of motion sickness, clumsiness, difficulty speaking due to mixed up thinking process, and very sensative to loud sudden noises. I just posted about my very simple medication therapy that you can read under Puddinsnana2007 posts. Good luck to you! Rachel

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Vestibular Neuritis or Meniere's? Starrla Inner Ear Disorders 4 10-17-2010 10:24 AM
Can Epley maneuver make bppv/meniere's worse? dadsdizzy Inner Ear Disorders 12 03-23-2010 04:35 AM
Meniere's, Bppv, or VN? Ronnen Inner Ear Disorders 1 06-29-2009 01:36 PM
Meniere's success story. Earthangel Inner Ear Disorders 4 08-28-2007 08:58 PM
Meniere's Disease? meniero Inner Ear Disorders 22 09-28-2006 09:32 AM
Perilymphatic fistula and Meniere's disease studyin Inner Ear Disorders 0 06-21-2004 01:52 AM
? on Meniere's beckaboo Inner Ear Disorders 6 06-07-2004 03:50 PM
Meniere's questions MJacobson Inner Ear Disorders 10 05-03-2004 03:24 AM
New diagnosis, not Meniere's disease for me... jtiegs Inner Ear Disorders 8 10-14-2003 06:49 PM
Meniere's and Cochlear Meniere's kayepher Inner Ear Disorders 0 03-09-2003 10:47 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:49 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!