I.C and Elmiron

Melissaadore

Hello dear. I also have IC and it’s absolutely debilitating so I feel for you. My urologist wouldn’t prescribe elmiron. She says from her experience it hasn’t worked for her patients and it’s extremely expensive. When i was first diagnosed she gave me urogesic blue instead.
She didn’t recommend any vitamins or supplements to me. My question to you is why aren’t you working with a urologist instead to begin with ? They are the ones who do the cystoscope. I wasn’t even aware a Gyno would do them. But a cystoscope can rule out bladder cancer so that’s why I asking also. Hunners ulcers are terrible. I also have them. You’ll probably always have blood on your urine whether you can see it or not. I was diagnosed in Jan of 2018 and all my urine cultures still have blood in them. Sigh.

djl

Hi Melissa

Thank you for your reply.
Regarding going to a Urologist I really was t thinking about that. When this first happened I figured it was a UTI so called my Gyno. I know my Gyno personally as he has known my husband for years.

But since this has happened more then once I decided to go and see a Urologist but can’t get in until Dec 9th.

I just started the Elmiron so see what happens with that. My gyno has me on Cystatin, Cranberry with D-mannose 5000mg of Vitamin C a strong Probiotic as well. When I do bleed he sneaks puts me on a Antibiotic and this pill that turns my urine Blue.

This is not a fun condition to deal with.

I do believe I have been dealing with it for a few years. Is. I have had bouts in the past years where I would constantly urinate then eventually it would stop but no blood.

How long have you been dealing with it?

__________________
Hyster-PCOS, Adeno,everything but Cervix removed
At 41 Fusion-C5toC6toC7 with Hardware-DDD Arthritis in Spine-Herniation C4-C5-w/mild comp on Spinal Cord, OA, FM, Raynauds,Hypo,HBP,TACHY