It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Interstitial Cystitis (IC) Message Board

Dont understand my doctor

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 12-20-2011, 05:48 PM   #1
Join Date: Dec 2011
Location: Huron,South dakota, america
Posts: 1
misscescy HB User
Angry Dont understand my doctor

Lately i have had severe pain in my back and painful bowel movement, I was diagnosed with IC four months ago.In less than a month i have a colonoscopy appointment to see if i have IBM. i have been taking lortab . i tried elimor but it gave me extreme hot flashes, and made me feel nausated. i do bladder instilations-sp 2 times a week. I have not noticed any relief in the pain. Today when called and asked my doctor(a note was put on my chart) for something different for pain the nurse called me and acted as those i was addicted to pain pills, and now wont give me anything for pain at all for a 2weeks. I never noticed my IC untill i had my daughter in june and since than i have had horrible pelvic and bladder pain that seems uncontrollable and now my bowels are painful and my back throbs. I changed my diet and i just dont know what to do now. Any suggestions?

Sponsors Lightbulb
Old 12-20-2011, 06:58 PM   #2
Join Date: Dec 2011
Location: Huntington Beach
Posts: 1
HBNole HB User
Talking Re: Dont understand my doctor

I'm sorry to hear you're suffering so much. So many of us with IC are not helped by our doctors and not understood by our friends & family. I've been diagnosed with IC for 15 years now and I can offer some suggestions for you.

My first recommendation is that you get a new doctor as soon as possible. No one should deny you pain medication. If you spoke to the nurse or nurse practitioner, then demand to speak to the doctor. If this is your specialist, then go to your primary care doctor and get a prescription for pyridium or Elavil to help with your pain. (There are probably stronger meds also but I've never had to go on them.) If, on the other hand, you've never seen a urologist, request a referral as soon as possible because your doctor clearly doesn't know what he's doing.

In the meantime, you can try a few things on your own to help with the pain.
  • Invest in some Prelief -- It's an acid reducer that you take BEFORE you eat.
  • If you forget to take your Prelief before eating, you can use a couple of Tums Ultra afterwards which may bring some relief. (Be careful not to take too many Tums as they might alter your body's pH balance and give you a yeast infection.)
  • You can take warm baths with something non-chemical like oatmeal to ease a bit of your back pain. (CVS has some store brand oatmeal bath soaks that are quite good and help relieve dry skin to boot!)
  • I've never used a heating pad but some people with IC swear by them. Put it on your back or your front pelvis to see if it helps with the pain.
  • Any time you like, but particularly at bed time, you can mix a cup of water with 1/2 teaspoon of baking soda and drink it all down to help with night pain/urgency.
  • And speaking of water, many bottled or filtered waters come out too acidic for us with IC to drink. I drink tap water, as many others do, and have fewer problems with it than when I drink from my Brita pitcher.
  • Whatever you do, do NOT eat/drink cranberries!! All of the "conventional wisdom" about bladder infections will only give you PAIN if you have IC.

I hope this helps, even just a little bit. Most of this should've been offered by your doctor as ways to help you cope, so getting a new doctor is imperative if you can do it. I hope your pain decreases soon.

Last edited by moderator2; 12-20-2011 at 06:59 PM. Reason: please do not post a commercial website, for any reason.

Old 12-28-2011, 05:17 PM   #3
Junior Member
Join Date: Dec 2011
Location: Melbourne. Australia.
Posts: 12
bbrazilian HB User
Re: Dont understand my doctor

My first question is how were you diagnosed? Was it via cystoscopy? I ws diagnosed in June 2011 via cystoscopy and was immediately prescribed Elmiron. Even though my symptoms were mild in comparison to others with this illness, my bladder looked shocking! I only had the urge/frequency. Has anyone discussed Elmiron with you? It is quite expensive in many countries, but it has completely controlled my symptoms and I don't need to take anything else. I am very wary of pain meds. They cause more problems than they solve and you need to try other options before you go down that track, especially with the more addictive ones. There are a few helpful drugs for IC that are much better that painkillers. You also need a good urologist. This is critical in IC because many urologists are not good in dealing with it.

Migraineur (Topamax 2 x 50mg daily)
Interstitial Cystitis (Elmiron 3 x 100mg daily)

Closed Thread

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:14 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!