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Interstitial Cystitis (IC) Message Board

Could this be interstitial cystitis? Its been 6 years!

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Old 03-29-2010, 10:18 PM   #1
Join Date: Feb 2003
Location: sydney australia
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ellekay HB User
Could this be interstitial cystitis? Its been 6 years!

Hi Guys,

Im gonna cut straight to the chase.

I have been getting UTI like symptoms for many many yrs now, and my urine comes back clear, sometimes with a little blood. They put me on antibiotics and the same thing happens over and over. I may be well for a month, and then in pain for the other.

Saw a urologist who did a Cystoscopy which came back clear. Did ultrasounds, did urine cultures... all clear however i never went back to see him.

Now i am 18 weeks pregnant and cant leave the house! Pelvic pain is worse than ever. Urinating is frequent WITH PAIN. I cant walk, sit or lie down sometimes and urine sample all came back clear.

I hear the IC is worse in pregnant women. I have made an appt to see him for next month, but is there anything they can do for me now that i am pregnant?

Please help.

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Old 03-31-2010, 05:25 PM   #2
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Join Date: Mar 2001
Location: San Diego, Ca.
Posts: 1,824
sunshine123 HB Usersunshine123 HB Usersunshine123 HB Usersunshine123 HB User
Re: Could this be interstitial cystitis? Its been 6 years!

Hi. I'm sorry for your pain and frustration. A friend of mine has Interstitial Cystitis and her sympoms are pain in her bladder and frequent urination. She isn't pregnant, so I don't know how that would affect her. If you could find a Dr. who specializes in bladder disease, you'd be doing yourself a favor, b/c some Urologist's don't know much about it or how to treat. There's a med. called Elmiron that is used on some women and/or a low dose of anti-depressant for pain relief. You can also avoid certain foods to see if that helps. I hope the Dr. you're seeing will be helpful. Good luck. Sue

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