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  • Chronic Eustachian Tube Dysfunction?

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    Old 08-27-2013, 10:49 AM   #1
    Maxwell21
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    Chronic Eustachian Tube Dysfunction?

    I have been reading the boards about ETD and all the other potential causes of my ear problems for the last 6 months and am still without a clue what is causing my particular issue.

    The story is long and like so many others on these boards also very frustrating. In March I was diagnosed with and inner ear virus as I was dizzy, foggy headed and had a slight sensation of fullness in my left ear (all occurred less than 24 hours after a 3 hour flight). This lasted for 3 weeks at the end of the three weeks all symptoms subsided except for the constant need to "pop" my ears. This lasted 4 days and was gone.

    For 3 weeks I was symptom free, I had to take another flight which went off without any problems. For days after the flight I had spells of dizziness and on day 7 after the flight hear came the ear fullness and need to "pop" my ears.

    Went back to the ENT and was told I have ETD and will resolve....6 months, 4 ENT's and an Allergist later my ears still feel pressurized. I have mad improvement over the months and instead of having to "pop" my ear 1 million times a day I am down to maybe a half a dozen.

    My major concerns are:

    While driving my ears bother me the most I feel increased pressure instantly no matter if the windows are open or closed.

    Also I have post nasal drip MD diagnosed with non allergic rhinitis, never had that prior to the dizziness and ear issues.

    ENT and others say it will go away it just takes time, I have not read of anyone's ETD going away on this board and feel like I can not live with this forever!

    What are your opinions: will it resolve over time are we stuck with this forever?

    I have been on oral and nasal steroid no significant improvement, I am doing acupuncture and seeing a chiropractor. I am negative for any allergies and my MRI came back negative.

    The next step is tubes which they say can help in 50% of case and may make it worse in the other 50%, as much as I want this to go away I can not even take the chance of making it worse.

    Any insight would be helpful, feeling a bit hopeless.

     
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    Old 08-28-2013, 01:27 PM   #2
    KristyBabe
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    Smile Re: Chronic Eustachian Tube Dysfunction?

    Hello there,
    I'm so sorry to hear what you are going through. I'm here in this boards because my husband have almast the same problems like you for a year now, and i'm looking for answers/solution/ any advice that can help. The thing that really drives him crazy is the ear fullness, cracking noise when he eats/swallaws/wipes his nose, and also this dizzy feeling. He was diagonzed with Chronic Sinusitis and did a FESS (sinus) surjery 3 months ago. We were hoping this will help, but it only helpes cleening the sinuses in his nose and stopped sinusitis. we also bought this Ear Popper machine 3 weeks ago and he is using it every day, still no change, but we have been talled it should take about 6-8 weeks untill it will open the Eustachian Tube for good (we keep hoping it will happen!).We also been to Ear specialist who reccomend us to insert tubes in the ear-drum but only 50% garantied so we didn't took the chance. Our next and probably final hope is to turn to homeopathy since nothing in the conventional medicine helped. It's very frustrated for both of us because he also have some anxiety problems since it started so I hope everything will pass soon. I will come back in few weeks to update if something worked and helped. Be strong and come back to update.
    Lots of health.

     
    Old 09-03-2013, 02:19 PM   #3
    Maxwell21
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    Re: Chronic Eustachian Tube Dysfunction?

    Kristybabe,

    I am sorry to hear about your husband. What are the MD's saying? Do they still think it's ETD?

    I am so frustrated, I have not been the same since this started. Very depressed, sad (cry all the time) and am unable to find joy in life. I was hoping to become pregnant and was starting to try when all this happened. I feel hopeless most of the time that this will ever resolve. The pressure is what I can not handle.

    I have tried traditional chinese medicine and am now trying Kali Mur and Histaminimum (Homeopathic remedies).

    How did your husband's symptoms start? what test has he had.

    I too have been offered tubes and was told it will help in 50% cases and may make it worse or no difference in the other 50%.

    Not sure where you live but Dr. Denis Poe in Boston is supposed to be the eustachian tube guru...might be worth looking into I am waiting to see my ENT to get an appointment with him.

    Good Luck to you and your husband!

     
    Old 09-03-2013, 10:08 PM   #4
    KamiR
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    Re: Chronic Eustachian Tube Dysfunction?

    I have had ETD since December 2011. I was 7 months pregnant. On Christmas my ears filled with fluid, I was treated for an ear infection (first ever), but the fluid remained for 3 weeks. Things have gotten better since then, but the clicking/popping/crackling has never gone away. I also experience tinnitus since the ear infection. I don't have allergies that I know of that might be preventing my eustachian tubes to clear. My guess is that the typical pregnancy swelling was the main reason my tubes had trouble recovering. I am still breastfeeding so I don't know if that is a contributing factor to inflammation of my eustachian tubes.

    To the main point, I got tubes a week ago Monday. I'm almost certain I have diminished hearing in my right ear. (I assume that will get better once ear tubes are out, but I don't really know.) I hear other people/sounds normally, but when I talk I feel like I'm underwater and I absolutely hate it. I can't even hear myself whisper. If you are feeling pressure and that is your main complaint I think ear tubes would help. Otherwise, my opinion is that it isn't worth it. I would rather deal with the crackling and popping.

     
    Old 09-04-2013, 05:08 AM   #5
    KristyBabe
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    Re: Chronic Eustachian Tube Dysfunction?

    Quote:
    Originally Posted by Maxwell21 View Post
    Kristybabe,

    I am sorry to hear about your husband. What are the MD's saying? Do they still think it's ETD?

    I am so frustrated, I have not been the same since this started. Very depressed, sad (cry all the time) and am unable to find joy in life. I was hoping to become pregnant and was starting to try when all this happened. I feel hopeless most of the time that this will ever resolve. The pressure is what I can not handle.

    I have tried traditional chinese medicine and am now trying Kali Mur and Histaminimum (Homeopathic remedies).

    How did your husband's symptoms start? what test has he had.

    I too have been offered tubes and was told it will help in 50% cases and may make it worse or no difference in the other 50%.

    Not sure where you live but Dr. Denis Poe in Boston is supposed to be the eustachian tube guru...might be worth looking into I am waiting to see my ENT to get an appointment with him.

    Good Luck to you and your husband!

    Dear Maxwell21,

    I realy understand the feeling and the despair of this sitsuation. It all started exactly one year ago because he has chronic sinusitis. As i sayed before he did sinus surgery 4 months ago which helped to cleen all his sinuses in the face and since than he hadn't been sick even once, but the ETD still there. He did lots of tests like tympanometry and CT scan, all came back 100% fine.
    Actually we are not from US but from Asia and I heard about Dr Poe so the last MD we saw (about 1 month ago) have worked with DR Poe for few years in Boston and they even published studies together. So for us we already went to the "best" doctor and excapt of offer us tubes there is nothing left.

    How long do you take the Kali Mur? Does it helps you? This week I also wanted to buy him Kali Mur, but we were talled to see a Homeopath first because everyone has his own symptoms. So we went to a homeopath 2 days ago and she gave us something different, hoping this will help and we could get back to normall life. He is not working for the past half a year because of this and I'm a student working only half time so it realy life changing.

    Hoping we all have good news soon. Lots of health.
    Keep apdate.

     
    Old 09-04-2013, 10:46 AM   #6
    Bea590
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    Re: Chronic Eustachian Tube Dysfunction?

    Is there a reason you're not trying the tubes? Have you tried steroids?

    Clare

     
    Old 09-04-2013, 02:46 PM   #7
    KristyBabe
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    Re: Chronic Eustachian Tube Dysfunction?

    Quote:
    Originally Posted by Bea590 View Post
    Is there a reason you're not trying the tubes? Have you tried steroids?

    Clare
    Hello,
    We didn't try the tubes because I read a lot on this boards that most of the people it did not help and even the simptoms got worse. The Ent also sayed it can help in 50% so instead that we bought the Ear Popper machince and he is using it for 1 month already, hoping it will open the tube for ever.
    When it all started about a year ago he did try the steroids for few months in nasal spray, and after it didn't work he got Diprospan injection which helped a little bit but lasted for about one and half months.
    Why did u asked about the tubes? do you believe it worth trying?
    Do anyone has a solution/maybe a medication for the foggy head feeling? he feels like dizzy but not vertigo and this is the realy difficult part for him.
    Thanks in advance

     
    Old 09-04-2013, 04:29 PM   #8
    Bea590
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    Re: Chronic Eustachian Tube Dysfunction?

    I was just curious as to why you weren't trying the tubes because I also have ETD and was wondering if they would work. My doctor tried oral steroids and they didn't help. I don't know enough about the tubes to know where they would be placed...do they go inside the closed tube to open it or is it the same as putting a tube through the eardrum like they do with little kids?

    What is an ear-popper? No one has suggested that for me, but that's how it feels, like it needs to pop. I've had it for many years and have learned to ignore it most of the time but there are other times when I just want to scream from the frustration of the sensation and constant high-pitched sound from the tinnitus. I need to have the tv on to fall asleep it's so loud.

     
    Old 09-07-2013, 07:02 AM   #9
    KristyBabe
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    Re: Chronic Eustachian Tube Dysfunction?

    Dear Bea

    So sorry to hear what you are going threw, and it's very sad that it's been like that for years.
    About the tubes; from what I understand it's exactly like they do it with little kids. First they cut a hole in the ear-drum and than put a tube hoping it will release the pressure. Instead of that surgical procedure there are lots of doctors who reccomend to use the Ear-Popper machine wich some say it prevent the tubes.

    Hope you find some relief soon.

    Last edited by moderator2; 09-07-2013 at 07:23 AM. Reason: posted disallowed website

     
    Old 09-07-2013, 03:17 PM   #10
    Bea590
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    Re: Chronic Eustachian Tube Dysfunction?

    I checked out the Ear Popper on ******. It's $200!

     
    Old 09-26-2013, 06:47 AM   #11
    Marie 67
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    Re: Chronic Eustachian Tube Dysfunction?

    Dear KamiR,
    I'm having the same ear type problem. I had an ear infection 3 months ago and had fluid behind my ear. I had to have a myringotomy and have it drained. My hearing is not the same since the infection and I feel as if I have reduced hearing ability. What I wanted to ask was why did you get the tubes? Was it because of fluid build up or was it for pressure? I'm going to have a hearing test in two weeks. I'm almost certain of hearing loss. The ent said that would mean fluid re accumulation. Would you recommend getting tubes for fluid build up if it keeps happening? Thanks, Marie

     
    Old 10-03-2013, 07:59 AM   #12
    Marie 67
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    Re: Chronic Eustachian Tube Dysfunction?

    Dear KamiR,
    Three months ago I had an ear infection and fluid was left in my ear. I had a myringotomy alittle over two weeks ago. Ent didn't put a tube in my ear at the time. He just slit the eardrum and suctioned the fluid out. I have to have a hearing test this Monday and depending on the results I will need a tube put in my ear. It doesn't seem like a good thing to put another hole in my eardrum that may not heal. I've heard all kinds of bad things about tubes and how eardrums don't always heal correctly. I'm scared that the fluid has returned. I feel like I have hearing loss in the affected ear. I'm almost as scared of the tubes because of the possible complications and I don't know what to do. Did you ever adjust to them? How is your hearing now? Do you still have them in? How does it feel when you talk? Is there anything else I should know about getting tubes? Doctor has just told me potential side effects, not how it actually feels to have them.

     
    Old 11-28-2013, 10:11 PM   #13
    TexasHogDogs
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    Re: Chronic Eustachian Tube Dysfunction?

    Hello, I have had all the symptoms that ya ll are talking about you name it I had it . I went to several Allergist and to a couple ENT's needless to say noting they told me worked. This went on with my ears for two years bad bad bad. Off feeling , dizzy feeling, disoriented feeling, cracking, poping, ringing sometimes, ear fullness it just about drove me nuts ! They gave me antibiotics , allergy pills, I used the neli pot and mixed my own solution like they told me did it for over a year finally gave up on it and I tried just about everything you can do for sinus and allergies noting worked . Then one day I was in wal mart and saw this stuff called Ocean Nasal Saline Spray . I said what the hex I will try this maybe its got something different in it than the neli pot mixture they told me to make . Well first week noting really , second week hummmmmmmm might have worked some I said. Third week man I started feeling a little better . Fourth week man a live I feel a lot better and I just kept on getting better and better till finally just about all the symptoms were gone . Man it was a miracle . I still had some things here and there but for the most part it gave me my life back and today I can say am pretty dang good. I don't know why it worked and the neli pot and the mixture they gave me did not . They must put something different in the Ocean nasal spray I don't know but it worked and worked great . I can tell you man when that stuff broke loose I had crap running down my throat like never before in a way it kinda skeered me LOL and that lasted for a pretty good while and then it even quit and I have almost went back to normal. You might want to try it. You can use it as many times a day as you want to . I used it sometimes four five times a day . Now sometimes I forget to use it because I don't feel sick no more. Hope it helps.

     
    Old 04-04-2014, 11:52 AM   #14
    Sonja1975
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    Re: Chronic Eustachian Tube Dysfunction?

    Hello Everyone! I was wondering how you all are doing now? It's been a couple of months since anybody has posted on here. I have ETD for 5 months now. Main problems Pressure, popping and crackling everytime i swallow and open my mouth. Two weeks ago i had my ENT put a tube in my right ear. I can't say that they pressure is completely gone but i have noticed some relief. I am suppose to give the tube 4 to 6 weeks to settle in the eardrum. The tube has not made it worse for me. But i wished it would speed the recovery up. It's so slow. Hoping to hear from one of you.

     
    Old 04-04-2014, 12:05 PM   #15
    Sonja1975
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    Re: Chronic Eustachian Tube Dysfunction?

    i know a couple of people who put in tubes for fluid in the middle ear and it has helped them a lot.

     
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