It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Interstitial Cystitis (IC) Message Board

  • Possible IC - horrible, help please

  • Post New Thread   Reply Reply
    Thread Tools Search this Thread
    Old 07-26-2020, 01:16 PM   #1
    Faith B
    Faith B's Avatar
    Join Date: Jul 2020
    Posts: 1
    Faith B HB User
    Possible IC - horrible, help please

    Okay so I've been to urgent care several times for UTIs but I finally have an actual appointment scheduled with a urologist. I probably have IC, However I was hoping someone could advise what I could do right now to help ease my symptoms? I am in so much discomfort and pain, any advice is appreciated. See symptoms below:

    Frequent flare ups since July 1st (usually at least once a day).

    Hard to identify triggers, happens so often. They have happened after coffee/tea, after/during exercise (walking/yoga/running), after meals, late in the evening, any time I'm really tired, after sitting for long periods of time, car rides, flights, swimming, after not enough water, after too much water, and many other times.

    During flare ups: burning, hot sensation in vaginal area; constant urge to pee; pressure/pain in pelvic area; burning pain during urination; occasional pain in lower back and sides.

    Treated for UTI three times in the last six months, and several more times the year before that (at least 6-7 times total since July 2018).

    Sometimes antibiotics work, but sometimes they have no effect and I have to wait for the pain to go away on its own (I have been prescribed them twice in the last two months to no effect)

    Since March, I've felt pain off and on, and since the beginning of July, it's been daily discomfort.

    At home UTI test strips keep coming back negative. My last two urine cultures sent to a real lab also came back normal despite my discomfort.

    Flare ups are so intense they kept me up for an entire night at one point. Have to cancel things due to flare ups. Causing depression.

    Only sometimes responsive to AZO pills.

    Update July 26th. Been in a flare up for 16 hours. Azo providing no relief. Water not helping. Tylenol not helping. Kept me up all last night. Constant pelvic pressure and constant urge. Burning during urination. Burning vaginal area pretty much constant. No relief after urination - still feel like I have to pee. No position or stretching or anything provides relief. I have Coronavirus too so I'm worried I won't be able to keep my urologist appointment. Any suggestions at all for how to ease symptoms are appreciated.

    Reply With Quote
    Sponsors Lightbulb
    Old 08-30-2020, 03:18 PM   #2
    Junior Member
    Join Date: Aug 2008
    Location: toronto
    Posts: 41
    babylegs1968 HB User
    Unhappy Re: Possible IC - horrible, help please

    Hi did you ever get this sorted out as I am going through the same since July 10th

    Reply With Quote
    Reply Reply

    « I.C and Elmiron | - »
    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off

    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 01:36 AM.

    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!