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newmom2b 10-13-2003 07:43 PM

Interstitial Cystitis
Hi everyone... does anyone here have Interstitial Cystitis? I do and was wondering what others have had done to help with it. Does anyone take Elmiron? I take it and have had my bladder stretched twice now. Just wondering what else is out there I can do or how others are dealing with it. Mary

RageOfAngels 10-13-2003 11:30 PM

I know someone who makes sure to eat blueberries every morning and says it really helps her IC. The fruit has a substance in it that prevents bacteria from sticking to the bladder walls, and reduces inflammation of the bladder.

Piperdreams 10-14-2003 11:08 AM

I have IC. I have had DMSO cocktail instillations in the past which helped me immensely. I have not taken Elmiron. I have had Elavil for about ten months, it was great in terms of blocking the pain but after a while you either have to elevate to dosage or it becomes less effective.


RoxRoxU 10-21-2003 03:13 PM


You might check out my post titled "UTI/IC Sufferers read this", as well as my response to "Help Me". I have suffered this for a long time and found what I consider to be a simple miracle. I'd love to hear if you have tried these things, and if so, what were the results?

Good Luck,

WrongerIndiana 10-27-2003 06:23 PM

Hello! I have IC and I have tried the Elmiron and I had terrible side affects. Severe headaches, I couldn't focus on anything. I have to stay on a real strict diet, anti-inflammatory. No accidity foods or drinks. Orange juice or cranberry juice is a no no for me. I also have problems with kidney stones and fibromyalgia. They have a product called prelief, it works while you eat, neutralizing acid in food.

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