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Interstitial Cystitis (IC) Message Board

Interstitial Cystitis Board

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Old 04-02-2008, 05:04 PM   #1
Join Date: Apr 2008
Location: Charlotte, NC
Posts: 91
sandy0224 HB Usersandy0224 HB User
Interstitial Cystitis Board

I would love to see an Interstitial Cystitis board. There are over a million people diagnosed with IC out there who need a place like this. Most, 95% or better of the patients dx'd with it are women. I know there is a urology category, but IC needs it's own board. Please consider this. It's under diagnosed and because it's mostly a woman's disease many of us are written off as having hormone problems, menstrual problems, or they think we are flat out crazy. This disease erodes the lining of the bladder, causes scarring, and ulcers, causes urination up to 30x a day or more, extreme pain that has been related to the pain of end stage cancer. Many of us have to take pain (opiod) medications to get by every day and we deal with urologists who mostly treat men. Not that treating men is bad, but many uro's do not understand IC. It's important to get the word out.


I'm on SSDI with 3 kids, a great man, and several dogs and cats. I have a myriad of pain causing medical problems.

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