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    Old 08-18-2014, 04:02 PM   #1
    Rellie61
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    Hi Guys,

    Hi Guys I have been away for awhile, well couple of years really, but at last I have found you all again. I have been diagnosed with Ménière's Disease (Dec2012) after numerous test, Neurologist, ENT specialist, it's not a life threatening disease but it sure is life changing.

    How is everyone? Hope to get to know some of you all.

    Take care and have a great day/night. Going to go for a look around

    Last edited by Rellie61; 08-18-2014 at 04:55 PM. Reason: Added medical info

     
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    Old 11-30-2014, 10:01 PM   #2
    manybikes
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    Re: Hi Guys,

    Hey Rellie

    I have also been away for some time.
    Also reading some posts, I have BVF

     
    Old 12-06-2014, 08:46 PM   #3
    biteneck
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    Re: Hi Guys,

    Quote:
    Originally Posted by manybikes View Post
    Hey Rellie

    I have also been away for some time.
    Also reading some posts, I have BVF
    Hi Manybikes,
    How have you been doing? I think I also responded to another one of your posts.
    May I ask how long it took for you to recover from this VN/labs stuff? I'm almost three years in, (will be three years March 2015.)
    My main problems are dizziness, feeling faint, lightheadedness, derealization (feeling like I'm in a dream) and anxiety/panic from all of it.
    I was told in May 2012 that I had 25% unilateral loss but that should compensate. Then felt better in 2013 and was driving more, then Sept 2013 had a setback and never felt as good since then. The derealization is horrible. It scares me and I am so scared to drive with this. When I had the calorics testing done in 2012, I remember having my eyes closed and the lady saying I need to keep them open, so I wonder if that could have caused an error in the test. I have a second opinion appt. coming up on December 15 and am very nervous about getting this test again. I keep telling myself, well a week and a half from now it'll be all over. I sure hope it doesn't cause lasting affects. Last time it made me really dizzy and some vertigo but in reality, I think it only last a few minutes but felt longer due to the anxiety. I only felt tired, headache, and muffled hearing the rest of the day. I'm praying that's all I have this time.
    Any answers or advice and how long your recovery took would be greatly appreciated.
    Thank you,
    Nicole

     
    Old 12-12-2014, 06:40 PM   #4
    manybikes
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    Re: Hi Guys,

    Hi Nicole

    Sorry for the delay in replying.
    In my case (BVF) recovery is really re-training your brain to adapt to not having any input from the inner ears.
    I really didn't start to feel really normal until about the 5 year point. Don't despair!...everyone is different so you may be sooner. The recovery was slow going then it suddenly started to improve dramatically and the set backs stopped happening.

    Last edited by manybikes; 01-03-2015 at 10:26 AM.

     
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