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Inner Ear Disorders Message Board

The search for an answer continues..

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Old 04-30-2013, 01:42 PM   #1
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The search for an answer continues..

I have been having recurrent bouts of imbalance, nausea, and complete incapacitation for the last 13+ years. Sometimes the bouts occur every year or so, and in some cases as frequently as every few months. They come on slowly..usually have a strange feeling before I go to bed and when I get up the next morning I'm completely off balance and can't even walk (no vertigo..just the complete off balance feeling, weakness and nausea). I'm usually in bed in a dark room for no less than three days and after that I can slowly come out of it. Can't eat or drink anything for at least the first two days. Usually it takes a week+ to get back to "normal". Like I mentioned these have been occurring since 2000. For the last two years (between these bouts) I have also had this weird swaying motion and I have difficulty when walking and trying to cross streets or walking while in crowds (hard to explain). Anyway, to make a long story short I have visited two different Neurotologists within the last 7 years. One at a facility about an hour and half away, and another at the UPMC balance and dizziness center (was at UPMC two years ago). Neither of them could provide any additional help. When at UPMC is was prescribed a low dose of Klonopin which seemed to help with the problem I have been experiencing in the last two years (imbalance, swaying, etc.) I have since been off this low dose and those feelings are back again.

Here's a little background concerning my health and how it might be associated with my inner ear problems. I am currently 53. When I was 34, I contracted a bad case of mono...kept me out of work for 12 weeks. When I was 36, I contracted a bad case of chickenpox. I know these are caused by the herpes virus and I'm wondering if there is a correlation between my inner ear problems and those two diseases. I mentioned this to the neuroto at UPMC and he said "interesting".

I'm at my wits end with this...I'm not sure where to turn next. I know it's a struggle for me every day just to try and make it through. I'm thinking it's time to see a specialist again, but I'm debating on trying to find a new doctor or go back to UPMC and press for answers. Help!

Last edited by Administrator; 04-30-2013 at 08:29 PM.

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