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Interstitial Cystitis- just diagnosed

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Old 03-17-2006, 07:04 AM   #1
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Join Date: Mar 2006
Location: Knox, TN
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armslee HB User
Question Interstitial Cystitis- just diagnosed

Hi all
I was just diagnosed by my gyn yesterday with IC after having a pelvic u/s and was wondering if anyone else out there has this?

I also have thickening in my uteris and some cysts and am going to get scoped for both in May.

If you have IC, do you have any pain with intercourse, incontinence, painful abdomen a while before your periods?


Last edited by armslee; 03-17-2006 at 09:36 AM. Reason: Want to post on Urology board

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Old 03-17-2006, 09:34 AM   #2
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Location: Beaumont,Texas
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texan1771 HB User
Re: Interstitial Cystitis- just diagnosed

Hello Armslee,
I am sorry about your diagnosis,I was MIS-diagnosed with this condition try the urology board there is a bunch of people thaat have it on that board BTW did they give you Elimorn for it?Good luck to you I know this is a aggravting disease take care

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Old 03-17-2006, 09:36 AM   #3
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Join Date: Mar 2006
Location: Knox, TN
Posts: 26
armslee HB User
Re: Interstitial Cystitis- just diagnosed

No, but he did have me look through an Elmiron packet previously. Think I may call about that.

Old 03-17-2006, 01:33 PM   #4
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Location: santa rosa, california, usa
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SRMom HB User
Re: Interstitial Cystitis- just diagnosed

I'm sorry to hear about your diagnosis...I was under the impression it could only be diagnosed by a cytoscopy. I hope you see a urologist for your treatment...incontinence could be from other reasons. Do you have urinary tract pain all the time? Did your gyn. rule out stuff like endometriosis, fibroids, etc.? I had most of the same symptoms you do and it didn't show up in my ultrasound...I had to have a laparoscopy to find my endometriosis and fibroid. What did they find in your ultrasound?

Last edited by SRMom; 03-17-2006 at 01:35 PM.

Old 03-20-2006, 05:36 PM   #5
Join Date: Mar 2002
Location: ,Ontario, Canada
Posts: 497
sonic HB User
Re: Interstitial Cystitis- just diagnosed

Hi armslee..
I was diagnoised with IC last summer,,I am on elmiron. Sex CAN be painful,,make sure to pee "before" or you will have presure on your bladder.
Sometimes i will have a flare up , maybe b/c of something i ate or drank.
Has your diet changed? Im still learning everyday,,what i can & cannot eat & drink.
Good luck~~

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