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I have a question - interstitial cystitis?

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Old 11-14-2005, 02:37 AM   #1
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zarla HB User
Smile I have a question - interstitial cystitis?

I am hypothyroid - I start with this cos it seems to effect everything these days!!!
For a couple of years i have had frequent urination and urgency. this had got worse in the last 6 months however, and i have had a couple of very painful bouts of what i thought were cystitis. Whenever i have been tested there has been no blood or bacteria in the samples. The GP says i need bladder re-training and so i went through this.
However, - I can be up 5+ times a night, and when i have unrinated my bladder feels like it is sore.
I read about caffiene etc affecting it and so have cut out tea/coffee and lots of other foods. I don't eat fruit now, and no spicy foods either. I do not drink and don't eat chocolate.

I sometimes feel slight twinges in my kidneys, could this be related to interstitial cystitis-if this is what i have? My doctor has been reluctant to send me to a specialist so far.

Any tips, suggestions or comments would be most welcome.
Thank you for your time.

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Old 11-16-2005, 03:35 PM   #2
The Inquirer
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Re: I have a question - interstitial cystitis?

Even without the kidney twinges you could have interstitial cystitis, but you could also have another condition. I'm guessing you need a referral to see a urologist because you said your current doc wouldn't "send" you. I'd talk to him/her again -- no one should have to put up with getting up 5 times a night. Have you had any tests yet besides the urine cultures?

Good luck and let us know what happens...

Feel better,

Old 11-17-2005, 08:17 AM   #3
Join Date: Mar 2002
Location: ,Ontario, Canada
Posts: 497
sonic HB User
Re: I have a question - interstitial cystitis?

Why doesnt he just send you? then you will know for sure..ASK him to refer you to a Urologist..sometimes you just have to be pushy~~
I have the same symptoms as you have,,& in june i was diagnoised with IC. am now on meds.
Good luck~~

Old 11-17-2005, 11:40 AM   #4
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zarla HB User
Re: I have a question - interstitial cystitis?

I have had no other tests but urine cultures. You mentioned "another condition", what else could it be?
The symptoms i wrote about are when it is at its worst. I have been following the IC diet for a few weeks and most of the time i am symptom free now, unless i eat/drink something that disagrees with me. The problem is i don't yet know everything that disagrees with me so i am trying to work this out. The sensitivity to acidic and spicy foods/drinks make me think it is IC.

Old 12-11-2005, 09:28 PM   #5
Join Date: Feb 2005
Location: Paramus, NJ
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rav4grl HB User
Unhappy Re: I have a question - interstitial cystitis?

Hi Zarla, I too am hypothyroid..also diagnosed when I was 21 now 53 with borderline diabetes/hypoglycemia. Am totally irresposible when it comes to my health...never went back to doc for the sugar problem. I do consume alot of sugar but why all these years later do I have a problem with it? Who knows!
I am going to a urologist for further tests.

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