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Just diagnosed after 2 1/2 years

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Old 11-15-2012, 03:50 AM   #1
Join Date: Nov 2012
Location: UK
Posts: 1
elementsofme HB User
Just diagnosed after 2 1/2 years


I wanted to share my story. I was CE with a high flighing career. I was at work and felt terrible one day, the world was wobbling, my face went numb, I couldnt see straight and I couldnt think straight. I went to the Docs - he said I had winter blues and to go away basically. I kept going that week and on the Friday morning I passed out the symtoms were so bad. I was diagnosed Labrynthitus at the hospital (I now know wrongly) My stupid doc however didnt believe that and signed me off with malase (tiredness).
I was off work 3 months and for 3 weeks actually couldnt sit up never mind stand!! They did a brain scan - it showed nothing.
I then staggered back to work - no medical support, no care and a huge job to face.
I noticed my brain didnt work like it did. It was slower, actually stalled in places, the world appeared wobbly, strange, I was disconnected, I stumbled alot and slurred, it left me with crazy tinitus and the unbearable life sapping exhaustion and I couldnt process conversations and my brain forgot whole passages of information, I cant track maps and now dont like busy places and shops are a nightmare. My eyes were dry too.
I continually went to the GP for 2 1/2 years - I was diangnosed depressed, stressed, menopausal, ME, name it!!!
I then went for a hearing test and it showed very strange unusual deafness. I went back to my doctors - this time I lost it ...........not me but I was at my end. I had hidden in 3 jobs - moving when I was spotted not to be the woman I was and trying to keep my life together.
This one took me seriously and called it an episode - she sent me to an Audiovestibular Physician. He said I had been mis diagnosed. I had had Bilateral Vestibilar Neurolitis and it had left me with Bilateral Vestibular Hypofunction, with visual vertigo and also I wasnt deaf I was also left with APD (Audi Processing Disorder) bascially he recognised I had been a very sick lady (how important was that to me!!!!!!!!) . My right side is the worse with no function at all and my left is just severly damaged!!
I now face months of rehab and continual tests to find the extent of my illness. I feel vindicated angry sad confused - its 2 1/2 years how will the rehab go? ................if only they had listened? Is this for life???
I feel lonely (even though I have an amazing family) and to look at me everyone thinks I look great (I kept that up!!). I was looking for a cure - now what??
I thought my story might help someone out there in the same dark place I am.
Keep fighting for good care - I did and will continue to prove I am still that driven dynamic go getting woman I was - even though I need loads of sleep!!!
So they you have it ...I am officially a dizzy cow ;-)

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Old 11-15-2012, 09:31 AM   #2
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Join Date: Jan 2012
Location: Providence, RI, America
Posts: 17
lyssabugg HB User
Re: Just diagnosed after 2 1/2 years

what were your symptoms 2 years ago? And now?

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