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    Old 04-01-2009, 08:39 PM   #16
    googlefreak1
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    Re: Need Advice - IN CONSTANT PAIN

    Hey Lainie 33
    There are many different brands of “colon cleanse” out there and they are all just a little bit different from each other but for the most part the same. The only place that I found one that I was comfortable with is at the health food store, I guess because that the Nutritionist was there to answer any questions that I had. As far as hanging out with the toilet for days in my case it wasn’t at all like that and for other people that I discussed the cleanse with they seemed to have the same story. Like I said before “it’s not what you are thinking it is”. You can talk to someone at a Health food store and they can get into detail with you and explain it better. Trust me you won’t be asking any questions they haven’t heard before. Also it isn’t harsh like the “icky stuff” you had to take for the colonoscopy. As far as the organic goes that is your own choice “not mandatory” for the cleanse. Just purges your system better. Also have you been keeping a diary of what you eat to narrow down the enemy, I know it’s a pain in the *#@ but do it doesn’t have to be perfect just so you know and can pinpoint the problem foods.
    “Good Luck” and keep me posted.

     
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    Old 05-17-2009, 10:35 AM   #17
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    Re: Need Advice - IN CONSTANT PAIN

    Lainie,
    First, "colon cleanse" is a complete rip off. They charge you a fortune for something that is basically a laxative. You would do just as well with a few senna tablets or a $1.25 bottle of magnesium citrate. However, if you wanted to have a colonic done by a professional, that would definitely be an option for C. As another poster already stated, if you took the pre-colonoscopy prep meds, you've already been cleaned out.

    You haven't stated which you suffer with - D or C? There is a huge difference in treatment for each. It's hard to make any recommendations without this info.

    Regarding pain killers: I can't begin to imagine HOW a pain killer would even work on IBS pain. To be honest, most pain killers are not effective at directly targeting isolated pain, which is how IBS operates - pain focused in and around the abdomen. At the risk of sounding completely out of line, I would suggest that your use of pain killers may be mostly psychological or neurological; that is, they are suppressing the anxiety and stress with an anesthetic. Maybe they quiet the part of the brain that stimulates the gut - don't know but in 35 years of dealing with severe IBS, I have NEVER had a doc prescribe oxycodone for my gut. In fact, 98 percent of them would advise against taking such a strong med due to the gastro effects it will have. IF the pain killers are actually working on the pain, you may be correct in your suspicion that you don't have IBS. Perhaps there is something else going on that has yet to be diagnosed.

    In any event, taking pain killers for an extended length of time is going to do much more harm than good. Anyone dealing with IBS for a period of time knows that the frustration gets us to the point where we just don't care; we are doing whatever we must just to survive. For me, my severe C DRIVES me to take laxatives periodically, despite the fact that I KNOW they are not going to further my progress in getting and feeling better. It's a temporary solution that makes me feel better for the moment - but a long term solution it ain't. With pain killers, you have an even bigger issue in that not only are you screwing with your digestive system but you run the risk of developing a serious addiction. It is not going to be possible for you to find any natural resolution for your problem if you continue complicating the issue with these meds.

    Hope that doesn't sound harsh but I can't emphasize enough how counter-productive narcotic use is. You will not have success with anything else you try if you continue suppressing natural digestive function with painkillers.

    Good luck to you.

     
    Old 05-18-2009, 11:02 AM   #18
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    Re: Need Advice - IN CONSTANT PAIN

    Hi Bellyblues, thank you for the information and the advice, and no you are not being harsh, just realistic. I understand why.

    I am not sure what kind I have C or D... They never definitively diagnosed me with that, just said that it most likely is IBS because they have tested me for everything else under the sun and they all came back negative. All the IBS meds they gave didn't help the pain. Nothing they have given has helped with the pain so I am at a loss and take the painkillers to help. I know that I shouldn't be taking the painkillers and really don't want to for the reasons you have stated. My drs have suggested I stay away from them but they have not given a solution that will take the pain away so I don't have to take them. I know they cause constipation and could cause more problems than good but I am stuck between a rock and a hard place for they help me get out of bed, not be in pain and go to work. Without them, I don't think I could move. On top of the pain, I feel run down and crappy ALL the time. The painkillers help me feel better and get me moving. I am sure by now I am physically addicted to them and I am sure they are helping with anxiety and stress. My GI doctor has had me try everything to no avail. My GP has referred me to this specialist and that specialist to no avail, so in the meantime, he gives me the painkillers. My GI doctor knows but again until I have a solution, this is what I have to do. An added wrench into this whole thing is that my insurance stopped in January (I am a consultant and was paying cobra), I am looking for a full time job with benefits, but until I get one (and in this eceonomy who knows how long that will take), I have resigned to keep taking the painkillers and trying holistic approaches. I can't afford to keep trying different meds until I get insurance. The last time I went to my GP, he suggested I see a Gynocological Urologist for it may be an issue with my plumbing or something. I don't know if it is IBS or not, and kinda think it is not, But what it it?? I can't see the urologist until I get insurance so I am back to square one and the painkillers. It is a vicious circle that I really want to stop, but I don't know how to right now.

    Maybe you can advise on what it may be based on my symptoms... I feel run down and just plain icky (medical term y-know) all the time. I get nauseous sometimes, my appetite is off where I am starving one minute and couldn't think of eating anything the very next minute. Or I have to eat sooo much to get satisfied then next time I eat, I only eat a few bites then I get full. I get dizzy, have headaches and/or migraines, body aches, muscle spasms, and then of course there is the pain. I have a constant dull pain in my lower abdomen all the time, with the occassional shooting/stabbing pain in my sides (both sides, but not at the same time). I am very gassy (which is just so very attractive) but I am not constipated (only occassionally). The pain sometimes subsides a bit after a bowel movement, but never after I urinate. The wierdest thing about the pain is that sometimes it also feels like it is just underneath my skin across my lower abdomen. Like if my internal organs were a balloon that had a towel covering it, something is scraping all over the balloon underneath the towel. LOL It is so hard to describe the pain I have... lovely visual image I have there I know...LOL Sometimes it is a gas pain times a 1000, other times I can't describe it...like the balloon pain...LOL

    The last test I had was when I swallowed a camera. I was in there first thing in the morning, which is when my pain in at it's worst. I swallowed the camera, but I think by the time the camera passed through my system and made it to my lower abdomen, whatever caused the intense morning pain dissipated. Plus after a certain time in the day, I was able to eat and take my painkillers which I don't know if that would have affected what they have seen on the camera at the end of the day.

    It has been going on 4 years I have been dealing with this. It came on very suddenly too. I woke up one morning and had the stabbing pain all the time over the constant ache. They took my gallbladder and the constant stabbing pain went away but the constant ache did not. I am at a loss and I am just frustrated!

    Thank you again for your advice and suggestions. I greatly appreciate your help. This board has been helpful in the fact that I am not alone and other people have these pain issues that doctors can't figure out. I just wish you guys had a miracle cure as well. LOL

    Thanx again,

    Lainie

     
    Old 05-18-2009, 09:47 PM   #19
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    Re: Need Advice - IN CONSTANT PAIN

    I'm still fairly new to the IBS thing so I can't help a lot.

    It looks from your latest post that you aren't sure about IBS C or D. That leads me to believe that you aren't sure what they are. If that is the case, maybe I can help a bit. IBS C is IBS with constipation. IBS D is IBS with diarrhea. IBS A is IBS that alternates between C and D.

    I have IBS A right now. Started as IBS D for about the first 4 months. My doctor defines constipation for me as going less than normal for you. I used to go regularly twice a day for most of my adult life. I'm now down to once a day or less. He defines that as constipation for me. He defined diarrhea as going more than normal, not just the loose watery stuff. I've had days when I was averaging between 7 and 20 times per day going.

    The gas, pain, spasms, bloating all sound like they could be IBS.

    Have you taken any anti-spasmotics for this? My spasms got bad around last January. I took an anti-spasmotic as needed for a while. It helped some, but not greatly. I then started taking it every night before bed. I have had fewer nights where I wake up with the spasms. I have also had fewer really bad spasms when I wake in the a.m. When I do have a.m. problems, I take a second morning dose. It doesn't keep all the pain away, but it has really helped with the severity of the gut pain. I use Hyoscyamine (brand name Levsinex) at a higher dosage, extended release version. For me, getting the spasms under better control has helped with the pain.

    The other thing that I've done is eliminate a bunch of stuff from my diet. I've tried to stick with that pretty much for now. I figure I can try adding stuff back in after I have some control back.

     
    Old 05-18-2009, 10:31 PM   #20
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    Re: Need Advice - IN CONSTANT PAIN

    Hi Lainie,

    Mountain Reader has already explained the difference between IBS C and D. Your doc doesn't have to tell you that - you can diagnose it yourself. Either you CAN'T go or you CAN'T STOP going. Alternately, you may go but never feel like you've gone enough. You may go and still feel like you have to go all day long. You might go 10 times on Tuesday and not at all on Wednesday. But through all of this, there is almost constant bloating, gas, pain, and cramping. With IBS, the issue of defecation and pain are inseparable. As gross and embarrassing as it sometimes may feel, this info is really important. Your posts describe the pain but they don't talk much about the bowel issues.

    You said you're not constipated. Are you experiencing Diarrhea? Are you going normally, with no irregular or odd BM's? Is the pain unrelated to your bowel habits? Here are the criteria which docs use to determine IBS:


    Irritable Bowel Syndrome can be diagnosed based on at least 12 weeks (which need not be consecutive) in the preceding 12 months, of abdominal discomfort or pain that has two out of three of these features:

    1. Relieved with defecation; and/or
    2. Onset associated with a change in frequency of stool; and/or
    3. Onset associated with a change in form (appearance) of stool.

    Symptoms that Cumulatively Support the Diagnosis of IBS:
    1. Abnormal stool frequency (may be defined as greater than 3 bowel movements per day and less than 3 bowel movements per week);

    2. Abnormal stool form (lumpy/hard or loose/watery stool);

    3. Abnormal stool passage (straining, urgency, or feeling of incomplete evacuation);

    4. Passage of mucus;

    5. Bloating or feeling of abdominal distension.

    Supportive Symptoms of IBS:
    1. Fewer than three bowel movements a week
    2. More than three bowel movements a day
    3. Hard or lumpy stools
    4. Loose (mushy) or watery stools
    5. Straining during a bowel movement
    6. Urgency (having to rush to have a bowel movement)
    7. Feeling of incomplete bowel movement
    8. Passing mucus (white material) during a bowel movement
    9. Abdominal fullness, bloating, or swelling

    As you can see, the emphasis is on how the colon works. There is very little focus on pain. In fact, there are quite a few folks who have been dx with IBS who have little or no pain at all related to this condition.

    If the pain you experience is that debilitating and not related to your colon function, then you may have some other physical conditions yet to be diagnosed.

    Symptoms such as:
    Quote:
    I feel run down and just plain icky (medical term y-know) all the time. I get nauseous sometimes, my appetite is off where I am starving one minute and couldn't think of eating anything the very next minute. Or I have to eat sooo much to get satisfied then next time I eat, I only eat a few bites then I get full. I get dizzy, have headaches and/or migraines, body aches, muscle spasms, and then of course there is the pain. I have a constant dull pain in my lower abdomen all the time, with the occassional shooting/stabbing pain in my sides (both sides, but not at the same time). I am very gassy (which is just so very attractive) but I am not constipated (only occassionally). The pain sometimes subsides a bit after a bowel movement, but never after I urinate. The wierdest thing about the pain is that sometimes it also feels like it is just underneath my skin across my lower abdomen. Like if my internal organs were a balloon that had a towel covering it, something is scraping all over the balloon underneath the towel. LOL It is so hard to describe the pain I have... lovely visual image I have there I know...LOL Sometimes it is a gas pain times a 1000, other times I can't describe it...like the balloon pain...LOL
    are really not consistent with IBS.

    Good luck to you.

     
    Old 05-19-2009, 07:24 AM   #21
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    Re: Need Advice - IN CONSTANT PAIN

    Hi Mountain Reader and Belly Blues!

    Thank you for all the information. That is very helpful. I don't think the pain is completely unrelated to my BM's but having a BM doesn't always help. I know the doctors thought my colon was the issue for I have had all the tests (colonoscopy, endoscopy, camera test, etc) but I guess it is working correctly for they haven't found anything.

    Most of my life I have been pretty regular, which for me is once a day typically in the morning. Over the last few years, I typically remained fairly regular but occassionally I would have the very urgent need to go where I would be driving and would have to pull over immediately to go or I felt I was going to explode. The pain sometimes subsided a bit after a BM, but most of the time did not go away completely. The movements were normal, typically, however on those days where I had the urgent need, the BW could be very hard or very soft with straining or exploding. From the symptoms above, I think I have the following:

    3. Hard or lumpy stools
    4. Loose (mushy) or watery stools
    5. Straining during a bowel movement
    6. Urgency (having to rush to have a bowel movement)
    7. Feeling of incomplete bowel movement
    9. Abdominal fullness, bloating, or swelling

    As for your question, MountainReader, I was prescribed Anti-Spasmadics but they did not help. I took Hycosamine for some time and BellaDonna for a while there. I think I tried other stuff as well, but can't remember now. There were so many...

    After reading this board and the very helpful information you supplied, I think the pain I have is probably because of IBS but also because of something undetermined at this point. I have modified my diet, and have started tracking what I eat. I have reduced my intake on certain foods, like dairy and wheat. I don't eat fried foods any more, except for the very rare craving that I get. There isn't one particular food that triggers the pain. I have it when I haven't eaten anything and when I just had a full meal.

    Has anyone ever been to a Gynocological Urologist for similar issues? I am wondering what my doctor my think it could be now if he is sending me to this specialist...

    Thank you again so much for the information! You all have been tremendously helpful!

     
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    Old 05-08-2011, 01:12 PM   #22
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    Re: Need Advice - IN CONSTANT PAIN

    Sounds like you have fibromyalgia. You need to go glutin free.

     
    Old 05-13-2011, 12:25 AM   #23
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    Re: Need Advice - IN CONSTANT PAIN

    This is an old thread and your problem may have been solved.

    If it hasn't here are my thoughts.

    It sounds to me like you lack magnesium and calcium in your diet.
    Magnesium is in every cell of your body and lacking it causes cramping as well as spasiums in any muscle-- including the intestines.

     
    Old 08-30-2011, 10:24 PM   #24
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    Re: Need Advice - IN CONSTANT PAIN

    I fully understand your agony. I too suffer with IBS and have for 4 years now. I was recently diagnosed this past February, but didn't accept that this was the cause of my severe, excruciating pain (I think I spelled that right). Your symptoms and experiences with all types of tests are very similar to mine, along with countless hours spent in emergency rooms. I am here to stress to you the importance of changing your diet. Oh my! It has worked for me like nothing else. I searched the web, researched IBS and preventive measures of attacks, and boy I tell you the suggestions to change my diet has really worked. I still have some pain during my time of the month, but nothing at all like before. I highly encourage you to research your diagnosis, and change your eating habits. It will hopefully bring you some relief. Good luck!

     
    Old 12-03-2011, 04:25 PM   #25
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    Re: Need Advice - IN CONSTANT PAIN

    Phenegran is the only nausea medication that works for anyone in my family. It is an AMAZING medication

     
    Old 12-10-2011, 07:01 AM   #26
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    Re: Need Advice - IN CONSTANT PAIN

    Quote:
    Originally Posted by Lainie33 View Post
    Hello all and thank you for taking the time to review my posting and help me out. There must be others that are in my situation and have the same problems i have. I am in dire need of some help.

    Basically, the story goes. I have been sick for about 3 years with consistent pain in my lower abdomin. I have been tested for EVERYTHING! I have had colonoscopy, endoscopy, hydrastat testing (I think that is how it is spelled), blood work, cat scan, X-Rays, I even swallowed a camera!! Every test comes back NEGATIVE!!! It is very frustrating. At least I know it isn't a tumor or anything serious, but this is getting ridiculous! I am nauseaus, tired, sore and in pain ALL the time. I have tried practially every medicine out there and nothing helps. I take fiber supplements, take vitamins, and anything else I can get my hands on that may help...lol

    I am tired of being in pain and feeling horrible. This is effecting my relationship with my husband and my relationship with work. I don't ever want to go for I don't want to sit at a desk for 9 hours a day, but obviously I have to go. My co-workers are sympathetic but I know they are getting fed up with me contantly working form home or looking and feeling like crap while on the job.

    I go to a GI docter, my GP, my gyno, and no one can figure out what is wrong with me. They even took out my Gall bladder, but that didn't help! Granted that did take away the stabbing pain I had but not the contant dull ache I always have. Basically, after they have doen all those tests, they are now saying IBS...which seems to me that it is the catch all diagnosis. If they don't know what it is, it is IBS.

    It is so hard to verbalize this feeling. I use to say it is like gas pains times 100 but it is not always like that. Sometimes the pain feels like it is right under my skin, other times it is deep inside and does get relief (a bit) after a bowel movement. Not all the times though. The mornings seem to be the worst. I wake up or am woken up from the pain. I am doubled over in the fetal position until the painkillers kick in. Then I go on with my day. For the last 5 months I have been consistently taking painkillers about 3 - 4 times day and am now afraid that I am going to get / or already are addicted to them. My GI doctoer doesn't want me to take the painkillers for they can cause constipation, but they are the ONLY thing that gets rid of the pain and lets me get to work. I don't want to take painkillers all the time and would absolutely LOVE an option, but none has been suggested to me that work.

    Please please please help me. I live in the CT area and currently do not have insurance. If you know anyone in the tri-state area that may specialize in this problem, please send me their info. My health insurance just expired for I was on Cobra. I am a project management consultant by day looking for a full time job with benefits. So I would need to work with the doctor, but at this point I am willing to put a second morgage on the house if someone can get rid of this pain....lol

    Thank you for your help. I greatly appreciate any advice you can offer.
    Try taking Bentyl which is anti spasmodic medication which is a prescripton along with taking probiotics like acidophilus 3 times a day and Citrucel twice a day which all help to keep the colon going into spasms. The Citrucel will help keep you regular and keep your stool soft but firm enough so you don't get diarrhea. If you can tolerate a high fiber diet and drink lots of water this also helps with IBS symptoms especially if you're prone to having constipation problems. Try to stay away from foods that can trigger severe IBS symptoms like the colon spasms: most dairy products,spicy,gassy,and fried foods.

     
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