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  • Dizzy again, frustrated, & scared.

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    Old 12-17-2013, 08:30 AM   #1
    zobimia
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    Dizzy again, frustrated, & scared.

    Hello. Long time lurker, posting for the first time.

    Going to give you the cliff notes version so you have some background. About 7 years ago, I had my initial onset of dizziness. Lived in a different state at that time, saw an ENT, went through VNG, was told I had a "labyrintine disorder" and sent to Vestibular Rehab. VRT helped to get me more functional. It took a long time for that initial issue to resolve, but, after several months I was steady on my feet (except on uneven surfaces or in the dark, but hey, it was a vast improvement!).

    In 2009, I moved out of state. About 3 months later I suddenly relapsed or decompensated. Found a new ENT here. He did not repeat VNG/ENG at that time. I guess he just reviewed the records sent by my former ENT out of state and after one appt, sent me back to VRT.

    I was a bad patient... I found it silly to be going through something I could do, and had been doing, on my own at home. I stopped going. I know, I know... and it gets better because now, I'm a nurse! (They say we make awful patients, I think they're right... granted I was not a nurse in 2009).

    So, forward to 12/2/13... literally woke up with that "I'm on a boat" feeling. Stumbling around, looking like I'm drunk, running into walls, feeling like I'm going to fall. That's how you want your nurse to look, right? Not to mention the massive brain fog that always comes along with these issues from my brain trying to keep me balanced.

    So back to the ENT. They try to do inner ear testing that day. The poor audiologist was having massive computer issues, had me come back the next day. Finally, her computer seemed to be cooperating so we get to testing. We get to calorics (where I have shown weakness in the past) and sure enough, with COLD AIR, no response out of my left ear. So she goes to do something on the computer... it crashes! So, she decided to repeat with ice water after getting IT to fix her computer. Ice water did bring on a response. She said at that time she didn't think she could use both results due to the computer issue. Now, they're saying everything is normal. Did not see the MD this time around, but apparently he doesn't understand why I can't work. Well golly gee whiz there Doc, but, I'm a nurse... who is "on a boat", and now has fallen twice, ran into walls & furniture multiple times (my legs are bruised on my thighs from hitting things), and can't think straight. Yeah, I am pretty sure I am not safe to drive let alone to practice.

    I am trying to apply for FMLA until this resolves so that I don't lose my darn job. It's the holiday season, we're scared to spend any money, and worried we might lose our apartment. So yeah, there's that too.

    So he wants to send me to a specialist out of state. Luckily, it's my home state and it's about 45 minutes away from where my family lives. So it's not entirely impossible/improbable to get there and see this specialist.

    But I am absolutely livid at this point that it has taken me 3 attempts to get this information out of this ENT's office. My inner ear testing was done on 12/6. I called twice last week and again today, and am told by the receptionist that it's normal and Doc can't figure out why I can't work.

    Really?

    Doc didn't see me. Doc didn't see my "drunken land sailing" walk, or get to try & talk to me with the awesome brain fog.

    So now I am waiting to find out when I see this specialist. In the mean time, I am waiting for doc to send something to my work's human resources so I don't lose my job. They do offer short term disability pay, if approved, will get some of my pay, but certainly not all of it. However, if he decides not to cooperate, we'll likely be moving in with my father in law.

    I'd MUCH rather be at work. I like my job, a lot. And I like having steady income, a lot! And it's hard enough to get buy when I am working due bills and student loans. And, it's xmas. Really, really not cool.

    So, yes, I am very frustrated. I'm very scared. I could lose my job, my home, etc. because of all this. And I know better... I know a normal ENG does not necessarily mean squat.

    I guess what's finally lead me to post is this frustration and fear.

    Thank you for allowing me to vent, and for any advice or personal experience you can relate to me.

    Hope you're all sailing on smoother waters than I am.

     
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    Old 12-17-2013, 09:17 AM   #2
    itburns2004
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    Re: Dizzy again, frustrated, & scared.

    have you tried to get a b12 shot. I have issues with my inner ear, but i have tmjd and had viral labrythitis, tinnitus, vertigo and all that horrible stuff that accompanies it. You seriously need to get an allergist as well or a nutritionist who can work with you. Imagine if it was some kind of allergy triggering all this and u didnt know. They have integrated medical doctors, those who are MD and specialize in integrated medicine. Dictors do not seem to be very helpful in this area, but i was told a few years ago they are seeing this more and more and the vestibular rehab place told me the same thing. I found that interesting and concerning. Makes you wonder what gunk they are feeding the animals before it hits the supermarket. Or what pesticides they are trying out on us. But anyway, b12 shot helps with a lot of stuff and i get them and found they do help. A quick trip to an endocrinologist can be helpful as well, hormonal imbalances can do wild things to our bodies.

     
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