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  • Suspected Perilymph Fistula - Surgery or not?

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    Old 09-28-2014, 04:45 PM   #1
    laurafe
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    Suspected Perilymph Fistula - Surgery or not?

    Hi everyone,

    To cut a long story short - mid August 2014 I did a sinus rinse for chronically blocked sinuses. It went very wrong and I ended up with water trapped in my left middle ear. It didn't come out by itself and the pain and pressure was getting too much. I saw a GP and we agreed on using a nasal balloon to equalise the ears and try to get the water out. I also tried a few valsalva actions.

    One day (first week of September), I was using the balloon when I felt a painful loud click in my right ear. This is where my real problems started.

    I now deal with: constant tinnitus in right ear, dizziness, vertigo, some nausea, really bad head pressure, auras, vibrations and buzzy feelings throughout body, deep pain in ear - can almost feel blood or fluid in right ear.

    Saw GP and it is a suspected Perilymph Fistula of the round window in the inner ear. I am seeing an ENT privately, hopefully in the next 2 weeks. Thing is, I am in England, UK and I am worried that they don't really deal with PLFs. Then I will be stuffed!

    I am currently doing as much bed rest as I can as I read online this is best at this stage. I am however very very worried about what has happened. I am worried about leaking CSF fluid too. I certainly have enough head pressure.

    Can this really heal with bed rest or do I need surgery? Also, I am scared about my tinnitus getting worse with surgery. Anyone who has had PLF repair surgery, what was the outcome? Did your tinnitus get worse or better in the end? Did the head pressure go? Has anyone recovered just with bed rest?

    I would love to hear from anyone. Thanks for reading.
    Laura

     
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    Old 09-28-2014, 07:22 PM   #2
    biteneck
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    Re: Suspected Perilymph Fistula - Surgery or not?

    Hi Laura,
    I'm sorry, I don't know much about pf's. I think some can heal on their own, if not, then you could probably have surgery to fix it. The ENT should have you get a CT scan or MRI done. Do not worry, this hopefully should be fixable. I hope you get good answers and the right treatment to heal you.
    Please keep us updated.
    Nicole

     
    Old 08-21-2015, 02:14 AM   #3
    Kingy1
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    Re: Suspected Perilymph Fistula - Surgery or not?

    Hi Laura,

    Not sure if you're still on here just wondered how you are getting along with your dizziness and possible plf ?
    I'm 8 days out of surgery for a possible plf also living in UK. I've had symptoms for over 2 years following a scuba diving accident and after seeing numerous specialists and having numerous tests I've gone for the op. Unforts my dizziness has ramped up since the op and am desperate to find out if this is normal ... Any help or info about your position would be great.
    Hayley

     
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