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  • IBS or Parasite?

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    Old 10-01-2002, 03:07 PM   #16
    busymommy
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    Amy-

    The Flagyl has so many side effects...darkening of the urine is one of them. I'm trying to believe you still feel lousy because of the side effects of the Flagyl. Actually, I'm really hoping because I know how awful it is to feel constantly nauseous!

    Have you been back in touch with your primary doctor? I wound up with a referral to a gastro doctor (after I felt better, of course), so maybe instead of a clinic you should go back to your primary and make her responsible for your health!

     
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    Old 10-02-2002, 10:44 AM   #17
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    I'm sure hoping that you're right - that this is just side effects of the flagyl. Did you also have a constant burning/bile taste at the back of your throat?
    I also have upper abdominal pain that comes and goes. But those are all symptoms I had BEFORE I went on the Flagyl. My general physician was the one who prescribed it for me, and I think she's running out of things to screen me for, so thats why I was considering the diagnostic center. Apparently they do a whole gamut of tests over several days. But unfortunately it's also a 4 hour drive from my home, which means more time off work (thank god i have great employers cos I've only been working part-time). I really have NO idea what to do if these antibiotics don't work. I've thought about having the VitaScan done (which includes the whole body and virtual colonoscopy), but I'm not sure if thats any better than the ultrasound I had done already. I'm thinking maybe I should just call my gastroenterologist back, who says the next option would be a CAT Scan (of my head or gut, I don't know). I really can't afford to have all these humongous tests done, but I'm so desperate to find an answer to this and start feeling like myself again. It's gotten to the point where I've developed a phobia about driving and going just to the grocery store cos I feel like I'm gonna get sick while I'm there. It's created anxiety in me that I've NEVER had before. It is SO completely unlike me. I'm normally such an active and outgoing person. Now I'm just completely miserable. Maybe this IS all in my head. If it is I wish somebody would give me a pill so I can just move on with life.
    BusyMommy, did your symptoms come on very suddenly? Mine started with several episodes within 2 weeks where I just had a sudden attack of severe nausea. I'd be fine all day and then it would just hit me. Then the fatigue kicked in and then it all never went away. Even motion (walking/driving) or vibration tends to make me nauseaus, but I'm not dizzy.

    Anyway sorry for rambling and thanks for letting me vent.

    A.

     
    Old 10-02-2002, 10:47 AM   #18
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    P.S.
    I called the pharmacist to ask about the dark urine. He said - according the the pharmaceutical guide - that 1 in 100,000 people get it while taking Flagyl. If anyone is gonna have those kind of odds, it's me. I should go play the lottery.

    A.

     
    Old 10-02-2002, 03:35 PM   #19
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    Amy-

    I'm rooting for you. I want you to get better!!

    The Flagyl caused so many side effects (read my post above). If you look up Flagyl on a search engine, you'll see all the side effects it can bring on...many mimicking your original symptoms, which made you take the stuff in the first place. I had a horrible taste in my mouth...and so dry. So, let's assume, 'cause we're desperate here, that many of your current symptoms are the Flagyl. How long did you doctor prescribe the Flagyl? I would take it all, definitely...unless you have MAJOR side effects...like seizures, tingling in hands, arms, legs, etc.

    Now you just need to wait it out (since we're theorizing here that it's the Flagyl) and see what happens. In the meantime, if you have the time/money/energy to spend in more diagnostic testing, go for it. I had so many tests I knew how every organ in my body was fairing. Everything, of course (and thankfully) was working fine. I was just nauseous and exhausted all the time and had diarrhea. Is diarrhea one of your symptoms?

    So, the rest is up to you. Let me know when you're finished taking the Flagyl. With me, it really took about three weeks after the last dose to feel better.

    Keep us posted, Amy.

    I am taking a probiotic twice a day. Definitely try this.

     
    Old 10-02-2002, 04:42 PM   #20
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    Hi thanks for all the support - I greatly appreciate it.

    I got a hold of my gastroenterologist and he really wants me to have a CAT Scan done of my abdomen. I told him how I was on the Flagyl and I don't seem to be feeling better, and he said typically with bacteria or parasitic infections you have diarrhea - which I've never had. So it makes me (and him) think that this could be something else. Unfortunately stomach problems mimic what seems to be dozens of ailments. I'm praying this is the last test I have to endure.
    He's prescribing some Compazine suppositories that will hopefully help curb some of the nausea till I get the test done (I canceled the diagnostic center). Prolly in about a week or so. I'll keep you posted.

    Thanks again for all your support, good thoughts, and information.
    Amy

     
    Old 10-18-2002, 09:37 AM   #21
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    Amy -

    Let us know how you're doing.

     
    Old 10-20-2002, 03:03 PM   #22
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    Hi - I've been doing a little bit better the last week or so, but still not 100%. I had my CT scan done on Friday and will have results by Tuesday I hope. My gastro had given me Compazine for the nausea, but I stopped taking it cos it just drugged me out so bad I couldn't concentrate for a day and a half. I haven't been taking anything at all and the nausea has been a little better, but still comes and goes. I still also have the occasional upper abdominal pain.
    Even though I've been tested for pretty much every cause to this, there is still one avenue that hasn't been explored and it seems to make the most sense. When I was 3 weeks old, I had pyloric stenosis surgery. The incision was made at the exact site of my pain. I'm thinking I may have scar tissue which is causing all my problems. In researching it, I've found that people who have abdominal scar tissue have the EXACT same symptoms as I do. It is a little odd that it would create a problem nearly 30 years later, but I remember my gastro saying that it could be a possibility. Unfortunatley, the only way to know for sure is if I have exploratory surgery (laproscopy). If nothing shows up on my CT then I'm really going to look into this. I was talking with a good friend of my parents who is a PT and he recommended doing some deep tissue massage to help break up the scarring and see if that helps, so I'll give that a try for a coupla weeks. If that doesnt work then I'm game for the laproscopy. At this point I don't care if they wanna do a stinkin autopsy on me - I just want to be well again.

    Thanks for thinking of me. I'll keep you posted.
    Amy

     
    Old 10-23-2002, 07:14 PM   #23
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    Just an update...
    I got the results of my CT scan. And as predicted, everything looked normal. Except for one thing. I guess my lymph nodes around my aorta are enlarged. But still within "normal" range. My gastro didn't seem to think this was any need for alarm because it wasn't exceeding "normal", but anything close to being "abnormal" seems to give me a red flag. It could be nothing, or it could be something.
    His explanations for now is that I could still be "A-typical" IBS (which I don't have symptoms of - no diarrhea or constipation), or adhesions from my surgery as an infant. After that, he really has no clue and would either refer me to get a second opinion, or to a surgeon for possible exploratory laproscopy.
    In researching some info on para-aortic lymph node enlargement, all I seem to find is how it relates to cancer. I'm not trying to freak myself out, cos it very well could NOT be. But then again, how many times do you hear about how doctors look over early symptoms of it. Many. I'm still gonna try the deep tissue massage and see if that helps. After that, who knows.

    Thanks -
    Amy

     
    Old 12-13-2002, 01:52 PM   #24
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    Amy:

    It's been awhile since your last post. If you're still reading this board, let us know how you are doing.

     
    Old 12-13-2002, 05:37 PM   #25
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    I have abdominal adhesions from multiple laparoscopies, and the pain from them is different to the IBS pain. When my adhesions are bad, they sometimes make the bowel spasms worse, I think due to the bowel not being able to move properly and "bits" get stuck. But after I have them "clipped", I just go back to the "normal" pain.

    Isn't it amazing, they can put a man on the moon, yet they can't fix these sorts of problems!

    Jane

     
    Old 12-25-2002, 02:29 PM   #26
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    Merry Christmas...

    Just an update...
    Still suffering with illness. After CT scan, underwent testing for ovarian cancer (had pelvic and transvaginal ultrasound) just to rule it out. Nothing was found except a common 1"cyst over one of my ovaries, but not the cause of my stomach problems. Several more weeks went by with still not changes so went back to my general physician who wanted me to have a stomach emptying test done.
    Did that and results came back positive for Gastroparesis (delayed stomach emptying). However, when I spoke to my gastroenterologist about it, he said the results were only "slightly" abnormal and he thinks the test was done wrong (I was lying down the entire time of digestion). Plus theres no real reason for me to have it since it's more seen in people with Diabetes or Parkinsons - of which I have neither.
    So back to square one.
    Spoke with my endocrinologist who suggested I go off my thyroid medication temporarily to see if problems are resulting from it. Have been off of it almost two weeks and still feel sick.
    Square one again.
    At this point I'm debating whether to ask for valium cos I'm so anxiety ridden from this stupid illness and no diagnosis. I'm supposed to go back for another CT scan in January to see if my lymph nodes have enlarged any further. If so, then they will prolly be biopsied. At this point, I think that's the only clue as to whats causing this.

    Anyway, thanks for letting me get that off my chest. I'll keep you posted.
    Happy new year.
    Amy

     
    Old 02-09-2003, 06:33 PM   #27
    alse
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    busymommy, I know how you feel about Flagyl cause it healed my symptoms back in 94. I had unstoppable burning at about my rectum after bowel movement going for 6-8 hours everyday. One doctor said it might be psychological! I searched like mad for information. It started after I returned from holiday so I suspected that it might be due to giardia lamblia found in pool water. I suggested my doctor to have tests. 3 came negative, 1 last one came positive. And Flagyl got the job done. But unfortunately I didn't take it as I supposed to take and the problem (and many other problems) came back with a vengeance, trying to recover for the last 3 months.

     
    Old 02-10-2003, 05:19 AM   #28
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    coral calcium by dr barefoot helps stomach problems and yes definitely cutting back on lactose does reduce the acidity. coral calcium helps put you back in the ph balance your body needs

     
    Old 06-29-2005, 10:14 AM   #29
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    Re: IBS or Parasite?

    I ran across this board while doing a search on Flagyl. I've had chronic diarrhea off and on for 2 years now. I suspected IBS, but have had significant weight loss which I'm told isn't a symptom of it. I've had all the other symptoms, gas, bloating, diarrhea, certain food intolerances. I finally went to a GI doc and he said he didn't think I had IBS, to eat what I wanted and tested me for Crohn's, Celiac, parasites and bacteria. He says I have something called CDT (a search on this has come up dead) and prescribed Flagyl. I'm on day 2 and while the gurgling and gas are gone, the diarrhea is worse and more sporatic than before. Now, I'm terrified to leave the house because the diarrhea is so spontanious. I'm taking the proibitics..oh, however you spell it, and 2400 mg of coral caltrate calcium a day. Over the counter diarrhea meds do NOT work. I'm going back on my intolerance diet (I started eating real food again since the doc said I could) until these pills are gone.

     
    Old 06-29-2005, 10:15 AM   #30
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    Re: IBS or Parasite?

    didn't mean to post twice.

    Last edited by jeanie1210; 06-29-2005 at 10:25 AM.

     
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