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Irritable Bowel Syndrome (IBS) Message Board

  • IBS is only diagnosis Iíve received so far, but feel itís something more.

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    Old 08-28-2020, 03:13 PM   #1
    AnnikaHansen
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    IBS is only diagnosis Iíve received so far, but feel itís something more.

    I apologize in advance if this becomes a lengthy post, but Iíve been ill since early June with no real improvement. It all started the day after my period in June. I had been having pretty irregular and painful periods, and after a more excruciating night of pain than usual, I woke the next day feeling a bit nauseous with no appetite and general malaise.

    I have had mild IBS most of my adult life, usually associated with my anxiety disorder, but it had been worsening over the past 1-2 years. My mother also has had IBS most of her life, so Iím well familiar with the symptoms.

    So I assumed this episode that happened the day after the period was just IBS and/or period related, and would clear up in a few days, as usual. Except it didnít. Over the next week or so I continued having episodes of diarrhea, nausea, complete loss of appetite, and profound exhaustion/fatigue.

    I finally went to the doctor, and was promptly sent to the emergency room. There they did blood work, urinalysis, and a CT scan of my abdominal region. Gave me fluids because I was so weak. All the tests came back fine, so they told me itís just IBS, and sent me home with anti-nausea medication and told me to follow up with my primary doctor.

    My doctor scheduled me to come in, but it was so exhausting for me to get there, by blood pressure had dropped to like 80 over 50 when I arrived so they sent me back to the ER. They put the heart monitor on me, took more blood, gave me more fluids, still couldnít find anything wrong and sent me home again.

    I saw my gastroenterologist and took the hydrogen/methane breath test to check for SIBO and that was negative. Now Iím scheduled for an upper endoscopy, but not until the 10th of September.

    Amidst all this, I was feeling so frustrated, feeling awful with no answers, I spoke with a Naturopath.

    She told me I was dealing with Epstein Barr re-emergence (I did have mono when I was 18), adrenal fatigue, and low stomach acid. She sent me a bunch of links on how to treat these conditions naturally with food and supplements, and the game changer (at least temporarily) was when I added the supplement HCL with Pepsin and gentian bitters.

    After the first day of taking one of these capsules before each of my liquid meals (I had been unable to get down solid food for three weeks), I woke up the next day feeling almost normal. My appetite completely came back, I was able to eat normal meals again, and my energy started to return. This lasted for about two weeks. I thought I was completely on the mend. I also went in for a Gyno exam, (August 6th) and decided to go on the Depo shot to help deal with these difficult periods.

    Then about three days, I had a complete relapse. I had a day of severe diarrhea that dehydrated me so much I landed back in the ER. And since then Iíve never recovered. Other than a few isolated incidents, Iím not having frequent diarrhea anymore, but I am suffering a complete loss of appetite, frequent feelings of nausea, and complete profound exhaustion.

    Iím back to mostly my liquid meals, and I try to make sure I get at least 1000 calories a day, but Iíve lost a significant amount of wait since this all started; from 133 lbs down to 118. And even my liquid meals cause me to feel painful and bloated and to have a racing heart after consuming them for an hour or more.

    I get lightheaded whenever I go from sitting to standing, and just to walk from my bedroom to the kitchen causes me to become out of breath.

    Iíve had a load of other blood tests done, they said theyíve checked for thyroid, autoimmune, whatever else it could be. But still no answer.

    Someone, please help.

    Thank you.

     
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    Old 08-28-2020, 07:41 PM   #2
    ladybud
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    Re: IBS is only diagnosis Iíve received so far, but feel itís something more.

    You have several symptoms suggestive of possible Addisons disease, which is an underactive adrenal condition. Extreme fatigue, nausea, appetite loss, diarrhea, dehydration, weight loss, orthostatic low blood pressure (getting dizzy when going from sitting to standing with rise in heartrate) are all symptoms of Addisons. It is a deficiency of the hormone cortisol. It requires a blood test for cortisol, which is not done on the usual tests in Dr offices or the ER. If you end up in either place ask for a serum cortisol level, best done around 8 am or 4 pm. An endocrinologist is the specialist who deals with this. Itís an autoimmune condition that is relatively uncommon but can be very serious so it needs checked out right away. Any kind of stress will make it worse, so please get this checked out. The low blood pressure can make you pass out and injure yourself. Let us know what happens. It is treatable once identified.

     
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    Old 08-28-2020, 08:03 PM   #3
    AnnikaHansen
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    Re: IBS is only diagnosis Iíve received so far, but feel itís something more.

    Quote:
    Originally Posted by ladybud View Post
    You have several symptoms suggestive of possible Addisons disease, which is an underactive adrenal condition. Extreme fatigue, nausea, appetite loss, diarrhea, dehydration, weight loss, orthostatic low blood pressure (getting dizzy when going from sitting to standing with rise in heartrate) are all symptoms of Addisons. It is a deficiency of the hormone cortisol. It requires a blood test for cortisol, which is not done on the usual tests in Dr offices or the ER. If you end up in either place ask for a serum cortisol level, best done around 8 am or 4 pm. An endocrinologist is the specialist who deals with this. Itís an autoimmune condition that is relatively uncommon but can be very serious so it needs checked out right away. Any kind of stress will make it worse, so please get this checked out. The low blood pressure can make you pass out and injure yourself. Let us know what happens. It is treatable once identified.
    Thank you, I will ask my doctor for this test.

     
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    Old 10-08-2020, 05:18 AM   #4
    Bakagan
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    Re: IBS is only diagnosis Iíve received so far, but feel itís something more.

    Sorry to hear about your story, hopefully you've caught it in time, do keep the forum updated. If it helps in any way, my neighbour found blood in his stools some years ago, he was diagnosed with colon cancer, he's about 70 years old.. and... He won the fight. So there's plenty of hope.

    Do you mind me asking your age?

     
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