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  • What are the symptoms of MAV?

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    Old 09-12-2014, 03:49 AM   #1
    Sarah8625
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    What are the symptoms of MAV?

    Hi,

    Could anyone that has been diagnosed with MAV/Vestibular Migraine/Silent Migraines (not sure of the difference) please advise what the symptoms are and how you felt day to day?

    Many thanks in advance! x

     
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    Old 09-12-2014, 05:30 AM   #2
    LondonA
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    Re: What are the symptoms of MAV?

    Hi Sarah,

    Glad you posted this, I had lots of testing yesterday and the specialist thinks I may have MAV, he is prescribing me some beta blockers to see if it helps my dizziness.

    My symptoms are feeling like I am walking a soft mattress or the floor isn't flat but moving up and down. I get this up to 6 times on a bad day and can last from mins to hrs. I have a sensitivity to music and light sometimes but rarely have a headache, maybe 1 or 2 a month. After my 4 hours of testing yesterday I didn't have a headache all day after that though which was unusual for me. I have been taking Diazepam before which helped even though its an anxiety drug.

    Andy

     
    Old 09-12-2014, 06:14 AM   #3
    Sarah8625
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    Re: What are the symptoms of MAV?

    Thanks for your reply Andy.

    From what I have read your symptoms sound like they could be MAV, hopefully the medication helps.

    my main symptoms are a drunken, unsteady feeling all the time and a pressure in my head, feels like its full of air or something and I get pressure behind my eyes also. Iv noticed it is worse during the week when I am at work on the PC. Think this is the reason they want to explore the MAV route. Will wait and see what the neurologist says when I see him.

    What tests did you have done?

     
    Old 09-12-2014, 06:16 AM   #4
    Sarah8625
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    Re: What are the symptoms of MAV?

    I also have BPPV which hasn't disappeared despite Epleys and Brandt Daroff exercises which they say is unusual and points towards MAV.

     
    Old 09-12-2014, 07:27 AM   #5
    LondonA
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    Re: What are the symptoms of MAV?

    Your last comment made me smile...
    I was diagnosed with BPPV for a year until I went to see another ENT on Harley St.
    He said that I did have some Nystagmus but it wasn't BPPV.
    I also had loads of Epley's and Brandt Darhoff but it never made any noticeable change. The one thing for me that didn't make sense during the dix hallpike/Epley was that I didn't feel dizzy during the whole manoeuvre which ruled out BPPV according to the new ENT. Do you get dizzy during it?

    The tests I had at charring cross were ENG - Rotating chair - All clear
    Caloric Testing - All clear
    New 3D imaging of the eye showing 3 axis. When I looked left or right my Iris had an anticlockwise rotational flick and then after it stopped it went the other way for a while.
    I think the specialist was a bit confused as I feel he was expecting the ENG to show him more than it did...

     
    Old 09-12-2014, 07:39 AM   #6
    Sarah8625
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    Re: What are the symptoms of MAV?

    When having the dix hallpike, Epleys and Brandt Daroffs, I will always have a reaction when going down on my right hand side, after a short delay of about 5 seconds, it will be intense spinning for about 3 seconds, then it stops. I also have nystagmus when that happens.

    They have never suggested ENG tests which is strange, I think they just assumed it was BPPV and uncompensated labs. but now that the exercises aren't working I think they have to explore the possibility that its MAV. The neurologist will perform those tests if needed I guess.

     
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