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  • Eustachian Tube Dysfunction (ETD)

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    Old 03-21-2015, 09:07 PM   #1
    Join Date: Mar 2015
    Posts: 1
    Fetalex111 HB User
    Eustachian Tube Dysfunction (ETD)

    I'll try to keep this as concise as possible without omitting any necessary details. I have had mild/moderate seasonal allergies my entire life as long as I can remember with the only symptoms being sneezing and a runny nose. I have also had several ear infections as a child and through my teens and early 20s (I am currently 23 years old). About a year and 8 months ago I caught a sinus cold that caused fluid buildup in my ears, it took forever to drain and eventually caused me the worst ear infection I've ever had, in both ears. Ever since then I have had fullness in my ears that seems to get worse both during heavy allergy seasons and when I get any type of cold no matter how weak it may be. I have been to two different family doctors as well as two different ENT specialists who all say this is completely allergy related, but before that one particular ear infection I had never experienced this with my allergies. They've tried allergy medicines (allegra and claritin) as well as steroid nasal sprays (flonase and recently something called Dymista that is supposed to have an ingredient the former lacked) and as of most recent prednisone to try and reduce inflammation. None of these have worked. Over time it seems to get better but it never completely goes away and then something triggers the ETD and I start the cycle all over again. The fullness and popping are horrible although if I had to I could get used to having them the rest of my life if it weren't for the the real problem; this spaced out feeling I have 24/7. I am currently finishing my undergraduate work and when my ETD is at its worst it's incredibly hard to focus on my readings or other coursework. It's hard to explain the exact feeling because I'm not necessarily off balanced or dizzy but rather off to say the least. Days go by and I wonder what happened in them. The last ENT told me this is something I will have to learn to live with and not to be overly dramatic but I cannot imagine living the rest of my life like this. I don't feel like a normal human being. I'm wondering if anyone else has had any medication or treatment method that actually worked for them? I know some people have tubes put in but no ENT I've been to seems to be willing to even consider that possibility and I worry about lifelong complications that could result but at this point, anything that could return me to normal, I'm willing to give it a chance. Sorry if my post was too detailed and I appreciate in advance anyone is willing to share their experience. Thank You!

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    Old 03-21-2015, 10:46 PM   #2
    Join Date: Mar 2015
    Location: Bradenton Fl USA
    Posts: 3
    Jetcitiwomn HB User
    Re: Eustachian Tube Dysfunction (ETD)

    I am a mother of two girls they both suffered from ETD both I had tubes inserted in their ears, this was after 6 mos. to 1 year after they were born. (Oct 91 & Jun 93) that was the BEST thing their father and I ever did for them. Both girls hear perfectly now, but the only down fall is my oldest (now 23) when allergy season comes around 1 ear produces more ear wax than the other, and if it's not cleaned correctly and Q-tips are used then she's susceptible to an ear infection because the wax becomes impacted.
    If tubes are your option I would do it, when your ears don't need them anymore they'll fall out. I warn you there is SPECIAL care you need to take to care for them. But in the end it is worth the sacrifice and the patience

    Old 06-24-2015, 03:17 PM   #3
    Join Date: Jun 2015
    Posts: 1
    Macadoo HB User
    Re: Eustachian Tube Dysfunction (ETD)

    Are any of you ladies that are suffering with ETD taking birth control, hormone therapy, have you taken hormones to stop your period or have a drop provera birth control shot? If so this could be the culprit. Some women suffer ETD and hearing loss and an adverse reaction to these synthetic hormones. Allergies, sinus infections and flu like symptoms are all part of the reaction to them.... That's what happened to me. Doctor confirmed that was the cause and that I am basically allergic to these meds. My ETD hearing loss and tinnitus should subside I'm told once the hormones are out oft systemand my own hormones balance and my period returns.... They're confident the damage won't be permanent but time will tell....

    Last edited by Macadoo; 06-24-2015 at 03:18 PM.

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